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FMS/MPS Q & A from Dr. Devin


Dr. Starlanyl


Below you will find a compilation of FMS/MPS questions presented to Dr. Devin J. Starlanyl on Fibrom-L, the internet Fibromyalgia Information Exchange group.

Dr. Starlanyl, who also suffers from FMS/MPS complex, has so gracefully dedicated her life to helping others afflicted with these complex and  often confusing syndromes.

She is the author of  "Fibromyalgia & Chronic Myofascial Pain Syndrome, A Survival Manual" co-authored by Mary Ellen Copeland, M.S., M.A. and is currently working on an Advocacy book for FMS/MPS patients.

Many thanks to Dr. Devin for all of the time and effort she has devoted to helping we "fibromites" achieve a better quality of life.



ACCIDENT & INJURY


Q: I suffered a severe whiplash complicated by developing Degenerative Disc Disease in the affected area. Not the first time this has happened...earlier lower back injury when 19 years old developed in the same manner. However, since the last injury ten years ago, I developed IBS for the last six months I have suffering with dizziness.

A: It isn't unusual for myofascial trigger points to develop after injury, and that is what seems to be happening. the IBS is often a function of multifidi and abdominal TrPs. The dizziness is most often from sternocleidomastoid (SCM) TrPs. Have this checked out by a competant TrP- savvy doctor, nurse practitioner or physical therapist.

AMMELIORATION ?


Q: A few years ago after I was dx'd with 'fibositis' and trying to explain to my family what was happening to me, Dr. Lamb had a short letter in his
newspaper column about FMS. In it he stated that the pain was indeed real, but symptoms improved with time and would eventually clear up. I was so excited thinking things would soon improve. Now I wonder, is this really what they thought a few years ago?

A: No. It has been known for a LONG time that FMS is a chronic illness. Often it is couples with misdiagnosed or undiagnosed MPS. You must discover the perpetuating factors and deal with them.

Q:  (cont. from above Q.)  Is it part of the IAIYH (It's all in your head) garbage?

A:  Yes.

ARTHRITIS & FM


Q: Am I correct in my understanding that Rheumatoid and Fibromyalgia are in some way related?

A: They are not. Rheumatoid arthritis is an auto-immune problem, and a progressive, inflammatory degenerative condition. Fibromyalgia is none of these things. RA does often give rise to myofsacial trigger points, which are mistakenly diagnosed as FMS. The pain load of a lot of RA patients could be alleviated without use of extra meds if the trigger points were treated with specific physical therapy.
Unfortunately, since TrPs refer pain elsewhere, you can't treat them until you know what they are. Unfortunately, most doctors are unfamiliar with the medical texts "Myofascial Pain and Disfunction: The Trigger Point Manual" vol. I & II by Travell and Simons.

BODY TEMPERATURE

Q: I don't have FM, the true love of my life does, and she often has a low grade fever that accompanies the pain. it is usually in the 99.4 - 99.8 range

A: One of the common problems we share is a disrupted HPA axis--that is the balance of the hypothalamus, pituitary and adrenal glands. These are unbalanced due to the alpha-delta sleep anomaly, as the neurotransmitters are regulated during delta level sleep. The hypothalamus is, among other things, the body thermostat. There is always the chance that your love has a low-grade fever. Otherwise, it is probably a faulty thermostat. Devin

BREAST TENDERNESS / SORENESS

Q: Does fibromyalgia cause breast tenderness/soreness?

A: Sternalis and pectoralis myofascial trigger points cause breast pain and soreness as well as sensitive nipples. Devin

BRUISING


Q:I get weird and unexplained bruises...they come literally from NOWHERE.

A:It is common for us to get delayed bruising. We have perceptual difficulties that have us bashing ourselves at every corner, and then the bruises take forever to go away. Some of this is due to myofascial constriction of peripheral blood vessels. Devin

Q: I bruised very easily, long before FMS but I have seen numerous posts about maybe bruising easily is a symptom of FMS. Get real.

A:This could very well be real. Capillary fragility is a common symptom in a subset of people with FMS. Also common is bruises that take a long time to develop, and then take an extra long time to disappear. This last may have something to do with myofascial constriction of capillaries. It is by collecting symptoms such as these which may be common that we can offer subjects to be investigated. FMS has hereditary components, so easy bruising may have been one of the first symptoms.

We are blazing trails here, and discovering commonalities is an important step. The tissue overgrowth phenomenon I found (a tendency toward cysts, fibroids, ingrown hairs, overgrown cuticles, easy scarring etc) may have something to do with the combination of myofascial overgrowth and FMS membrane instability. I don't know. I just know that it is overwhelmingly common, and I found out so by asking. Observations are a very important part of medical research. Devin

CFIDS/M.E. & FMS/MPS


Q:If a person had CFS and MPS, what would be the difference between that & fibromyalgia?

A:I don't know a lot about Chronic Fatigue. I have found that most patients with fatigue find that this is secondary to FMS and MPS,and when they are sucessfully treated, the fatigue disappears. I have FMS and MPS, and the only fatigue I get is from overwork. Chronic Fatigue is real, and it has a strong immune component, unlike FMS. All immune systems can be depressed from sleep lack, but CFS has something more. Devin

Q:  Is it possible I am developing symptoms of CFS....sore throat, swollen glands, heavy duty sweats, extreme exhaustion?

