This site was Established on Jan 2, 1998 

                                                                   
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                               Last Update, May 18, 2001  This Site Is Three Years Old

                       New UPDATED information on me and RSD,  * Note if you want clear Photo's Uncompress Graphs,                                  

FACES OF REFLEX SYMPATHETIC       DYSTROPHY SYNDROME/CHRONIC PAIN

Three Major Items, One is a Petition Link You will find Below, Please Sign the Petition so we can bring Awareness to this Painful Disease. Also is a box, type in your zip code and it will bring up your Congress, Senators, & House of Representatives. There you will find, you can send E-mail, or compose a letter, this way we can keep the campaigning going for RSDS Awareness. Third is a link to poll your opinion on RSD Thank You. Cindy Underwood, Also to Clear up something, I've gotten letters asking me if I'm going to remove my sites from the web, to clear this up NO!!, my sites are here to stay. You will also find important UPDATED Information. God Bless.

                                                                                                 To View White House Letters on RSD  

My name is Cindy, I have RSDS, (Reflex Sympathetic Dystrophy Syndrome) I've had this disease for about 11 years now. I got RSDS, from an right knee injury on Dec 05, 1989, five days before my birthday. I was diagnosed with RSD about a year after the injury. My life has never been the same. Here's a short part of my story. When I got injured, the first doctor I saw was an Orthopedic Surgeon, I will not name him at this time..My story is long, to long to try to write to you, but the doctors suspected I had RSDS, and did nothing, in stead, they kept sending me for test MRI's, and from there to surgeries.

Total surgery, I had approx ten (10) from the onset of my injury. Which I have learned now, only the last two surgeries, I was given a spinal block before going under, all the other surgeries, they knew what I had, and didn't give blocks, which with a person who has, or they suspect having RSDS, without blocks before going under is like pouring gas on a fire. By doing this, they are only making the RSDS worse. The reason for my story, there's to many of us with this disease and it goes untreated to long and there's no way to stop it. It's a disease that destroys the body, and cause you the worse pain you could ever dream of. My story is long, very long, so let me tell you about the disease. Before I began, I'm full body now. But the most important thing, I want everyone to know, they are not alone. It took me a while before I found the right doctors to treat RSD. The treatment are still guessing games, no one really knows what will work and what will not, each patient is different. Help us to spread the word.

I am one of the six million people who suffer from a debilitating disease known as Reflex Sympathetic Dystrophy. RSD is a chronic disease that affects the nerves, muscles, skin, bones, and in late stages, even the internal organs of the body. Although the effects created by this disease are devastating, the real shame is the enormous lack of knowledge among the medical and allied health community, never mind the community at large.

I believe we can make a positive impact on society, and therefore i'm requesting your help in raising public awareness of RSD. Reflex Sympathetic Dystrophy can be caused by both major and minor injuries, such as trauma or fractures, or it can be the result of a disease process, such as a heart attack or infection. Regardless of the injury, the sympathetic nervous system constantly over fires and the result is swelling and burning pain, often disproportionate to the level of injury.

Misdiagnosis is common and in the absence of crucial early intervention, this disease progresses rapidly and can spread to other areas of the body. In addition, a definitive treatment plan does not exist and doctors do not all agree on the appropriate treatments or acceptable medications, nor do patients respond equally to similar treatment plans. What is most frighting, if my daugher, friend or Family member had to call Emergency service (911) for me, they would not know what to do, how to treat before heading to the ER, and when arriving at the ER, even they don't know what RSDS ( Reflex Sympathetic Dystrophy ) is, or how to begin to give me Emergency help. I've had to go to the Emergency Room, and while in there care, I've had to try to tell them what Reflex Sympathetic Dystrophy is, and still could not get them to understand what this disease does. The only thing next I could do was tell them to Phone my main Doctor that treats me for the RSDS. It was like trying to explain to a child how to proform open heart surgery. So now, I try to keep a small information sheet with me (packet), that in shorts terms explain what RSDS is, What is does, Medication I'm on, how it has effected my body, what stage i'm in, and all my doctors names and numbers and most of all the RSDSA phone number and fax number, so if they need any extra information they can get it.

Each day is a real challenge for us, daily task that was once so easy, things we had master is now a major job. Those jobs we did so well before we got this disease, that is now stealing our life away. A job some take for  granted. But we still dream and will keep dreaming that our voices will be heard, that someone will listen to our cry to help us stop the pain, to stop this disease from destroying our body. Some way, some how, someone will hear our cry, and HELP STOP THE PAIN, CONTROL THIS DISEASE OR CURE IT.  

This disease does not just effect us, but our love ones as well. Some families become stronger and fight just as hard as we do, then there are some that this disease destroys the family, pulling them apart. They see the pain we are in, but really no one understand the daily pain we live. It's a pain that your never free of, a pain that will not go away.  The pain we have is not a minor pain, it's a strong server pain, the burning pain, like HOT coals in your skin, the electrical pain, like live wires within you, and you can't turn the switch off, the muscles spasms, like someone is play tug of war within you, the stabbing pain, like someone is sawing your bones into, the pain has no end. Our love ones see's all of this and there's really nothing they can do to stop the pain, you want to wipe the tears from there eyes, but they are try to wipe our tears away.  We dream that someday, we will get some what of a normal life back. We dream that we can get just one daily task done, with out feeling the pain.

