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Krabbe Disease-Dalton and Anthony's Home Page

Thomas "Anthony" Shell and Dalton Glenn Shell

Krabbe Disease...

Anthony and Dalton's Home Page

"The Miracle Of Life"

 

This page is dedicated to the memory of our son, Anthony, and in honor of our son, Dalton. Our little boys have opened our eyes to a new way to live our lives...Cherish every day with your precious little ones, for who knows what tomorrow brings!

My name is Dianna Greene. I want to tell you about my boys, Anthony and Dalton. They are the reason for my web page. You see, both of my boys were diagnosed with Krabbe disease, which is a rare genetics disorder that is proven fatal. This we know because we lost Anthony to it. Unlike most children with infantile Krabbe, Dalton has had a second chance at life. He received a bone marrow transplant at 2 month old from his twin sister, Dakota, in order to try to replace an enzyme his brain wasn't able to make. Dalton is now 10 years old and as to date, his transplant has been a success. He has a normal enzyme level and continues to show improvement.

Dalton was followed for a case study by Dr. William Krivit at the University of Minnesota Hospital. Dr. Krivit published his study in The New England Journal of Medicine -- April 16, 1998 -- Volume 338, Number16. He is patient # 5...the only child in this study with infantile Krabbe.

This is our son, Dalton,

at 10 years old.

This is our son, Anthony,

at 2 months old.

Dalton's Dream

Transplant Kids

E-Mail List

Scrapbook

Poems

Anthony's Story

What's New

Links

Special Events

E-Mail Us

Dalton's Photo Album

Krabbe Kids Album

Birthday Page

Description of Krabbe Disease

Message Board

***Other Children's Stories***

Dalton and Dr. Joanne Kurtzberg

If you are interested in finding out information
about Bone Marrow Transplants or Cord Blood
Transplants, contact:
DUKE UNIVERSITY MEDICAL CENTER
Joanne Kurtzberg, M.D.
Director, Pediatric Bone Marrow Transplant
Pager # 919-970-2216
DUMC 3350
Durham, NC 27710

E-Mail: KURTZ001@MC.DUKE.EDU

TRANSPLANTS...

Read about transplants and see kids stories.

May the Lord be Krabbe children and their families. My continued prayers for all God's children dealing with Krabbe.

Click onto Krabbe Kids Photo Album to see the children that have made such a difference in our lives. Thank you, Lord, for allowing us to be a part of their lives.

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Last Update:2/13/2007
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