A: These can also be autonomic referral symptoms of trigger points. Devin

CLOTHING

Q:  Are clothes just plain uncomfortable or what?

A:  YES, including the damned labels which most of us seem to cut off! The hypersensitivity of FMS can often be eased by wearing some underthings inside out so that the seams irritate less. Beware of constricting bands which will perpetuate trigger points, part of MPS. Stretch clothing is good as long as it isn't too tight. Devin

DIET & NUTRITION

Q:  I would like to have explained the link between high yeast/sugar craving/pain cycle. Is the yeast level increasing in the blood due to the sugar diet?

A: This is often due to reactive hypoglycemia. I suggest that you check out the book "Mastering The Zone" by Barry Sears. Your library should have it. The carbocraving is due to the dysfunctional insulin/glucagon ratio in the blood. Reactive hypoglycemia can have similar symptoms to FMS, and can be a perpetuating factor to both FMS and MPS. Devin

Q: I have Barry Sears book Entering the Zone, but it is not a good read like your book. It all sounds so confusing

A:Sorry about that. It wasn't written especially for people with FMS/MPS, like my book. It does have a lot of good info, but much of it is easier to digest with an appetizer of a scientific background. "Mastering the Zone" is easier for lay people to understand, and it has recipes. Devin


Q:Is there an easier way to enter the zone?

A:It has to be fine-tuned to each person. You need to develop a whole regimen, with exercise, physical therapy, mindwork and other bodywork. As for the Zone, if you have reactive hypoglycemia, you need to cut down on carbohydrates. Each meal and snack should be balanced with protein, carbohydrates and fats. About a half a palm-size of protein, a palm of carbos, and the fat will be attached to them so you usually don't have to add. That is a general way to "eyeball" the servings. Each snack must be balanced as well. This diet will often throw you into a reversal like guaifenesin. The headache can be pretty bad at first, often, but it eases up as your body gets (quickly) balanced again. It is not a quick fix, and not fun, but it pays off. The diet pills, like fen-phen, can be dangerous.


Q:I didn't see anything in there about having chocolate!!!

A:My drug of choice. It was hard for me to break my chocolate addiction. I can still enjoy chocolate, but not much, and not often. I also have to >balance it with protein. I don't want to lose ground. I also like fitting into size 8. Devin


DISABILITY


Q: My lawyer says if he had or could get a trigger point chart he could obtain my benefits. I can't believe there is not one!

A: Call Gebauer in Ohio at 800-321-0348 for their free trigger point chart. I also advise that you lawyer call Williams and Wilkins for their packet on trigger points--varieties of TrP charts, medical texts, etc. at 800-638-0672. Your problem may be that you are looking under FMS for TrPs, and they are a function of myofascial pain symdrome instead. These are different conditions, although they often occur together. You will need a physical therapist or TrP-savvy practitioner to confirm your TrPs.

DIZZINESS

Q: When dizziness happens I have no warning or very little. I was ironing and all of a sudden the room just started spinning and a wave of nausea washed over me. Just before the dizzy feeling hit, I noticed that my right ear would go completely numb.

A:This is a typical sternocleidomastoid (SCM) TrP scenario. This muscle has two parts, alongside of the neck. The symptom list from this TrP astounding. Check out my website at http://www.sover.net/~devstar, my book or video. You can also get a free Gebauer TrP chart by calling them in Ohio at 800-321-9348. You could be developing Myofascial Pain Sydnrome, which would aggravate Reynauds and other problems. Devin

Q:I, too, get a terrible headache from moving my eyes in that way. But last night I asked others about it, and those who are hale and healthy said it hurt their eyes to do the excercise too.

A: Many people who are otherwise healthy have these trigger points. Most of us look down too often and don't look up enough. Even less, do we look up and to the side. As the years go on, we develop more trigger points, so as elderly folks we are often restricting our movements to avoid pain, including our eye movements. I believe, with Janet Travell, that a lot of what is called old age can be attributable to the tightened restricted myofascia due to trigger points. Devin

FLUID RETENTION


Q: I have another question for the drs. on the list, please. I saw my dr. recently (good guy, but only schedules 15 for a visit) I was particularly concerned about fluid retention that I've had for several months now. I showed him my ankles

A: This can be caused by several problems. The easiest to check is piriformis trigger points. These TrPs can entrap blood vessels as well as nerves. The most common piriformis TrPs can be reached by tennis ball compression to the back of the buttocks, about 2/5ths down from the top of the curve of the buttock. One is along the spine, and the other is a little over half the distance to the outer edge of the buttock from the first one, and a little lower. If TrPs are there, it will hurt. It is wise to also check for other causes. Devin

FOOT PAIN


Q: my feet hurt too...but it is mostly when I get up in the am or if I have been sitting for a period of time..