Furthermore, Reflex Sympathetic Dystrophy causes extreme chronic pain that is unpredictable and debilitating. The pain is so sensitive that it can be aggravate by even the slightest of stimuli, which creates frustration as tasks that once seemed easy to master are now difficult or impossible. As the disease progresses, bones and muscles become weaker, resulting in loss of strength and function. Medications and treatments may offer some hope of partially alleviating the symptoms, but there is no "magic bullet" to cure this disease. Depression and insomnia are common and only serve to exacerbate the pain.

Finally, the individual with RSD increasingly becomes dependent on friends and family for assistance and support, who often find it difficult to comprehend this puzzling disease. Living with Reflex Sympathetic Dystrophy is one of the greatest challenges I will ever face in my lifetime. As I have described in this letter, the effects of RSD are complicated and devastating. It is imperative that this disease receives more attention from the public and medical communities since from what I have learned, there's an increase of this disease on kids now, it's hard enough for adults, not alone kids and young adults who might have to deal with this disease. HELP US STOP THE PAIN. Before it destories us. Right now, my bone density is now -2 for upper body and -4 to -4.18 from hip down, normal being -1. From Hip down is thinner then an egg shell.  We must find a way to control or stop this disease, before it stops us. Please help spread the world TO HELP US STOP THE PAIN, AN A BETTER WAY OF MEDICAL TREATMENT. For love ones, please support your love one with RSD, it's very hard to deal with the unknown not alone the rejection of your love ones, or medical doctors. They need your support more then ever.   © Author: Cindy Underwood 

I will be adding information on the types of Blocks, Information on Bone Density test, Other major sites on RSD, I will also be adding more important information on RSDS, and a petition to get our Government to set a month for RSDS Awareness, this is very important if we are going to get the medical community to learn as much about RSDS for better treatment and possible cure. God Bless. 

November 12, 1999, I've had to have an MRI again on my right knee. The results came back with more shocking news. I will post what the test showed at a later date, but will post this right now, I now have Red Bone Marrow coming out of it's area in the right leg and thigh bone into an area where it should not be. Later I will post the rest of what the MRI showed. But wanted to update you up on this. I'm told there's nothing they can do to stop it. So i'm off on trying to find out if this has happen before, and if so can they stop the red bone marrow, from bleeding into area's of the bone that it's not to be in. If anyone has any ideas please e-mail me. Right now what I do know that was explained to me, my leg bone and thigh bone has been weaken from the RSD, that it can't hold my body weight, ( I only weight 115 pounds ) so the two bones are Crushing together, which is causing them to bleed inside. This is where the Red Bone Marrow is coming from. I will post more later.   

(1st Visit) Saw the eye doctor again, April of 99, Fluid Pressure Check was run again. The pressure had gone up, left eye now was 24 and Right eye was also 24, the eye doctor didn't like this. He read what I had brought into him on RSD, before anything else was done, he wanted me to see this other Eye Doctor that only came to Arlington every Friday. Well I got scared, this special eye doctor wanted me in his office even before he got the ok from the insurance company, I was told don't worry about waiting on the insurance to send the ok, just pay the co-pay and the doctor will take care of the insurance company. Well you don't find to many doctor that take you up front without the insurance ok. So, that really had me worried. But I was told this doctor would be able to tell me if it's the RSD or something else.

The day of the appointment, scared, didn't know what I was going to be told. This doctor was as kind, sweet, understanding as the rest of my doctors that is on the team. He took the time to read the info I brough him on RSD, he even had his wife to find something our before my appointment. Well he did some of everything to my eyes, can't tell you how many different drops were placed in my eyes, then I got the news. Shanking, scared, he told me it was the RSD, there was no  second guessing, it was the RSD, but good new was where, he found no optical nerve damage, there was none, thank god. It was caught in time, and we must keep it like that, in time. Now every two months I must have a field of Vision test did, and the pressure checked. I can't let this pass, I must have this done or I might loose my sight. He got the pressure down to 20 in each eye. If the pressure goes up to much between visits then he will teach me how to us the drops. Can't have the pressure to low nor to high. My next field of vision test is June 2, 1999 and I see him again, June 11, 1999 to check the pressure. So now part of my reg treatment for the RSD my eyes must be checked. So all with RSD, Please get your eyes checked. Your sight is to important.

This disease has stolen just about everything from me, but there's two things I'm fighting and will not let it steal from me, God's love for me and the hope, for my sight. So please if you have RSD get your eyes checked for fluid Pressure. If untreated it can steal your sight. I will keep you updated. Please if your having problems with your vision, get it checked out, and have RSDS, Please don't let them tell you oh, it's Glaucoma, there's away of telling if it's RSD or Glaucoma. Mine is the RSD which is causing the fluid pressure to build up in the eye tissues. Thank God for the wonder doctors that are Angels to me, they stay on top of it all.  God Bless us all.

