Living With RETT Site Map



"We can't form our children on our own concepts; we must take them and
love them as God gives them to us."


- Johann Wolfgang von Goethe





~How To Maneuver Around Living With Rett Syndrome~





I hope this site helps you find everything you're looking for regarding RETT syndrome and helpful information for your daughter. I've tried to think of every aspect of RETT which you may need in your journey on this road of Rett syndrome.


This is a long site, so sit back and relax and begin your journey, or "our" journey with RETT syndrome. Please be sure to bookmark this site so you can return later (and you may need to use your BACK browser to return to some pages).



Living With RS
Main Page
Our Story With Rett
our life with Rett
The Early Years
text version
The Early Years Photo's
pictures of Dani growing up
Medical Issues With Rett
links to various medical issues
My Own Thoughts on RETT
my feelings, very intense
As They've Grown
Our Older Rettchicks Stories (NEW)
Coping With Rett
Parents Stories (NEW)
Parents on Education
the real experts thoughts
Education Helps
links to spec. ed sites
Our Daughter's Stories
read about our RETT girls/women
Photo Gallery
see our beautiful daughters
The Funny Side of RETT
stories by parents
RETT Outside the USA
foreign RETT sites
Treatments & Therapies
therapies that may work
Communication Helps
helping our daughters communicate
Special Needs Magazines
online magazines for special needs
ADVANCE Magazine Article
on RETT
Special Needs Info
lots of links
USA Gov't.
Medicaid and other sites
Equipment Helps
sites with wheelchairs, Vail Beds,bath aids & ; other equipment
Coping With RETT Syndrome
various methods I use
RETT Syndrome Awareness
describes RETT
Idaho Mountain Express: Local mom talks about RETT
by Heather Gonzales
IRSA Regional Representatives
where to find help in your area
Video's On RETT
how to order
Audio Tape Order Form from 14th Annual Conference
how to order tapes from IRSA conference
E-mail Forums
how to join Rettnet and ClubRett
Assistive technology
links to helpful sites
Adaptive Clothing
sites for easy clothes
Travel Links
traveling made easy
Wish Grantors
there's more than Make A Wish
Music Therapy
music therapy links
IEP Help for the RETT Child
MY suggestions
Transportation
van modification
IRSA'S Homepage
tons of information
What You Can Do to Help
fundraising ideas



You can e-mail me anytime



for more info or to suggest a link


This page last updated7-9-99.