A: This is from a trigger point in the long flexors of the toes. It is found in the calf, about 5 inches or so from the back of the knee crease, amd about an inch or two towards the inside edge from midline of the calf. The pain can go from there to the ankle and then to the instep, but it is worse on the sole of the foot. This is perpetuated by having the foot extended, as it is at night.
Put a pillow at the bottom of the bed, under the covers, to keep your foot as flat as possible at night, and avoid sitting with your toes pointed down. Flex your foot up and down every 15 minutes or so when you have to sit a while. Work on the TrP with acupressure (tennis balls can help) and galvanic stim. This TrP is also responsible for the prickling at the base of the toes, which is spillover stimuli from the mail referral zone. This is NOT FMS, but rather MPS. Please clue in your rheumatologist. They are different. Devin

Q: Does anyone else ever experience pain in the top of their feet?
A: This is usually due to myofascial trigger points. Most likely either the tibialis anterior, located more than a handsbreadth below the bottom of the knee just to the outside of midline (this will give you pain in the big toe as well), the peroneus tertius, right above the outer ankle area, the extensor digitorum longus, a little more than a handsbreadth below the knee but to the outside, almost in the middle of the outer side of the leg but a little to the front, and the extensorees brevis, which are on the top of the foot, right in front of the ankle but a little to the outside of midline.

GASTRIC REFLUX
Q: I'm assuming I have gastric reflux as I've had heartburn for about two weeks now. Been taking Tagamet or Pepcid and Tums or Mylanta in between. Do any of you have heartburn as a symptom to FM?

A: This can also come from reactive hypoglycemia, which can come with FMS. If you crave carbohydrates/chocolate and have hypoglycemia symptoms and have been putting on weight, you may have to modify your diet. Also, certain myofascial TrPs can aggravate reflux. Devin

GENETICS


Q:Are you saying that all your sisters have FMS? If this is the case, it makes me wonder if this condition is either hereditary or contagious over prolonged exposure.

A: It is not contageous. There is no greater incidence of FMS in mates of fibromites. There has been a study indicating an autosomal dominant trait. There have been several genes implicated in FMS, with more research to be done. We have a local family of 7 sisters in our local group, and most of them have FMS. Their husbands do not. Devin

GUAIFENESIN


Q: Hello all, I started taking the guaifenesin about five weeks ago. Almost immediately I felt horrible on 300 mg. a day. That is good. I have continued to feel up and down awful. However, I have had extraordinary days. Days with energy and enthusiasm. Days filled with a unfamilar word for me in the past years - shopping and cooking and laughing. I have cut my antidepressant, Effexor, from 300 mg. day to 100mg., usually 50mg. Yesterday, Sunday, was the worst day I have had so far. I thought I would die I hurt so much. For some reason I trust this Dr. St. Armand.

A: I also trust Paul St.Amand. What ELSE are you doing for the FMS and MPS? You may have many perpetuating factors. The more you take care of yourself, the more you help your body detox, and >the less unpleasant the reverse cycling is. Drink a lot of water, put moist heat on the parts that ache, and take it easy. Do some gentle stretches, one of each stretch. Develop a program of mindwork and bodywork that helps you to feel better.

HEARTBURN


Q: Is heartburn due to FMS too?? I suffer from killer heartburn.

A: Many things can cause the heartburn cycle. Many of the foods we eat can relax the esophageal sphincter, and allow the gases and eventually the liquids to "reflux" back from the stomach. The gases are very acidic, as is the liquid, and they burn. Chocolate and caffeine are two items that relax the sphincter. For many of us, this is a sign of reactive hypoglycemia and it may be wise to have a trial run of the Zone diet. The external oblique trigger points that are on the frontward edge of the ribs are often a factor in perpetuating reflux. Try tennis ball acupressure along this region by lying on your belly on the ball, and rolling it along these edges. If it is screamingly painful, there are TrPs. this action will help break the TrPs up, but you may want to start on a sofa or other softer surface before graduating to the floor. {{{}}} Devin

HIP & LEG PAIN


Q:  How well I know that kind of pain in the legs. Mine usually encompasses the legs and hips.

A:This is usually due at least partly to gluteus minimus trigger points, if it forms a "sciatic" pattern radiating down the leg. These can be broken up with tennis ball acupressure--it hurts but it is worth it. Using a pillow under your knees when you sleep can avoid some of the stress on the hips. Devin

HORMONE REPLACEMENT THERAPY

Q:My GP wants me to go on Homone Replacement Therapy. I have no uterus so it would just be estrogen. The things I have read are all positive but am wondering about how it will affect my FM.


A: HRT is just that--replacement for what your body would be producing anyway. I have heard people who say they feel better on HRT, and some who don't. Give it a try. Devin

HPA-AXIS

Q: Anyone out there have trouble with their pituitary gland? I had a pituitary adenoma removed in 1982 and there is another one growing in there now.


A: Most people with FMS have a disrupted HPA-axis. An "axis" is the medicaleze name for a balance, and the "HPA-axis" is the balance among the> hypothalamus, pituitary and adrenal glands. These are regulated mostly during delta-level sleep, which is often disrupted in FMS. The pituitary adenoma can further dysregulate the HPA-axis. A percentage of these do regrow. Devin

HUMAN PAROVIRUS

Q: Is this the human version of what dogs get?

A: I am with PRO-med, a listserv organization monitoring infectious disease outbreaks. There are many kinds of parvovirus. Fifth Disease is something different from canine or feline parvo. They are just in the same family. Human PV is common and many people with it are symptom free. Devin

IAIYH  (It's All In Your Head)

Q: I recently went to a doctor trying to find the cause of my dizziness. After the physical exam, he said "Maybe its a pyschosomatic disorder, or maybe its related to your fibromyalgia, If fibromyalgia is indeed a REAL disease, I don't know...."