(2nd Visit) To add to the condition of having RSD, I'm now having problems with my eyes. It seem to be very important that we have a complete check up from head to toe. They have found out in my right eye, the fluid pressure is 20 and left eye the fluid pressure is 22, they have also found out that I also have some optical nerve damage.  When the pressure in the eye reaches 20, it's time to keep a close eye on it, they can't let it get to high, it can cause you to go blind. Now it's time for a Vision Field test, it's not known if RSD is the cause of this but the National Institute of Health, Neurological Disorders has linked this to RSD. RSD can cause fluid build up in the tissues which will collect, I've spoken to my eye doctor concerning this and explaining RSD to him, I also taken him information on RSDS and what it can do. He's not sure, but thinks it could be the RSD in the eyes. The pain level is still up, has not gotten down to where I would like it. I'm now in a new knee-leg brace. The sack in the brain, is still 5x6mm and the headaches come more often now. But i'm not giving up the fight. With the loving hands of our Father and  his graceful heart, he will always be right at my side fighting this battle with me. © Author: Cindy Underwood 

(3rd Visit) Aug 06, 1999 the special eye doctor checked the pressure again, he wanted it checked after my pain doctor had done the Radio Frequency Block. The pressure in the eyes were down, not much but it went down,  in the Left eye it went down almost two points and the Right eye down one point. He wanted my pain doctor to do the Left side of the spinal area. After it was done then he wants to check the pressure again about two month of having the second Radio Frequency Block. This time to check and see if the block only brought it down doing the treatment or is it bring down the pressure doing the whole course of the treatment. I see him again the first week of Nov. Also I was told to inform all my doctors that no form of steroids were to be used, they use it in the blocks, injections into the site of the injury. When RSD attack the eyes the steroids only helps the pressure go up. All my doctors were informed of this and agreed to stop using it, and also agreed that steroids would also help the fluid pressure go up.

When the next check of the pressure take place and it did'nt go down like they were hoping for, then I've been told they will take other steps. This eye doctor was just as concerned as I was, he had his wife to find as much information on RSD as she could locate. What came as a shock, because you don't find too many doctor that really care and want to learn about RSD, he stated RSD patient had to be very careful seeing any new doctors, making sure all my doctors know whom I'm seeing, and know there background.

Having a disease too many don't understand, RSD patients become a BIG EXPERIMENTAL GAME, and one wrong move could cause us more harm then good. I told him i've been very blessed now with all of my doctors not in the beginning, that is how I got full body so fast. Was due to some doctors trying this and that while knowing I might have RSD. But all they did was made it worse and spread so much faster. No one will ever do that to me again. I will never be a doctors testing grounds, and if I can help it, no ones else with RSD. So, please remember to get your eyes checked and the pressure, we all have learned RSD can cost us so much, don't let it take your sight away. He's a gift from Heaven, and I thank my Heavenly Father for that wonderful gift of caring doctors. The headaches are not getting better, they are coming more often and lasting longer and being stronger. I'm still on the stadol for for those, if I didn't have that I would be in the ER more then I would care to be. Each day is becoming more painful and more of a battle, when my doctors, family, friends ask me how i'm doing, I tell them, I'm having a war with my body and right now it's winning, but I'm giving it one hell of a fight. This is one fight i'm not willing to give in.

This site is still under construction, I'm sorry for any mistakes you might find. I'm NOT A DOCTOR OR MEDICAL PROFESSIONALS OF ANY KIND NOR DO I PLAY ONE. I'm a patients who is interested in spreading the word on this terribly painful and often misunderstood disease in the HOPE of one day someone finding a CURE or at least a safe, painless treatment.

 Candle On The Water    

(©Kasha/Hirschhorn, Disney "Pete'sDragon )

This is a song my daughter would sing to me, when the pain was more then I could bare. The words are very beautiful, With such great meaning. I'm playing the music on my web site, I don't know if everyone is getting the music, but if your not, here's the words. So Remember when the pain has the best of you, and you feel like your alone, I want you to remember this song. Because your not alone, there's always someone out here to reach for you, stand by you and help and support you. Our Heavenly Father, An Angel, or One of us. Remember your never alone, and our Loving Father is always there to help you thru. He's always been your Candle on the Water. Don't carry the pain by your self. So, always remember these words, and Remember your never alone. © Author: Cindy Underwood

I'll be your candle on the water; My love for you will always burn; I know you're lost and drifting, but the clouds are lifting; Don't give up, you have somewhere to turn.

I'll be your candle on the water; Till every wave is warm and bright. My soul is there beside you; Let this candle guide you; Soon you'll see a golden stream off light.

A cold and friendless tide has found you; Don't let the stormy darkness pull you down. I'll paint a ray of hope around you, Circling in the air Lighted by a prayer.

