FMS/MPS Q & A from Dr. Devin
|
|

Dr. Starlanyl
|
Below you will find a compilation of FMS/MPS questions presented
to Dr. Devin J. Starlanyl on Fibrom-L, the internet Fibromyalgia Information
Exchange group.
Dr. Starlanyl, who also suffers from FMS/MPS complex, has so gracefully dedicated
her life to helping others afflicted with these complex and often confusing
syndromes.
She is the author of "Fibromyalgia & Chronic Myofascial Pain
Syndrome, A Survival Manual" co-authored by Mary Ellen Copeland, M.S., M.A.
and is currently working on an Advocacy book for FMS/MPS patients.
Many thanks to Dr. Devin for all of the time and effort she has devoted
to helping we "fibromites" achieve a better quality of life. |
|
|
|
ACCIDENT & INJURY
Q: I suffered a severe whiplash complicated by developing Degenerative
Disc Disease in the affected area. Not the first time this has happened...earlier
lower back injury when 19 years old developed in the same manner. However,
since the last injury ten years ago, I developed IBS for the last six months
I have suffering with dizziness.
A: It isn't unusual for myofascial trigger points to develop after
injury, and that is what seems to be happening. the IBS is often a function
of multifidi and abdominal TrPs. The dizziness is most often from
sternocleidomastoid (SCM) TrPs. Have this checked out by a competant TrP-
savvy doctor, nurse practitioner or physical therapist.
AMMELIORATION ?
Q: A few years ago after I was dx'd with 'fibositis' and
trying to explain to my family what was happening to me, Dr. Lamb had a short
letter in his
newspaper column about FMS. In it he stated that the pain
was indeed real, but symptoms improved with time and would
eventually clear up. I was so excited thinking things would soon
improve. Now I wonder, is this really what they thought a few years
ago?
A: No. It has been known for a LONG time that FMS is a chronic illness.
Often it is couples with misdiagnosed or undiagnosed MPS. You must discover
the perpetuating factors and deal with them.
Q: (cont. from above Q.) Is it part of the IAIYH (It's
all in your head) garbage?
A: Yes.
ARTHRITIS & FM
Q: Am I correct in my understanding that Rheumatoid and
Fibromyalgia are in some way related?
A: They are not. Rheumatoid arthritis is an auto-immune
problem, and a progressive, inflammatory degenerative condition. Fibromyalgia
is none of these things. RA does often give rise to myofsacial trigger points,
which are mistakenly diagnosed as FMS. The pain load of a lot of RA patients
could be alleviated without use of extra meds if the trigger
points were treated with specific physical therapy.
Unfortunately, since TrPs refer pain elsewhere, you can't
treat them until you know what they are. Unfortunately, most doctors are
unfamiliar with the medical texts "Myofascial Pain and Disfunction: The Trigger
Point Manual" vol. I & II by Travell and Simons.
BODY TEMPERATURE
Q: I don't have FM, the true love of my life does, and she often has
a low grade fever that accompanies the pain. it is usually in the 99.4 -
99.8 range
A: One of the common problems we share is a disrupted HPA axis--that
is the balance of the hypothalamus, pituitary and adrenal glands. These are
unbalanced due to the alpha-delta sleep anomaly, as the neurotransmitters
are regulated during delta level sleep. The hypothalamus is, among other
things, the body thermostat. There is always the chance that your love has
a low-grade fever. Otherwise, it is probably a faulty thermostat. Devin
BREAST TENDERNESS / SORENESS
Q: Does fibromyalgia cause breast tenderness/soreness?
A: Sternalis and pectoralis myofascial trigger
points cause breast pain and soreness as well as sensitive nipples. Devin
BRUISING
Q:I get weird and unexplained bruises...they come literally from
NOWHERE.
A:It is common for us to get delayed bruising. We have perceptual
difficulties that have us bashing ourselves at every corner, and then the
bruises take forever to go away. Some of this is due to myofascial constriction
of peripheral blood vessels. Devin
Q: I bruised very easily, long before FMS but I have seen numerous
posts about maybe bruising easily is a symptom of FMS. Get real.