A: Why do you pay someone who knows less than you do? Devin

INFLAMMATION

Q: Given many case reports of the "feel" of symptoms, the positive responses to drugs that function as anti-inflammatories (apart from their other effects), and the things that trigger flares often being so similar to things that trigger inflammation, I and some others feel that there may in fact be inflammation involved but that the current available diagnostic tests for inflammation don't pick up this inflammation.

A: There may be secondary inflammation especially with myofascial trigger point involvement. The constricted myofascia can pull muscles and bones out of alignment, and create imbalances of gait that can themselves produce inflammation. This does not mean that either FMS or MPS is inflammatory.They are not. The anti-inflammatories often function as analgesics. Unfortunately, they also have side-effects, especially with long-term use. Devin

ITCHING

Q: Does anyone else have this feeling that it is itching deep inside your ear, and no matter how deep you probe, you can't scratch it?


A: Yes. It is common. It is in my book too, page 80. It is from the masseter TrP. Press the TrP, and it helps the itch somewhat. There are many more TrPs than are in the book--but they are in the video. {{{}}} Devin

Q: Does anyone have itching skin all over? I seem itch all over my body for no reason. Just wondering. especially on my scalp. What is this from?

A: This can come from many reasons. Dry skin, altered response to sensory stimuli (if the brain can't translate a sensation, the default is "itch"), low level trigger points. Devin

KEVORKIAN SUICIDE

Q: It just bugged me as total ignorance that a doctor would go on national television, having done a standard autopsy, and say there was nothing wrong with (Judith Curren) really .... I feel like I've already been there and done that, if you know what I mean.

A: This bugged me, as well as the fact that if her doctors had know about FMS and MPS, and known that a chronic pain state can cause immune deficiency, that woman would be alive today, and in less pain.

So that she did not die in vain, I urge all of you to write to your local newspapers and tell them about fibromyalgia. Explain why the autopsy showed nothing. Let people know your symptoms, your story, and what can be done to help. Tell them about this group, the fibrom-l, and about myofascial pain syndrome, and about the Fibromyalgia Network Newsletter, and local support groups. If those doctors had done as little as read the Network Newsletter, they might have saved that woman. Let's go out and try to save others with what we know about fibromyalgia, which is, in most cases, considerably more than those doctors. Devin

Devin Starlanyl http://www.sover.net/~devstar

book & video info 800-748-6273

LOCALIZED PAIN

Q:  I have been treated for persistent muscle pain and "hot spots " by a chiropractor for several years. The pain is always in the same places (hips, back of the skull, edges of the shoulder blades, and sometimes just below my knee) and although it gets somewhat better, any small injury or overuse causes a flare up that last for weeks - sometimes longer.

A:  This is not FMS here--that causes generalized achiness. The specific pains mentioned here are probably myofascial trigger points, and are treated differently than FMS tender points. There is a great deal your MD and DC can do about this. They need to be aware of the medical texts on MPS however.

Myofascial Pain Syndrome is greatly underdiagnosed, and often miscalled fibromyalgia. Gebauer in Ohio has a free trigger point chart which can be obtined by calling them at 800-321-9348. It is vitally important to treat the TrP and not the painful area, as this is often simply the referred pain zone. there are also other symptoms than pain. Devin

Q:  I have a friend who has been in pain for 15 years and has tried everything. I vary from hip pain to my shoulders and neck . I am not sure if this is Fibro

A:  Specific localized pains like this are often due to myofascial trigger points. They can be greatly relieved or eliminated by specific therapies. Devin

LONGER 2ND TOE

Q:  I do recall reading an oriental book on reflexology that stated that a longer second toe was a sign of something being wrong elsewhere in the body.

A:  The real anatomical variation to look for is the longer second metatarsal. I have a picture of it in my book. It is called "Morton's Foot" and can predispose people to myofascial trigger points. It can be aided by a simple modification to a drugstore shoe insert. Devin

Q:  concerning the second toe being longer than the first. As a child, I took a lot of different types of dancing classes, and we were told that it was called "Dancer's Foot".

A:  It isn't the toe, really, it is the second metatarsal that is longer than the first. Looking at the toe may give you a general idea of this. The condition is called Morton's foot, and predisposes to pronation and trigger points, unless you learn how to make a Travell shoe insert. Devin

MAGNETIC FIELD

Q:  I was discussing the FM strong magnetic field with my Doctor the other day. We had also been discussing Guafienson therapy and the deposits of phosphorus. He wondered if phosphorus being a double negative charge might influence the magnetic field.

A:  I am still asking people about this one. I do know that I have gotten rid of a lot of phosphorus excess over almost 3 years of guaifenesin. I still drive electromagnetic equipment crazy, flip out meters, etc. From my mail, this is a very widespread phenomonon. Devin

MEDICATIONS

Q:  Even Miryam, Devin and Nye gloss over pain meds as though they are not needed or wanted.

A:  I don't think that is true for any of us. We all stress, however, that medications alone will not provide what we need. In my handouts I stress the need for pain control. I have provided ammunition for people who want to verify that narcotics may be needed for pain for some of us. It is just that we all stress that medication is not the only answer, and that a total program of physical therapy, nutrition, sleep modification and whatever else is needed--bodywork/mindwork, postural training--are also important.