I'll be your candle on the water; This flame inside of me will grow. Keep holding on; You'll make it! Here's my hand, so take it! Look for me, reaching out to show, As sure as rivers flow, I'll never let you go. I'll never let you go. ©

                         Here a Few Poems an Angel sent to me, her name is Cheryl Murphy. ©                 

                                  FEAR NO MORE        

As I delve eagerly into the search of the spirit, I can be still and know. Where I have been.... Existing in a soothing  plastic environment full of material prizes and emotional bondage.   My fear planted firmly, Deeply, Like roots. And where I am going, crying joyous pastel tears, appreciated through PAIN, Leaves me open for the evolution of My soul In remission sleeps, MY FEAR. ©  your friend in faith and pain, Cheryl has a new web site that is worth looking at, even joining. It's call Pain Patients Advocacy League, short PPAL, just click on the link  or link at bottom.

                    Our Mission Statement  

Finding adequate treatment for long-term chronic pain is a serious problem in the U.S., considering that possibly as many as 7,000 people end their own lives every year because of the interminable suffering from chronic, severe and intractable pain. That is 19 people every day, every year.

The mission of the Pain Patient Advocacy League is to educate patients and physicians about FDA-approved pain medications. Along with educating all people as to the existence of the problem and the availability of pain relief through approved medications, we support legislative reform of drug policies, which seem to have resulted in the 'War on Drugs' being waged most effectively against pain patients, and to enact or support a "Pain Patient's Bill of Rights." Currently, many patients do not have access to FDA-approved pain medications, particularly the controlled Schedule II opioid medications needed to relieve severe pain. We believe that improved access to these medications through better knowledge by physicians and patients and drug enforcers will alleviate many of the current pain problems. Most physicians seem to be reluctant to prescribe these medications for fear of disciplinary action by the DEA and statemedical boards.

The Pain Patient Advocacy League will also function as an information and referral source for all chronic pain patients, regardless of the cause. Hundreds of physicians, patients, and family members have already committed themselves to changing nationally imposed under medication policies which cause millions to suffer needlessly. We find it deplorable that numerous invasive procedures are accepted as "standard practice" before even trying the more benign remedy of long-term use of the opioid drugs which have been used safely in the past. Please Join Us In This Fight.  Cheryl Murphy  CSMurphy@aol.com 

                                              I See Clearly            

I see clearly the path He has chosen for me to live with Peace, and harmony and joy. Yes my friend, these are promises made and kept, it's true. Thank-God I see clearly for my eyes are the mirrors of my soul, And I am, A reflection of YOU. Sometimes an icy figurine, frozen in the hot desert sand. But more often than not, A Lamb..... Following this strange new life Forever, Yet one day at a time.....© Cheryl Murphy                                                CSMurphy@aol.com     E-Mail

            We didn't ask for this Disease.

  © Author: Cindy Underwood

We have been a victim of a nasty disease called RSDS. We were either in an accident or some other incident that was not a fair fight for us. We didn't ask for this fight, but we lost it any way. We should not have any shame in losing such fights, only in winning, and some day we will win this fight. We know all the stages of this disease, we don't know how to stop it, cure it, only do we really know how to control it. But what we don't know is how many are not a survivor and We will not be a quitter. With HOPE, we will no longer be a slave to this disease.

We look back with sadness and pain, rather than hate in our eyes, we can see the light, that someday, there will be HOPE out there, that we will be free again. We will look forward with hope rather than despair. We know our Father is there. We may never forget, but need not constantly remember that we are a victim of a disease called RSDS, it has it's own way of reminding us that is's there. We will fight back to become a Survivor of this nasty disease, We will win this fight. WE WILL BE A SURVIVOR, We will not lose that site of Hope that someday, we will be Free, and we are never alone.

                                                    © Author: Cindy K. Underwood

                                                  Love your RSD Sister Cindy                                                                                                                                                    My Hobbies and Interests:

I love Fishing, Photography, Computers, Meeting others with this disease, praying, some forms of writing. I use to enjoy until this Monster RSD took that away from me, Gardening, Tennis, Long Walks, which I sometimes still do, but pay a high price after I've done that, Crafts, Painting, Taking anything and making something from it. Below are links that will lead to you to site that might help you understand RSDS.The other links are for fun, and relaxing sites. There will be more to come.

                                                            FRIENDS FOR LIFE

The saying in the picture above is; My friend, If I could give you one thing , I would give you the ability to see your self as others see's you..... Then you would realize what a truly special person you are.

              FRIENDSHIP

To Bobbie, my sister and my friend. This poem was written to a very special person, my sister my friend. Bobbie has Chronic pain, Blacking out, which seems to be getting worse. She also has a degenerative spinal disease which causes her to be in a great deal of pain.

Friendship is like a new born rose It starts out as a small bud But blooms into a full beautiful rose In order to get there we have to put in the Time, Love, and lot's of Tender care. The rose can become so delicate, but yet so strong. With tender loving care, it can with stand any obstacle that is put in it's path, and still holds it's beauty, strength, and the joy's of life. With this care nothing but beauty can shine throw our Friendship, that will hold a life time.

                                            © Author: Cindy K. Underwood

                                                                          When I Count My Blessing

When I count my blessing , I count them twice for having a daughter and sister like you too. God must have known there would be times when I would need both of you, a gentle touch, a tender understanding heart. He must have known that we would need each other for someone to listen to our cares to comfort and remember us in our loving thoughts and prayers. So in his boundless wisdom, he arranged for us to be with each other. Which is the dearest blessing of all in the world, a precious Daughter and Sister-Friend like you. I love You both.