A:This could very well be real. Capillary fragility is a common
symptom in a subset of people with FMS. Also common is bruises that take
a long time to develop, and then take an extra long time to disappear. This
last may have something to do with myofascial constriction of capillaries.
It is by collecting symptoms such as these which may be common that we can
offer subjects to be investigated. FMS has hereditary components, so easy
bruising may have been one of the first symptoms.
We are blazing trails here, and discovering commonalities is an important
step. The tissue overgrowth phenomenon I found (a tendency toward cysts,
fibroids, ingrown hairs, overgrown cuticles, easy scarring etc) may have
something to do with the combination of myofascial overgrowth and FMS membrane
instability. I don't know. I just know that it is overwhelmingly common,
and I found out so by asking. Observations are a very important part of medical
research. Devin
CFIDS/M.E. & FMS/MPS
Q:If a person had CFS and MPS, what would be the difference between
that & fibromyalgia?
A:I don't know a lot about Chronic Fatigue. I have found that
most patients with fatigue find that this is secondary to FMS and MPS,and
when they are sucessfully treated, the fatigue disappears. I have FMS and
MPS, and the only fatigue I get is from overwork. Chronic Fatigue is real,
and it has a strong immune component, unlike FMS. All immune systems can
be depressed from sleep lack, but CFS has something more. Devin
Q: Is it possible I am developing symptoms of CFS....sore
throat, swollen glands, heavy duty sweats, extreme exhaustion?
A: These can also be autonomic referral symptoms of trigger
points. Devin
CLOTHING
Q: Are clothes just plain uncomfortable or what?
A: YES, including the damned labels which most of us seem
to cut off! The hypersensitivity of FMS can often be eased by wearing some
underthings inside out so that the seams irritate less. Beware of constricting
bands which will perpetuate trigger points, part of MPS. Stretch clothing
is good as long as it isn't too tight. Devin
DIET & NUTRITION
Q: I would like to have explained the link between
high yeast/sugar craving/pain cycle. Is the yeast level increasing in the
blood due to the sugar diet?
A: This is often due to reactive hypoglycemia. I suggest
that you check out the book "Mastering The Zone" by Barry Sears. Your library
should have it. The carbocraving is due to the dysfunctional insulin/glucagon
ratio in the blood. Reactive hypoglycemia can have similar symptoms to FMS,
and can be a perpetuating factor to both FMS and MPS. Devin
Q: I have Barry Sears book Entering the Zone, but it is not a
good read like your book. It all sounds so confusing
A:Sorry about that. It wasn't written especially for people
with FMS/MPS, like my book. It does have a lot of good info, but much of
it is easier to digest with an appetizer of a scientific background. "Mastering
the Zone" is easier for lay people to understand, and it has recipes. Devin
Q:Is there an easier way to enter the zone?
A:It has to be fine-tuned to each person. You need to develop
a whole regimen, with exercise, physical therapy, mindwork and other bodywork.
As for the Zone, if you have reactive hypoglycemia, you need to cut down
on carbohydrates. Each meal and snack should be balanced with protein,
carbohydrates and fats. About a half a palm-size of protein, a palm of carbos,
and the fat will be attached to them so you usually don't have to add. That
is a general way to "eyeball" the servings. Each snack must be balanced as
well. This diet will often throw you into a reversal like guaifenesin. The
headache can be pretty bad at first, often, but it eases up as your body
gets (quickly) balanced again. It is not a quick fix, and not fun, but it
pays off. The diet pills, like fen-phen, can be dangerous.
Q:I didn't see anything in there about having chocolate!!!
A:My drug of choice. It was hard for me to break my chocolate
addiction. I can still enjoy chocolate, but not much, and not often. I also
have to >balance it with protein. I don't want to lose ground. I also
like fitting into size 8. Devin
DISABILITY
Q: My lawyer says if he had or could get a trigger point chart
he could obtain my benefits. I can't believe there is not one!