With the pain from myofascial trigger points, especially when there is nerve entrapment, and the pain amplification of FMS, some of us need strong medication. You need a doctor who understands this. Please reread my medications handout from my website at http://www.sover.net/~devstar and you will see that there is justification for pain medication there.  Devin


Q:  
For the FMS I take doxypin (10mg) and voltaren (50mg.) I wake up in the AM severely groggy. The MD feels that I should be able to tolerate a higher dose.

A:  It is not uncommon for people with FMS to have abnormal sensitivity to some medications. How does your doctor know what YOU can tolerate?


Q:  Many drugs wear off very quickly for me -- _typical_ is 2/3 the expected duration (this holds for antihistamines and NSAIDS). For other drugs it may be quicker or slower (Prilosec I actually only need _half_ as often as prescribed -- it seems to be the exception).

IS THIS UNUSUAL or is it just part of the normal variation expected between different patients? (And if it's normal, why is it not accounted for by most doctors I've spoken to about it?)   IS THIS SHARED by other fibromyalgia patients or is it completely unrelated?

A:  There is a normal variation, but nothing like the variation experienced in FMS patients. We react oddly to meds. Some hit us hard, and some seem to affect us the reverse of how they are supposed to, and others don't affect us at all Whether it is caused by FMS or comes along with it caused by something else has not been proven.

Q:  AM I PROBABLY METABOLIZING THE DRUGS FASTER than most people (over- acheiving liver & kidneys) or do I just require a higher dose and therefore only notice any beneficial effect when the drugs are near their peak concentrations (while other people continue to get use out of their drugs while the concentrations are tapering off)?

A:  I don't know. We do tend to have an overactive sensitivity. We can feel things others can't. Devin


 

Q:  I feel better since i've been off the paxil.

A:  I would stay off it then. It is easier on your system if you are taking 20 mg Paxil to taper, by taking half a pill for a week, and then every other day a half tab for a week before stopping. Devin

MENSTRUATION

Q: I am unable to find any answers in all my research as to the connection of my monthly period and incredible pain from my fibromyalgia. I have been suffering with terrible periods for seven plus years and now the pain, fatigue, etc. is just too much.

A: This is often due to myofascial trigger points. the myofascial congestion tightens around normal fluid passages, such as blood vessels and lymph vessels. Before your period, try some tennis ball acupressure-- lie on your belly on a sofa or other soft area, and work the trigger points using a tennis ball under your belly. Work the area where the leg and trunk joins. There will be a lot of pain when you go over the trigger points. Groin stretches are helpful for the trigger points in the pelvic muscles. Work on the low back as well. This won;t take care of all the problems, because some are due to FMS. Blood clots and membraneous flow are common. The TrP work will lighten the pain load, however. Devin

METABOLIC

Q: What is a metabolic disease? I am having laser surgery on my eyes in Jan and the list of candidates who should not have this surgery includes those with metabolic diseases.

A: Ask your surgeon what is covered here. Usually this term means conditions like diabetes or hypothyroid. We often have metabolic perpetuating factors. Talk this one over with the doctor in question.

Q:  FM appears increasingly to be connected to an imbalance of several hormones, most but not all of them brain chemicals. Since all of our body chemicals come from the foods we eat, FM could therefore be seen as a metabolic disorder. CFS appears increasingly to be connected to faulty energy metabolism at the cellular level. Thus, it, too, can be seen as a metabolic disorder.

That, I have come to believe, is the connection between FM and CFS. It would explain, for one thing, why there is such a significant overlap between the two syndromes. Further, I believe that the fatigue experienced by PWF is the result of lack of restorative sleep while the fatigue experienced by PWC is the result of faulty energy metabolism.

A:  I think you have it. Both FMS and CFS seem to me to be neurotransmitter dysfunctions. there is probably a whole family of neurotransmitter dysfunctions out there. Devin

MULTIPLE SYMPTOMS

Q: ALL of our symptoms, migraine, trigger points, irritable bowel symdrome, weight gain, panic attacks, sleeplessness, etc., etc. are symptoms of FM.

A: Not so. The headaches are usually from MPS trigger points. IBS can be from both FMS and MPS, and the weight gain and panic attacks can be from reactive hypoglycemia. If you have RH, are you on the diet for it? Dr. St. Amand will get you on it, but you should be on it right away. Reactive hypoglycemia perpetuates both FMS and MPS. Work on as many aspects
of your health as possible, and you will get through this. Devin

MUSCLE SPASMS

Q: I have had severe muscle spasms for the past few weeks- everywhere, neck (sides, back, under jaw,) hands, ribs, back, legs, feet... Could this be strictly from the FMS, or could the albuterol be the culprit?

A: This is probably from trigger points. Physicians (and everybody elese) often get FMS and MPS (myofascial pain syndrome) confused. This should not be allowed to go on, as the treatments are quite different. So are the symptoms.

MYOFACIAL PAIN SYNDROME

Q: My docs insist that MPS is nothing more than "localized FM," and since I have a FM dx, they refuse to treat it. (I've brought them Devin's book, only my neuro seemed even remotely interested).