                                           © Author: Cindy K. Underwood

                     MY DAUGHTER, MY ANGEL, MY LIGHT OF HOPE

This is my daughter Zenobia, she's my special angel. A gift from god, and what a beautiful gift. The white rose on each side of her reminds me of her, so pure and yet so sweet and strong, my angel my love, What a beautiful gift that our Father gave me, such a gift, placed in my care, his most treasure gift, that he trusted me with. My sweet dear, this is a gift I will always treasure with my life. You have a special kind of warmth, a joy that seems to make you glow, a kind and thoughtful touch, a magic you seem to spread where ever you go. You have a way of spreading happiness that means so very much. You have a way of knowing just the right thing to say and do. That makes it so extra nice and special because your being just you. A very special Angel you are, what a beautiful gift, When our Father sent you down to earth to pick out your parents, I thank you my daughter for picking me as your mom. It is said that we give life to our child that we have given birth too. My Angel you gave me life the day you were placed in my arms, a joy, warm love, happiness, the gift to see our Father creations, trust and hope that no pain can touch in my heart that you have given me to hold onto. My Special Angel from God.  ©Copyright. 

       © Author: Cindy K. Underwood

                                                                                                                                                                                                                                                                                                                        Time to Pray to our Father above.

When It's Time To Pray   

 © Author: Cynthia K. Underwood

 Oct 21, 1996

There's times I fallen, and times I seem to have so much fear, and there's times, that i've seen to have lost my way. Then I began to think, it's time I call on our Father, that is when I go and pray. I know he's there, right beside me, each and every day, I know he's listening, hearing each and every word I say.

Our Father is loving, caring and compassion too. All you need to do is take the time to pray. Stop and look around you, and see what you have missed, look at the beauty he's created, it's all around you. The love in each flower so delicate, but yet so strong. The trees as they stand, so tall, but yet there so strong. When you find that each day is more then you can bare, then it's time for you to say your prayers.

There's time when you feel our Father is not by your side, but you could never be so wrong, he's there, to guide you, as you go along. Our Father is waiting to comfort you in any way he can, all you need to do, is find the time to ask, and find the time to pray.   Your Child Cindy   © Author: Cynthia K. Underwood Oct 21, 1996   

Will There Ever Be Peace On Earth

© Author: Cindy K. Underwood

  I keep thinking of the Peace on Earth, and really    wondering if there will be peace on earth. Not just  at Christmas time, but all the year. Why can't we  get those smiles, kind words, helping hands and loving hearts all the year.                                                               

 Why is it that people only seem to do this during the Christmas season.season. I know Father, it's not your  doing. You gave your only son to die for our sins.

Why can't we be that loving and unselfish all the year. Father, let the hearts feel what others feel, let kindness warm the soul and let that feeling last all year long.

Let the light of Christ be felt all over the world, and each of our hearts remember the miracle that took place, the beautiful birth of your son. Let us not forget, that before we speak, we must walk in the shoes of others. Help us remember that we are not hear to judge, only to give our love and care to each other. Help us remember that we are your children, help us all sing the joy of love from our hearts. Help us to remember, we are here to pass on our loving heart and warm souls that you so unselfishly have given to us.

Father, I wish for the year of 1998 that all of us that have chronic pain, a solution is found to ease our pain, that our children don't suffer any more with any illness, or emotional problems. Father, I know you love us all, and all we have to do is ask that you forgive us, which you do, it's us who can't forgive ourselves. I wish that everyone before they speak or make a move, would put themselves into that persons spot before action is taken upon them. I wish Father that we all could love each other without any question, that each and everyone shows and treats others as though it was their family they were acting on.

That each and everyone of our hearts is open so wide and is filled with so much love that it just overflows and the soul is glowing so bright we all can see the rainbow. I guess that brings me back to Peace on Earth. I know there is Peace in Heaven, but Father will we ever have Peace on Earth? I pray to you that we do. Father this brings me to what my Mom told us, during the whole year, treat others as you would Christ, treat others as you would like them to treat you. Father I have never forgotten that, and I live by those words, I know sometime I may slip, but I do ask that you forgive me. We as your children, are not prefect, but you know Father my heart is full of love and I thank you for that. Your Child Cindy © Author: Cindy Underwood

 From A Very Special Friend David

  Below is a saying my special friend sent to me, his name is Dave, and the words are so true.

There have been angels in my life. While they haven't arrived with a blast of trumpets or a rustle of wings, I've known them just the same. They performed their acts in human guise, sometimes borrowing the faces of family and friends, sometimes posing as well-meaning strangers. You have known them too... when just the right word was needed, when a tiny act of kindness made a great difference...or perhaps you heard a voice whispering in the night of sorrow, the words not quite clear but the meaning unmistakable..."There is hope...There is hope" © Author David Earl

                With the Grace of God there is hope!

