Links to info on medical conditions, also professional links


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All links updated on 1/16/99.

Links to disability and disease information:


Information on Retinopathy of Prematurity and other eye issues.

ROP Information and email listserv support for the parents of children with ROP

ROPARD The Association for Retinopathy of Prematurity and Related Diseases

The Center for Retinal Research

Website for an email listserv support group for parents of heart children.
Congenital Heart Defect Support Group

Congenital heart disease information.
The Congenital Heart Disease Resource Page

Congenital Heart Disease Information and Resources

Cardiology - Welcome from The Mining Company

Family Village: Heart Disorders

The LQTS Information Center

Heart Defect Linked With SIDS - prolonged QT interval

The Children's Heart Society

American Heart Association

Heart Information and Surgery Online

Lots of great info for all kinds of special people.
Family Village

Links to websites about many disabilities.
Internet Resources for Special Children (IRSC)

A Web Page devoted to raising kids with special needs.
Our Kids

Tracheostomy Information:
Aaron's Tracheostomy Page

Information on Group Beta Strep:
Group B Strep Association (GBSA) Home

Health and Disability related resources:
Sunny Hill - Other Internet Resources

For information on rare genetic diseases:
Rare Genetic Diseases In Children: An Internet Resource Gateway

Lots of links to information.
Links to Medical Libraries Online Houston Med Center

Lots of links to resources.
Neonatal Diseases and Abnormalities (Non MeSH)

National Organization for Rare Disorders.
NORD Home Page

Forums and E publications relevant to Communication Disorders and Sciences.
Kuster Index

Links to resources, including journals and email discussion lists.
Pediatric Points of Interest

Information on therapy for correcting misshapen heads.
Cranial Therapies Incorporated
Cranial Technologies

Neurology Web Forum

MGH Neurology

Professional Links:

Lippincott's Nursing Center ~ Searchable nursing journal articles and Resources
Journal of UK Neonatal Nursing Home Page
AAP PEDIATRICS electronic pages
Welcome to VORT Corporation: Tools for professionals working with parents of preemies
The WWW Virtual Library - Electronic Journals
Preemietronics Inc. Home Page
PEDINFO Home Page
NeoMed Corporation Homepage
Children's Hospital Informatics Program

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Preemie & Parenting Links | Disability and Medical Links | John Henry's Photo Gallery
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Preemie Shopping/Resources | John Henry's Guestbook | suzanne900@aol.com
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