A: In spite of the excellant medical texts of Travell and Simons, MPS is not known enough. Today I listened to a tape from the Bethesda conference I went to last March. It was wonderful to be in a room with all those doctors who knew that FMS and MPS were different! The tape concerned ways to spread the news about MPS. Each of you are teachers of FMS and MPS, and will form your own network of teachers. We're gaining on the ignorance, but it's a big job. Devin

Re: Dr. St. Amand's NEW Paper

Q. To us, "systemic candidiasis" and "myofascial pain syndrome" are merely synonyms for fibromyalgia.

A: Please be aware that Dr.St.Amand and I differ in this regard, The mother and father of myofascial pain syndrome, Janet G. Travell M.D. and David G.Simons M.D. have delineated carefully the differences between fibromyalgia and myofascial pain syndrome, both in their medical texts and many papers. These are entirely different conditions and should not be confused. There are a number of medical papers confirming this. Please see the bibliography on the physicians' side of my website

This is not a matter of opinion, but of medical fact. It is possible for someone to have one and not the other. Trigger Points and Myofascial Pain Syndrome have been defined by Travell and Simons, and I believe we should accept that they know the difference between MPS and fibromyalgia. They defined the terms clearly in the first Trigger Point manual over a decade ago. FMS and MPS often occur together as FMS/MPS Complex, but not always. Most doctors have not read these medical texts, which is the main reason for the confusion about terms. This in no way detracts from my regard of Dr. St. Amand nor my respect for the work he has done with guaifenesin. Guai has redeemed too many lives, including mine, for me to think otherwise. "Systemic candidaisis" is a perpetuating factor, possibly an effect of reactive hypoglycemia, also a common perpetuating factor of both FMS and MPS.  Devin

NEUROPATHIC PAIN

Q: Is there anyone out there who has any experience with neuropathic pain (not specifically RSD) superimposed on FMS?

A:  I often see neuropraxia as a result of entrapped nerves from myofascial trigger points. Depending on the trigger point and the extent of the problem, this can be handled several ways--spray and stretch, galvanic stim, etc., but it is important to find the perpetuating factors. Entrapped nerves generally respond to ice for relief. Devin

NEUROTRANSMITTERS

Dopamine is another neurotransmitter. The neurotransmitters should be in balance, but because we don't always get the deep sleep we need--where they are balanced and regulated--we have imbalances. FMS is among other things an imbalance in neurotransmitter and endocrine systems. Each patient is very different. Some of us may have too much of some neurotransmitters, such as histamine. That's why it is often trial by error to find the right meds that work for each of us.   Devin

ONSET OF FM

Q:  What is the possible cause of Fibromyalgia?

A:  Any kind of physical or emotional stress, such as a virus or other infection, can spark FMS in a predisposed individual--one with the genetic trait. This can be Lyme disease, parasites, yeast overload, auto accident, etc. It is the straw that breaks the proverbial camel's back.   Devin

PHANTOM PAIN

Q #1:  I have been having a problem with what I call Phantom pain (for lack of a better term). It is this sharp pain in various parts of my body, not aparently caused by anything (except FM of course). It is very intense and there seems to be nothing that I can do for it but wait for it to go away. I usually doesn't last very long, but the frequency has increased lately. It is becoming very unsettling. It seems as though it just picks a spot and makes it hurt! For instance last night watching tv, my left elbow just started to hurt. A sharp pain. The other night, my pinky finger on my right hand, same sharp pain, more intense. They just go away in time. Does anyone else have this? Am I going crazy? It hurts, but why?

Q #2:  I never thought of them as phantom pains -- someone called them zingers -- I like that one. Oh, I've been having them for years, and yes, I sometimes involuntarily yell out in pain because they come without warning and are so severe that they take my breath away. The real killer is when it happens in my knees or ankles or hips while I am walking. Well, that ends that -- I just have to stop and stay still until the pain goes away.

A: This is possibly nerve entrapment by myofascial trigger points. Travell and Simons showed the phantom pain--TrP connection in their manuals. There are many things you can do to relieve these. The ankle problem would be from entrapment by peroneal TrPs, and the hip would be piriformis TrPs, probably with satellite and secondary TrPs. Devin

PILLOW - CERVICAL

Q:  Does anyone know where I can buy mail order a cervical pillow for my neck? I don't get out much to hunt one.

A:  There is some problems with this. We usually have to try several to find one that fits the curvature of the neck. just right. this varies with how tight the scaleni and sternocelidomastoid muscles are. You may find a chiropractor or physical therapist who will lend one out (plastic covered) before you buy. Devin

PROGRESSION OF FM

Q:  *Remitting-intermittent-disappear, reappear after initial onset        *Fluctuating-periodically abates, never disappears         *Progressive-persistent, increasingly intense  ?


A:  I think this is due to the term "fibromyalgia" being used as a catch-all dx. The "progressive" cases I have seen have all been due to lack of proper management and the addition of myofascial pain syndrome. In all cases, the "progressiveness" was reversible once the perpetuating factors were dealt with and the conditions properly treated. Devin

SHORTNESS OF BREATH

For those of you who have shortness of breath and pain in between your shoulder blades, there is an article in the recent Journal of Myofascial Pain called "Treating Subjective Shortness of Breath by Inactivating Trigger Points of Levator Scapula Muscles with Acupuncture Needles", by Neoh Choo Aun. The levator scap TrPs are located just above the inner top point of the shoulder blades. Shortness of breath can also be caused by TrPs in other respiratory muscles. Devin

SINUS PROBLEMS

Q:  Awhile back it seems like people were talking about sinus and vision problems. The thing that drives me crazy about FM is the not knowing when to NOT blame something on it.