      Stone Garden     

                        Stone Garden By Patt K. Gray Feb 16, 1998 (c) Copyright                                

 My mind went wondering today, sometimes I go along, sometimes I stay behind.     Today I went for a walk, a little ways behind, I wanted to see where it goes, when it goes away. It went down to the park, and strolled about a bit, down by the river it went to sit, it even listened to the singing of a little Lark. Then it moseyed down the road, it stopped to pet a dog, and set for awhile upon an old and rotting log, then it kicked into a faster mode. It went down to the garden of stone, a very lonely place to be, I watched real carefully, to find out what it wanted to see, it stopped at one stone that stood all alone. The stone said many nice things about the man below, the next was much the same, a woman by the name, but then it stopped for a long time and I just had to know. After almost an hour of time had past, I walked up to my mind, and stood there quietly, standing for a while, silently, till I saw the name listed last. In shock I read the name, the name was mine you see, but I am alive how could this be, my heart lurched at the date’s claim. My mind was very kind as it turned to inquire, your time is almost up my friend, your life you soon will defend, the last line on the stone , your time here will inspire. Tell me please, as I come to visit this place in the days to come, what will the tablet of stone proclaim? Will it tell of our defeats, of the soil of our name, or will it tell of a heart belonging to someone. And when the days of time are end, where will we stand then? In the quagmire of our sin, or in the ashes of our life and the clothes that we must rend? No, I said, my mind, we will be okay, for I have foresees this event, the debt for our life was duly spent, I know what the last line will say. We went home on this day.  

                            (c) Copyright Author:  Patt K. Gray 2-16-98   Patt's Web Page

                                    These's two items sent to me by my special friend David Earl     

This is a very special gift That you can never see The reason it's so special is It's just for you from me. Whenever you are lonely or even feeling blue You only have to hold this gift and know I'm thinking of you. You never can unwrap it Please leave the ribbon tied Just hold the box close to you It's filled with love inside.

The Cross is from cindy, the saying below came from my special friend Dave Earl So far today God, I've done all right. I haven't gossiped, haven't lost my  temper, haven't been greedy, grumpy, nasty or selfish. I'm really quite glad  about that. But in a few minutes God, I'm going to get out of bed, and from then on I'm probably going to need a lot more help. Amen   ©

                                                                                                       God Gift of Hope

    © Author: Cindy K. Underwood

   January 18, 1995

Hope is an emotion feeling that is given by our heavenly father above. Hope is faith that some day in the future you will shared your love, laughter, happy times, as well as your sad times. The trust that is given out, the openness, warmth and understanding that brings us all closer together the way our father intended it to be.

Hope is always there for us, but yet, if you lose the sight of our Father, you lose the sight of hope, you lose the sight of the light that shines through. What ever the situation may be, Hope is something we all needed.

Hope encourages you to be all that you can, and accepts your self for who you are. Our Father made the heart so unique, for there's a light in the hearts that's called Hope and it's tucked away so neat. The light of Hope that's in our heart may be small but it shines ever so bright, but if the light of Hope should ever go out, you will lose the sight of Hope.

Hope has always been there, very close at hand, to give you advise or just for you to simply understand. Hope will never let you down or turned it's back on you, Hope will give you all the support you need, as long as the love For our Heavily Father has the key to the light of hope, Our Father will support you in what ever you decide to do. You have to believe in Hope in order to see that special light. Even when you made mistakes our Father still believed in you, he will stand by your side until Hope comes to you again.

The Hope of light would always tell you to trust in god, and follow his guiding light, and to always remember that you are very blessed. Hope is like the morning sunshine, a breath of fresh air, that makes each day easier to bare. Hope has a special feeling, that gives your heart kind words, and so much love to share. That's why god put the light of hope, right in your heart, to give you the ability for you and me to share.

Nothing can describe Hope for it's worth so much, this is the dearest gift you will find on this earth. Hope lighted heart is the warmest and safes place to be, as you know by now, I'm speaking of Our Heavenly Father above.

Who's gave us Hope, and it's a very special gift our Father sent to you and me. So don't let the light of Hope go out, it will cause you to lose your way. Up's and Down is how life goes. But no matter what we do, Our Father said he will be there by our side and his strength will see us through, and there you will find the bright shining light of Hope our Father had to relight. © Author: Cindy Underwood

                                           God's Gift Of Hope Stained By: Cindy Underwood ©                                                                        

      Moon Angel, to My Daugher and Grand Daughter, & Grand Son, I love you to the Moon and Back                                                                                        Friendship

                                          This Poem was sent to me by a very special Friend , Micheline.         

Friendship is a priceless gift, that cannot be bought or sold, but it's value is far greater, than a mountain made of gold. For gold is cold and lifeless, it can neither see or hear, and in the time of trouble it is powerless to cheer.