A: Call Gebauer in Ohio at 800-321-0348 for their free trigger
point chart. I also advise that you lawyer call Williams and Wilkins for
their packet on trigger points--varieties of TrP charts, medical texts, etc.
at 800-638-0672. Your problem may be that you are looking under FMS for TrPs,
and they are a function of myofascial pain symdrome instead. These are different
conditions, although they often occur together. You will need a physical
therapist or TrP-savvy practitioner to confirm your TrPs.
 |
|
|
DIZZINESS
Q: When dizziness happens I have no warning or very little. I
was ironing and all of a sudden the room just started spinning and a wave
of nausea washed over me. Just before the dizzy feeling hit, I noticed that
my right ear would go completely numb.
A:This is a typical sternocleidomastoid (SCM) TrP scenario. This
muscle has two parts, alongside of the neck. The symptom list from this TrP
astounding. Check out my website at
http://www.sover.net/~devstar,
my book or video. You can also get a free Gebauer TrP chart by calling them
in Ohio at 800-321-9348. You could be developing Myofascial Pain Sydnrome,
which would aggravate Reynauds and other problems. Devin
Q:I, too, get a terrible headache from moving my eyes in that
way. But last night I asked others about it, and those who are hale and healthy
said it hurt their eyes to do the excercise too.
A: Many people who are otherwise healthy have these trigger points.
Most of us look down too often and don't look up enough. Even less, do we
look up and to the side. As the years go on, we develop more trigger points,
so as elderly folks we are often restricting our movements to avoid pain,
including our eye movements. I believe, with Janet Travell, that a lot of
what is called old age can be attributable to the tightened restricted myofascia
due to trigger points. Devin
FLUID RETENTION
Q: I have another question for the drs. on the list, please. I
saw my dr. recently (good guy, but only schedules 15 for a visit) I was
particularly concerned about fluid retention that I've had for several months
now. I showed him my ankles
A: This can be caused by several problems. The easiest to check
is piriformis trigger points. These TrPs can entrap blood vessels as well
as nerves. The most common piriformis TrPs can be reached by tennis ball
compression to the back of the buttocks, about 2/5ths down from the top of
the curve of the buttock. One is along the spine, and the other is a little
over half the distance to the outer edge of the buttock from the first one,
and a little lower. If TrPs are there, it will hurt. It is wise to also check
for other causes. Devin
FOOT PAIN
Q: my feet hurt too...but it is mostly when I get up in the am
or if I have been sitting for a period of time..
A: This is from a trigger point in the long flexors of the toes.
It is found in the calf, about 5 inches or so from the back of the knee crease,
amd about an inch or two towards the inside edge from midline of the calf.
The pain can go from there to the ankle and then to the instep, but it is
worse on the sole of the foot. This is perpetuated by having the foot extended,
as it is at night.
Put a pillow at the bottom of the bed, under the covers, to keep your foot
as flat as possible at night, and avoid sitting with your toes pointed down.
Flex your foot up and down every 15 minutes or so when you have to sit a
while. Work on the TrP with acupressure (tennis balls can help) and galvanic
stim. This TrP is also responsible for the prickling at the base of the toes,
which is spillover stimuli from the mail referral zone. This is NOT FMS,
but rather MPS. Please clue in your rheumatologist. They are different. Devin
Q: Does anyone else ever experience pain in the top of their
feet?
A: This is usually due to myofascial trigger points. Most likely
either the tibialis anterior, located more than a handsbreadth below the
bottom of the knee just to the outside of midline (this will give you pain
in the big toe as well), the peroneus tertius, right above the outer ankle
area, the extensor digitorum longus, a little more than a handsbreadth below
the knee but to the outside, almost in the middle of the outer side of the
leg but a little to the front, and the extensorees brevis, which are on the
top of the foot, right in front of the ankle but a little to the outside
of midline.
GASTRIC REFLUX
Q: I'm assuming I have gastric reflux as I've had heartburn for
about two weeks now. Been taking Tagamet or Pepcid and Tums or Mylanta in
between. Do any of you have heartburn as a symptom to FM?