A:  These are part of MPS, not FMS. We must keep them straight when we can, so that confusion is minimized. See my handouts for ENT/Allergists and Eye Care Professionals on my web site at http://www.sover.net/~devstar    Devin


Q:  I have been having a killer headache over my left eye today, my eyebrow and cheek on that side are sore, and the top part of my nose on that side is slightly swollen. My vision in that eye is also foggy-plus my eye even hurts some. I have been blaming this on probably sinus's, probably FM related.

A:  No, but it could be MPS related. It is always wise to check out possible infections. But even sinus infections can set up trigger points. Do the eye exercises--looking up can be very painful if you have trigger points. Try pressure right under the ear--press on your neck there with the heel of your hand. There is a TrP there that often contributes to clogs. Check the pterygoid and masseter TrPs--cutaneous facial too. Whenever you have time, start doing some pressure point work on your face and head. If you feel sore spots, they are probably TrPs. Devin

SORE THROAT

Q:  Would appreciate hearing from anyone who has experienced a chronic sore throat as a symptom of FMS. What are your symptoms and what, if anything, has given relief? Also, any ideas about the relationship to FMS.

A:  Sore throat is often secondary to myofascial trigger points. As the TrPs tighten the myofascial constriction around normal drainage channels, the fluid can back up and the sinuses become clogged. During the night the post nasal drip causes sore throat. Also, sternocelidomastoid TrPs and a few other TrPs in the area can refer pain to the back of the throat. Devin

SWALLOWING PAIN

Q:  Hi, I was wondering if anyone on the newsgroup has had pain in the throat and chest (especially when swallowing, it feels like something is stuck in my throat all the time even though I drink liquids to try and clear this sensation, the sensation is no longer gone after I do this, it has continued for about a week.

A:  This is a sternocleidomastoid trigger point. The SCM TrPs refer pain differently depending on which portion of this divided muscle the TrP is. These muscles can be found moving diagonally along the side of the neck, and attaching both to the breastbone and the collar bone. Trigger points along the inner margin of the sternal portion (attached to the breastbone at the lower side) refer pain to the back of the throat and tongue during swallowing. Devin

TACHYCARDIA

Q:  I've recently been dx'd with "postural tachycardia." My resting pulse is about 120 beats per minute!!! Any connection with FM? Need I worry about Mitral Valve Prolapse?

A:  I don't think it is a cause for worry, but you should ask your doctor if he/she thinks you have it. You should also look for pectoralis major/minor and sternalis trigger points, especially close to the breastbone, because they are usually responsible for tachycardia when there is tachycardia, especially if myofascial pain syndrome is part of the picture. FMS can also contribute with adrenalin surges due to the dysrupted HPA-axis, and reactive hypoglycemia can cause these as well.  Devin

TEMPERATURE

Q:  Greetings, I have good improvement with cool or even cold water as well as warm water. I swim laps. It might be different for water walkers.

A:  The water temperature is mostly a function of myofascial trigger points--the temperature has to be warm, in a very narrow range, from about 88 tp about 94 F, or the TrPs are often aggravated. FMS doesn't have that problem, but can be aggravated by heat and/or cold.  Devin


TENDONITIS

Q:  This is the second time that my tendonitis has flared up.

A:  Do you often feel like you have a "toothache in your shoulder?" There is a trigger point that causes that feeling, as well as referring the pain to the wrist. Check the area behind your armpit, just under the rim of the shoulder blade. That is the subscapularis TrP. You can work at it by using a tennis ball and lying on your side on the floor. It will hurt. The ankles--are they weak and do they give out? Or do they hurt? If they hurt, is it both sides, around the ankles, or one side or another? This may also be TrPs. Or it could indeed be tendonitis. The symptoms may be similar. Devin

TINGLING & PAIN

Q:  my symptoms include: 1. Pain, tingling, and muscle fatigue in my right hand and arm . . we thought at first that it might be carpal tunnel syndrome.

A:  This is probably axillary artery entrapment by the subscapularis trigger point.

Q:  my doctor's just overlook it. It's not their feet that go numb and hurt and pins and needles. It's something with the nerves, maybe Devin or Dr Nye could explain why it happens.

A:  It could be neuropathy, which is a technical term for "something is going wrong with the nerves". Dr. Nye is our neurological expert, and I defer to him on that explanation. It could also be myofascial trigger points. These can be reversed. If I know the total condition of the body--FMS, MPS, and perpetuating factors, especially trigger points in the legs and feet, I can often figure out what the pattern is. Devin

Q:  I've been diagnosed with fibromyalgia and am doing reasonably well, but recently my skin has started tingling.

A:  This is not FMS, but myofascial pain syndrome and nerve entrapment by trigger points. Superficial TrPs can cause what has been called "The Skinache Syndrome". Devin

TENS UNIT

Q:  is using a tens unit on trigger points helpful at all?