It has no ears to listen, no heart to understand. It cannot bring you comfort, or reach out a helping hand. So when you ask GOD for a gift, be thankful if HE sends, Not diamonds, pearl or riches, but the love of true real friends!! I Love you both! Micheline     Author Unknown ©

                          The Pain I live By: Sue Koche, ©1998

Ohhhh how I wish the pain would go and never return, I hate this searing pain that goes to the bone. Why won't it leave me alone, It never goes, it always stays, Like a fire that continues to burn. Ohhh how I want it to leave, Or have someone just believe. I'm not crazy, at least not yet, The pain how it grows, Deep down inside of me. If it won't stop, I'll lose it I bet. Please make it stop, Make it go away. I just want one pain free day. I guess I'm asking too much just to be set free, Why won't it happen, I didn't do anything to thee. Please just one happy day, One sunny, beautiful pain free day. I don't want the fire, That burns to the bone. Ohhhhh how it hurts when you're all alone. No one to hold me, to love me, And tell me "You'll be all right, baby." I hate the pain of RSD, I hate it most passionately. I sit here all alone in the dark, There's no hope, Not one little spark.Ohhhh please go away, I cry every night And all through the day. This pain is never ending, It tears right through me Twisting and turning, Squeezing and burning. This power of pain, That is never unbending. Please make it go away, Please just for one whole day. Please.....Ohhhhhhh please just for one day. I can't take anymore, it hurts just too much. To always be this way. Sue Koche, ©1998

If you would like your picture on my web page, that's the reason it's called the ©Faces of RSD, please send me a Picture and a short story. The reason for this web page is to let other's know that we may look normal but we have a disease called RSD. ©

Below you will find links that will help you understand more about RSD, a prayer site and also some fun sites to check out. I hope you have enjoyed my web site. Please sign my guest book below, let me know what you think and what can be improved. Please also take a look at my Awards. These Awards are very special too me, and has come from Angels Hearts. I'm very Proud of my Awards. Thank you and come again, there's still more to add to my site. God Bless you and Keep you in his Loving Arms Always. Cindy Underwood. © Every Item on My sites are Copyrighted, don't take please, you must have signed permission to use any item on my sites. Thank You.

Below are my Hyperlinks to all my sites, please visit them. Also Don't forget to write your Congress and other House Of Rep. Concerning RSD Awareness Campaigning to bring RSD into the light of the real world. Just Type in your Zip Code and hit FIND MY REP, and a list of your Government will show up with there E-mail address and other important address and information. I thank you and everyone that has RSD thanks you.

 HYPERS LINKS To Other Sites, Visit Our Special Angles That Has Gone Home Remember, if I can leave you with One Thing, please know your not alone in this fight for a cure. Your Never Alone In This Battle. GOD BLESS EACH ONE OF YOU.  

                   Click Picture For Missing Kids, Our Little Angels   

             Home Page Logo Of Faces Of RSD

           

All Link Buttons are designed and created by me, Cindy Underwood, please respect the copyright law, an the work I do, (c)copyrighted 1997 Cindy Underwood Thank you for visiting my sites. There will be more helpful Links to RSD sites, Coming Soon.                     

                                             Click Button For Petition,  Help Stop The Pain

       

                                              Take the Poll on RSD

Pam's Web Site, RSD Thanks Pam, Your An Angel.

Our Special Angels Gone Home To Heaven   In Memory Of Our Angels

Other Faces Of RSD & There Stories   Remember, Your not Alone.

 Supporting Friends & Patients, RSD  Very Good Information on RSD, Thank's

In Memory Of My 3rd Web site  Memory of My Brother KIA In Viet Nam, 1966, Army

In Memory Of My Mother 4th Web site   Memory of My Mother, Such a great Lady.

FunShots My 2nd Web site  Photo's of RSDS Seminar 1998, 97 Photo's Up.

Letters From White House & National Institute of Neurological Disorders

NIH Of Neurological Disorders Research Institue for RSDS

Home Site For NINDS  National Institute Of Neurological Discorders & Stroke

 RSDSA  Research, Great Information and Where Donations goes.

Pain Scale Charts    Pain Scale Charts different, and Good. Check them out. 

 Patt's Web Page Patt's Prayer Page, Beautiful site. Very Loving, she has RSD

 Yvette Ahmadpour's Web Page  Beautiful site, she has RSD, has a Chat room

PPAL - Pain Patients Advocacy League  Join Cheryl  site GREAT JOB

Illinois RSD Cares Kathy's web pg, Great Job!.

 Granny Grace's Home Page Daughter has RSD, also has sites for kids.

RSD Love, Hope and Support Webring Also has a Message Board.

DKeGA'S RSD AWARENESS  Karen RSD site, has Comfrots Props For RSD.

 The Cries Of RSD June web site, she also has RSD, a very nice site

RSD Teen's Corner Betsy site for Teen's who has RSD, Teen's your not alone.

 Blue Mountain Arts'Greeting Cards Send Beautiful cards with music, very nice site

 Peggy's Roses  Peggy's site is really out of this world, joy & Peace, go there.

                                

More Faces Of RSD, This site will be Photo's of RSD/Chronic Pain and there Stories  If you don't have a scanner and would like your picture on the Faces of RSD, Please E-Mail me below, and I will send you my address. To have picture returned, send alone a stamp env, address. Also very important, you can send a family picture if you want, remember they suffer too. Just name each person so I can add there names, If you have any questions please feel free to E-Mail me. My Mail box is below. That is why this Site is called FACES OF RSD. It's time the world see how many of us has this disease.

