All links updated on 1/16/99.
Links to disability and disease information:
Information on Retinopathy of Prematurity and other eye issues.
ROP Information and email listserv support for the parents of children with ROP
ROPARD The Association for Retinopathy of Prematurity and Related Diseases
The Center for Retinal Research
Website for an email listserv support group for parents of heart children.
Congenital Heart Defect Support Group
Congenital heart disease information.
The Congenital Heart Disease Resource Page
Congenital Heart Disease Information and Resources
Cardiology - Welcome from The Mining Company
Family Village: Heart Disorders
The LQTS Information Center
Heart Defect Linked With SIDS - prolonged QT interval
The Children's Heart Society
American Heart Association
Heart Information and Surgery Online
Lots of great info for all kinds of special people.
Family Village
Links to websites about many disabilities.
Internet Resources for Special Children (IRSC)
A Web Page devoted to raising kids with special needs.
Our Kids
Tracheostomy Information:
Aaron's Tracheostomy Page
Information on Group Beta Strep:
Group B Strep Association (GBSA) Home
Health and Disability related resources:
Sunny Hill - Other Internet Resources
For information on rare genetic diseases:
Rare Genetic Diseases In Children: An Internet Resource Gateway
Lots of links to information.
Links to Medical Libraries Online Houston Med Center
Lots of links to resources.
Neonatal Diseases and Abnormalities (Non MeSH)
National Organization for Rare Disorders.
NORD Home Page
Forums and E publications relevant to Communication Disorders and Sciences.
Kuster Index
Links to resources, including journals and email discussion lists.
Pediatric Points of Interest
Information on therapy for correcting misshapen heads.
Cranial Therapies Incorporated
Cranial Technologies
Neurology Web Forum
MGH Neurology
Professional Links:
Lippincott's Nursing Center ~ Searchable nursing journal articles and Resources
Journal of UK Neonatal Nursing Home Page
AAP PEDIATRICS electronic pages
Welcome to VORT Corporation: Tools for professionals working with parents of preemies
The WWW Virtual Library - Electronic Journals
Preemietronics Inc. Home Page
PEDINFO Home Page
NeoMed Corporation Homepage
Children's Hospital Informatics Program
John Henry's Here! | John Henry's NICU Story | My Medical Diagnoses
Preemie & Parenting Links | Disability and Medical Links | John Henry's Photo Gallery
More Preemies! | John Henry FAQ
Preemie Shopping/Resources | John Henry's Guestbook | suzanne900@aol.com
New Stuff | Articles | INDEX of JH's Website