A: This can also come from reactive hypoglycemia, which can come
with FMS. If you crave carbohydrates/chocolate and have hypoglycemia symptoms
and have been putting on weight, you may have to modify your diet. Also,
certain myofascial TrPs can aggravate reflux. Devin
GENETICS
Q:Are you saying that all your sisters have FMS? If this is the
case, it makes me wonder if this condition is either hereditary or contagious
over prolonged exposure.
A: It is not contageous. There is no greater incidence of FMS
in mates of fibromites. There has been a study indicating an autosomal dominant
trait. There have been several genes implicated in FMS, with more research
to be done. We have a local family of 7 sisters in our local group, and most
of them have FMS. Their husbands do not. Devin
GUAIFENESIN
Q: Hello all, I started taking the guaifenesin about five weeks
ago. Almost immediately I felt horrible on 300 mg. a day. That is good. I
have continued to feel up and down awful. However, I have had extraordinary
days. Days with energy and enthusiasm. Days filled with a unfamilar word
for me in the past years - shopping and cooking and laughing. I have cut
my antidepressant, Effexor, from 300 mg. day to 100mg., usually 50mg. Yesterday,
Sunday, was the worst day I have had so far. I thought I would die I hurt
so much. For some reason I trust this Dr. St. Armand.
A: I also trust Paul St.Amand. What ELSE are you doing for the
FMS and MPS? You may have many perpetuating factors. The more you take care
of yourself, the more you help your body detox, and >the less unpleasant
the reverse cycling is. Drink a lot of water, put moist heat on the parts
that ache, and take it easy. Do some gentle stretches, one of each stretch.
Develop a program of mindwork and bodywork that helps you to feel better.
HEARTBURN
Q: Is heartburn due to FMS too?? I suffer from killer heartburn.
A: Many things can cause the heartburn cycle. Many of the foods
we eat can relax the esophageal sphincter, and allow the gases and eventually
the liquids to "reflux" back from the stomach. The gases are very acidic,
as is the liquid, and they burn. Chocolate and caffeine are two items that
relax the sphincter. For many of us, this is a sign of reactive hypoglycemia
and it may be wise to have a trial run of the Zone diet. The external oblique
trigger points that are on the frontward edge of the ribs are often a factor
in perpetuating reflux. Try tennis ball acupressure along this region by
lying on your belly on the ball, and rolling it along these edges. If it
is screamingly painful, there are TrPs. this action will help break the TrPs
up, but you may want to start on a sofa or other softer surface before graduating
to the floor. {{{}}} Devin
HIP & LEG PAIN
Q: How well I know that kind of pain in the legs. Mine usually
encompasses the legs and hips.
A:This is usually due at least partly to gluteus minimus trigger
points, if it forms a "sciatic" pattern radiating down the leg. These can
be broken up with tennis ball acupressure--it hurts but it is worth it. Using
a pillow under your knees when you sleep can avoid some of the stress on
the hips. Devin
HORMONE REPLACEMENT THERAPY
Q:My GP wants me to go on Homone Replacement Therapy. I have no
uterus so it would just be estrogen. The things I have read are all positive
but am wondering about how it will affect my FM.
A: HRT is just that--replacement for what your body would be producing
anyway. I have heard people who say they feel better on HRT, and some who
don't. Give it a try. Devin
HPA-AXIS
Q: Anyone out there have trouble with their pituitary gland? I
had a pituitary adenoma removed in 1982 and there is another one growing
in there now.
A: Most people with FMS have a disrupted HPA-axis. An "axis" is
the medicaleze name for a balance, and the "HPA-axis" is the balance among
the> hypothalamus, pituitary and adrenal glands. These are regulated mostly
during delta-level sleep, which is often disrupted in FMS. The pituitary
adenoma can further dysregulate the HPA-axis. A percentage of these do regrow.
Devin
HUMAN PAROVIRUS
Q: Is this the human version of what dogs get?