This site is for everyone to see that we may have a disease, that causes us great pain, but we are normal people who is asking that the world now take notice to this disease. Thank you for taking the time to visit my Web site. I hope you have enjoyed your stay, please come back.  If you can't reach me, you can reach Bobbie or my daughter below my E-Mail Please respect the copyright law, All material on my sites are © copyright, all graphics, poems, writing, photo's are copyrighted and protected. No items on this site can be copied without my written signed permission from me, Cindy Underwood. So, please respect the copyright law, an the work I do, (c)copyrighted 1998 Cindy Underwood Thank you for visiting my sites. Please come back. Please don't forget to sign Guest book at bottom. Thank you and come back soon. Peace and Love.

                                             Legal Information Contact John Kavaller Below

Anyone with RSD/Chronic pain needing legal help or any other Legal matter, You can contact John. The information is below. John's Wife Marilyn has RSD, so if you need help, just either E-mail John or contact him at the below info. God Bless.  

                                  For Information on Getting Legal Service Contact John Below

John Kavaller (Pronounced Cavalier) Paid Legal Associate                                               P.O. Box 434 Jeffersonville, New York 12748    Phone Number: 914-482-3632     Fax Number 914-482-4459         E-Mail:  JKavaller@aol.com

                                  

In Time Like These We Must Stand Together

In times as these, where we have a disease that is not new, and very much misunder stood, not only by the Medical Profession, but Family and Friends. You must remember, there's two important blessing we have at our sides. Those that have this disease known as RSDS, because you know your not alone and God. So, Please Remember your never alone in this battle we have been given to fight. We must with all our hopes, strength, love, understanding, keep God at our side as we walk this path to get everyone to understand a disease that is older any of us. It's a journey none of us want to take, but we have been given this hand of cards to deal with. So we must walk hand and hand to save other's that might get his monster of disease we all know to well as RSDS. If we all band alone with god, hand and hand we can beat this, we can fight this, and we can stand proud that we where heard and just maybe one person who get's this monster will get the correct medical treatment when he or she is told I think you might have RSD. Treatment must start right way.   Reaching out for God hands, alone with each of our hands we can make a link so everyone will understand RSDS is a disease that can destroy if left forgotten like it was done 125 years ago, when our soldiers complained of the symptoms of RSDS. 125 years ago, Dr. Mitchell, Moorehouse and Keene saw what this disease could due, and today it's still remains poorly understood and is still often unrecognized. RSDS, known as Reflex Sympathetic Dystrophy Syndrome is a multi-symptom, multi-system syndrome, usually affecting one or more extremities, but may affect any part of the body. RSDS, is a disabling disease with simultaneous involvement of Nerve, Skin, Muscles, Blood Vessels, and Bones. The Sympathetic Nervous system affects all parts of the body. Each patient is different, the only common denominator in all patients is the PAIN. So, help passed the word, to get more understanding to a disease that can destroy. It's time that RSDS is brought out into the open, to cure something you must bring it into the open, RSDS has been kept behind closed doors for too long now, let's all work to bring it onto the floor of our medical profession, and our Government. A cure must be found to stop RSDS. Will you join in the fight to HELP STOP THE PAIN. Spread the word, your help is needed. God be with each of us in this fight for a cure and better medical treatment.  Author, Cindy Underwood © copyright                                             Do you like this site? Tell a friend! Name Email You: Your Friend: Here's how to get a referral system like this on your own site, for free.

                                                                                                                                               

                     

           

This site is powered by the ICQ Homepage Personal Panel © 1999 ICQ Inc. All Rights Reserved. You can visit my Personal ICQ Page, if it is activated.You can also search the Web using this panel, and contact me from this Web site directly to my ICQ client. If you have ICQ you can Chat Me or Message Me. If you do not have ICQ you can either Page Me or contact me through My Personal Communication Center. The use of the ICQ Personal Homepage Panel is subject to the Terms of Service.

                                                                                         

                     Cindy Underwood.              Zenobia Underwood                      Bobbie Gumtau    

                   cunderw356@aol.com         zzdisney4u@aol.com                    msgumnomad@aol.com  

                                  

 A Special Gift From A Very Special Angel

  Friend Of The Month Award was present to me on November 01, 1998

I'm very proud of this award. Our Father from Heaven knows just went to present you with something so special, when things become so questionable in Life. This Award Touched My heart and soul, it has placed Foot Prints within my soul that I shell hold dear to my heart for a life time. Thank you from my heart, to those that voted for me, the words you written to enter me, I will treasure with my heart. ©Cindy Underwood

         Dee's Home Page ©

           

                              A Special Gift From A Very Special Angel

                                                  This award was given on January 3, 1998 By, Peggy ©                                                       

                                                                

 Peggy's Home Page

             

This Award Warm My Heart, I'm Very Proud Of This Award,

 This Award Was Given On February 21, 1998 ©

                                                                                                   

     RSDHope             

A Very Special Award I Received From Some Special Angels & I'm Very Proud Of It.

                                                    This Award was given on March 06, 1998 © 

                                                                        

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