A:  TENS can be helpful for some pain, but I have found it totally useless for trigger points, as it does not provide the contraction needed to flush the muscles. The NEMS units, some microstim units, and galvanis stim can provide muscle contraction. I use them myself. Devin

TRIGGER POINT INJECTIONS

Trigger point injections should NOT be done using cortisone. I heard that
right from the lips of Janet Travell, who pioneered TrP injections and mapped
the TrPs. Procaine is the medication of choice, according to Travell and
Simons' Trigger Point Manuals. The person doing the injections should be very
familiar with the techniques set forth in these medical texts. Devin


Q:  My new Dr. has suggested that I undergo trigger point injections to try to "break up" some spasms that I am having.

A:  It has been shown that for people with both MPS and FMS, TrP injections are not as effective and don't last as long, and they hurt more. Check the article by Dr. Hong on my website bibliography. At any rate, this procedure is for when other methods, such as "Spray and stretch", galvanic stim, etc have failed. Also, you must still find and deal with the perpetuating factors. If you have reactive hypoglycemia, for example, you must tend to that before any method of treatment works well. Therwise, even the best of therapies won't last.

Most doctors I have spoken with, including David Simons, suggest that it is better to avoid botulism toxin. Some TrP injections, such as the soleus, are extremely painful and can be disabling for a time. Your doctor should be thoroughly familiar with the Travell and Simons texts and methods for TrP
injection therein before he does TrP injections. And he should have exhausted other methods and helped you find and deal with perpetuating factors.  Devin

TRIGGER POINTS

Q:  Trigger thumb in my left hand

A:  This is probably a trigger point in the long thumb flexor. According to Travell and Simons, " a bulbous enlargement of the flexor pollicis longus tendon becomes ensnared by a restricted flexor sheath at the head of the first metacarpal bone, where the tendon is firmly attached to the thumb after it has passed over the adductor pollicis and between the two heads of the flexor pollicis brevis muscle."

Check the base of the pad of the thumb, palmar side, close to the wrist. As you press along the muscle, you will feel the trigger points. On page 554 and 555 of "Myofscial Pain and Dysfunction: The Trigger Point Manual" Vol I by Travell and Simons, your doctor can find how to get rid of it for you, either by injection or spray and stretch.

Q:  My mother was diagnosed yesterday with FM. She has had tension in her neck (constant stiffness) and achiness all over for about 2 months now.

A:  The constant stiffness is probably due to levator scapulae trigger points. Check an area just above the inner upper corner of the shoulder blade. There may be a lump, and should be a trigger point right there. That is what is causing the referred pain. this can often be relieved by tennis ball acupressure, but you have to figure out what is perpetuating it. Trigger points are part of MPS, not FMS.

Q:  Will this go away?

A:  Not by itself. You have to find the perpetuating factors.

Q:  What what would be the difference in treatment for trigger points?

A:  The trigger points of MPS are reversible, and can be treated by "Spray and stretch" or galvanic stim, among other modalities. These will do nothing for tender points of FMS. The differences are covered in detail in my book and website, and I have a two-hour video on TrPs. It is important that your physical therapist knows the difference between FMS, single trigger points, and chronic MPS, so that the treatment is given in the proper order. For instance, the pectoral TrPs must be released before the sternocleidomastoid TrPs. Furthermore, you have to look for and eliminate perpetuating factors. Devin

Q:  Devin, Do degenerative disc disease and osteo in the shoulders, clavicle, and scapula also cause trigger points?

A: You bet. This is very well documented by Travell and Simons.  {{{}}} Devin


VULVODYNIA

Vulvodynia may be caused by a number of trigger points which can refer pain to the area. You need a trigger point expert to find out which one, although that can be done by elimination. I have them on the video, but many are in internal muscles. There are also many other possible causes. Devin

Q:  I have at times a sensation that appears to be in the perineal/vaginal area. It feels as if there is so much pressure it is almost painful and causes me to break out into a sweat and I have almost fainted because of this. Could this be caused by a trigger point?

A:  This is indeed probably a trigger point, although it could be caused by something going on internally. It could also be left over from a pelvic infection, a pregnancy or a painful period. Groin stretches, sitting on a warm heating pad, and electrical stim to the perineal area and area around pelvis are all helpful. These TrPs will be in the video, but are not in the book. Pelvic TrPs can cause all sorts of symptoms. There is also a TrP high in the adductor magnus area, where the thigh meets the trunk of the body, inner midleg. This TrP can cause symptoms mimicing a severe pelvic infection, or infection of the prostate. Devin

YEAST

Q.  I would like to have explained the link between high yeast/sugar craving/pain cycle. Is the yeast level increasing in the blood due to the sugar diet?

A.  This is often due to reactive hypoglycemia. I suggest that you check out the book "Mastering The Zone" by Barry Sears. Your library should have it. The carbocraving is due to the dysfunctional insulin/glucagon ratio in the blood. Reactive hypoglycemia can have similar symptoms to FMS, and these will go away with proper balanced diet. Devin

ZINGERS

Q:  Are you referring to the sharp jolt of pain that feels like an electrical shock and lasts about 3 seconds (if that long). I get them at the base of my head (where it connects to the neck). One was so bad I spilled a cup of hot, hot coffee all over.

A:  This can be due to nerve entrapment by myofascial trigger points. There are a number of small muscles that run along the spine that can do this, if they have TrPs. Other nerves can get entrapped too. Devin



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