A: I am with PRO-med, a listserv organization monitoring infectious
disease outbreaks. There are many kinds of parvovirus. Fifth Disease is something
different from canine or feline parvo. They are just in the same family.
Human PV is common and many people with it are symptom free. Devin
IAIYH (It's All In Your Head)
Q: I recently went to a doctor trying to find the cause of my
dizziness. After the physical exam, he said "Maybe its a pyschosomatic disorder,
or maybe its related to your fibromyalgia, If fibromyalgia is indeed a REAL
disease, I don't know...."
A: Why do you pay someone who knows less than you do? Devin
 |
|
|
INFLAMMATION
Q: Given many case reports of the "feel" of symptoms, the positive
responses to drugs that function as anti-inflammatories (apart from their
other effects), and the things that trigger flares often being so similar
to things that trigger inflammation, I and some others feel that there may
in fact be inflammation involved but that the current available diagnostic
tests for inflammation don't pick up this inflammation.
A: There may be secondary inflammation especially with myofascial
trigger point involvement. The constricted myofascia can pull muscles and
bones out of alignment, and create imbalances of gait that can themselves
produce inflammation. This does not mean that either FMS or MPS is
inflammatory.They are not. The anti-inflammatories often function as analgesics.
Unfortunately, they also have side-effects, especially with long-term use.
Devin
ITCHING
Q: Does anyone else have this feeling that it is itching deep
inside your ear, and no matter how deep you probe, you can't scratch it?
A: Yes. It is common. It is in my book too, page 80. It is from
the masseter TrP. Press the TrP, and it helps the itch somewhat. There are
many more TrPs than are in the book--but they are in the video. {{{}}} Devin
Q: Does anyone have itching skin all over? I seem itch all over
my body for no reason. Just wondering. especially on my scalp. What is this
from?
A: This can come from many reasons. Dry skin, altered response
to sensory stimuli (if the brain can't translate a sensation, the default
is "itch"), low level trigger points. Devin
KEVORKIAN SUICIDE
Q: It just bugged me as total ignorance that a doctor would go
on national television, having done a standard autopsy, and say there was
nothing wrong with (Judith Curren) really .... I feel like I've already been
there and done that, if you know what I mean.
A: This bugged me, as well as the fact that if her doctors had
know about FMS and MPS, and known that a chronic pain state can cause immune
deficiency, that woman would be alive today, and in less pain.
So that she did not die in vain, I urge all of you to write to your local
newspapers and tell them about fibromyalgia. Explain why the autopsy showed
nothing. Let people know your symptoms, your story, and what can be done
to help. Tell them about this group, the fibrom-l, and about myofascial pain
syndrome, and about the Fibromyalgia Network Newsletter, and local support
groups. If those doctors had done as little as read the Network Newsletter,
they might have saved that woman. Let's go out and try to save others with
what we know about fibromyalgia, which is, in most cases, considerably more
than those doctors. Devin
Devin Starlanyl
http://www.sover.net/~devstar
book & video info 800-748-6273
LOCALIZED PAIN
Q: I have been treated for persistent muscle pain and "hot
spots " by a chiropractor for several years. The pain is always in the same
places (hips, back of the skull, edges of the shoulder blades, and sometimes
just below my knee) and although it gets somewhat better, any small injury
or overuse causes a flare up that last for weeks - sometimes longer.
A: This is not FMS here--that causes generalized achiness.
The specific pains mentioned here are probably myofascial trigger points,
and are treated differently than FMS tender points. There is a great deal
your MD and DC can do about this. They need to be aware of the medical texts
on MPS however.
Myofascial Pain Syndrome is greatly underdiagnosed, and often miscalled
fibromyalgia. Gebauer in Ohio has a free trigger point chart which
can be obtined by calling them at 800-321-9348. It is vitally
important to treat the TrP and not the painful area, as this
is often simply the referred pain zone. there are also other
symptoms than pain. Devin
Q: I have a friend who has been in pain for 15 years and
has tried everything. I vary from hip pain to my shoulders
and neck . I am not sure if this is Fibro
A: Specific localized pains like this are often due to
myofascial trigger points. They can be greatly relieved or
eliminated by specific therapies. Devin
LONGER 2ND TOE
Q: I do recall reading an oriental book on
reflexology that stated that a longer second toe was a sign of
something being wrong elsewhere in the body.
