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The Ectodermal Dysplasia
Mailing List Web Page
Welcome to the homepage of the ED Mailing List Web Page. Here we'll provide a source of information that has been posted on the ED Mailing List as well as a list of useful links to other resources. It is independently operated and supported by people with ED (or related conditions), or friends/family of those who know people with it.
What we offer:
- Our Frequently Asked Questions (FAQ).
- How to join the List
- Useful Links to Resources (under construction!)
- Be sure to visit our ED FAMILY PAGE
- Additional information and resources can be found at Michael Christy's ED INFORMATION PAGE
- Check out some photos from one of members: HypocuED
- ED Information in French: Oliver Le Mo
- NEW ! Get an e-mail alert when this page changes!
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Please keep this in mind: The ED Mailing List and this web site are contributed to and maintained by individuals who have been touched by ED. Many of the postings deal with the ways these individuals have handled their ED. You are welcome to contribute to the discussion and take whatever information you find useful. Please remember: this List and web site are not affiliated with any medical group, hospital or physician. Any advice or suggestions you gain from these postiings are to be used at your own risk. |
Your input is welcomed!
E-Mail the List Moderator,
Denise
Last update: 13-Jan-99
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