My
name is Dianna Greene. I want to tell you about my boys, Anthony and Dalton. They are the reason for my web page. You
see, both of my boys were diagnosed with Krabbe
disease, which is a rare genetics disorder that is proven
fatal. This we know because we lost Anthony to it. Unlike most children with
infantile Krabbe, Dalton has had a second chance at life.
He received a bone marrow transplant at 2 month old from
his twin sister, Dakota, in order to try to replace an
enzyme his brain wasn't able to make. Dalton is now 10
years old and as to date, his transplant has been a
success. He has a normal enzyme level and continues to
show improvement.
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