Never doubt
                                         That a small group
                                                Of dedicated people
                                           Can change the world.
                                                 Indeed,
                                                 It is the only thing
                                                    That ever has. 
                                                                 ----Margaret Mead

     Welcome to the Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD) website.  This website is the home of the Blood-CJD support/discussion group.  It was created to fill the needs of people who have received notices that the blood products that they, or their children, received, or that were used in the In Vitro Fertilization (IVF) cultures that produced their children, were recalled/withdrawn from the market because a member of the donor pool was diagnosed with Creutzfeldt-Jakob Disease (CJD) or was at risk for the disease.  CJD is an infectious rapidly progressive fatal brain-deteriorating disease.  It is a member of the class of diseases called Transmissible Spongiform Encephalopathies (TSEs).  Another TSE is Bovine Spongiform Encephalopathy (i.e. Mad Cow Disease).

    Note:   We try to present different views on issues when possible. Therefore, the views represented by the authors of the linked web pages do not necessarily represent the views of Blood Recall/Withdrawal - Creutzfeldt-Jakob Disease (CJD).

Jordan. A Mother's Recall Story. Jordan is 11 years old.

Alexander. A Mother's Recall Story. Alexander is 7 years old.

To Whom It May Concern: USAF Retired & Former Blood Donor's Story

"Disqualified Indefinitely": A 23 Year Blood Donor's UK Blood Ban Story

"No Longer Allowed To Donate Blood": A 24 Year Old Woman's UK Blood Donor Ban Story.

Withdrawal Notifications Received by Members of Blood-CJD

Speech Given By Blood-CJD Member At May 6-7, 1999 National Blood Safety Council Conference in Vancouver, British Columbia on Variants of CJD and Issues for the Blood System

Blood Product Withdrawals Listed at U.S. Food & Drug Administration Website

United States Food and Drug Administration (FDA) Advisory Committee Meeting Documents

U.S. Department of Health & Human Services Advisory Committee on Blood Safety and Availability Transcripts

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View our guestbook

LINKS

Click To Join The Blood Recall/Withdrawal - CJD Support/Discussion Group

For Comments or questions on CJD or Blood Recalls/Withdrawals please contact Paula Grau or Deborah Schechter

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Last Revised November 21, 2004