A: The real anatomical variation to look for is the longer
second metatarsal. I have a picture of it in my book. It is
called "Morton's Foot" and can predispose people to myofascial
trigger points. It can be aided by a simple modification to
a drugstore shoe insert. Devin
Q: concerning the second toe being longer
than the first. As a child, I took a lot of different types of
dancing classes, and we were told that it was called "Dancer's Foot".
A: It isn't the toe, really, it is the second metatarsal
that is longer than the first. Looking at the toe may give
you a general idea of this. The condition is called Morton's
foot, and predisposes to pronation and trigger points, unless
you learn how to make a Travell shoe insert. Devin
MAGNETIC FIELD
Q: I was discussing the FM strong magnetic field with my
Doctor the other day. We had also been discussing Guafienson
therapy and the deposits of phosphorus. He wondered if phosphorus
being a double negative charge might influence the magnetic
field.
A: I am still asking people about this one. I do know that
I have gotten rid of a lot of phosphorus excess over almost
3 years of guaifenesin. I still drive electromagnetic equipment
crazy, flip out meters, etc. From my mail, this is a very
widespread phenomonon. Devin
MEDICATIONS
Q: Even Miryam, Devin and Nye gloss over pain meds as though
they are not needed or wanted.
A: I don't think that is true for any of us. We all
stress, however, that medications alone will not provide what
we need. In my handouts I stress the need for pain control.
I have provided ammunition for people who want to verify
that narcotics may be needed for pain for some of us. It is
just that we all stress that medication is not the only answer,
and that a total program of physical therapy, nutrition, sleep
modification and whatever else is needed--bodywork/mindwork,
postural training--are also important.
With the pain from myofascial trigger points, especially when there is
nerve entrapment, and the pain amplification of FMS, some
of us need strong medication. You need a doctor who understands
this. Please reread my medications handout from my website
at
http://www.sover.net/~devstar
and you will see that there is justification for pain
medication there. Devin
Q: For the FMS I take doxypin (10mg) and voltaren (50mg.) I wake
up in the AM severely groggy. The MD feels that I should be
able to tolerate a higher dose.
A: It is not uncommon for people with FMS to have abnormal
sensitivity to some medications. How does your doctor know
what YOU can tolerate?
Q: Many drugs wear off very quickly for me -- _typical_
is 2/3 the expected duration (this holds for antihistamines
and NSAIDS). For other drugs it may be quicker or slower (Prilosec
I actually only need _half_ as often as prescribed -- it seems
to be the exception).
IS THIS UNUSUAL or is it just part of the normal variation expected
between different patients? (And if it's normal, why is it
not accounted for by most doctors I've spoken to about it?)
IS THIS SHARED by other fibromyalgia patients or is it completely
unrelated?
A: There is a normal variation, but nothing like the variation
experienced in FMS patients. We react oddly to meds. Some hit us hard, and
some seem to affect us the reverse of how they are supposed to, and others
don't affect us at all Whether it is caused by FMS or comes along with it
caused by something else has not been proven.
Q: AM I PROBABLY METABOLIZING THE DRUGS FASTER than most
people (over- acheiving liver & kidneys) or do I just require a higher
dose and therefore only notice any beneficial effect when the drugs are near
their peak concentrations (while other people continue to get use out of
their drugs while the concentrations are tapering off)?
A: I don't know. We do tend to have an overactive sensitivity.
We can feel things others can't. Devin
Q: I feel better since i've been off the paxil.
A: I would stay off it then. It is easier on your system
if you are taking 20 mg Paxil to taper, by taking half a pill for a week,
and then every other day a half tab for a week before stopping. Devin
MENSTRUATION
Q: I am unable to find any answers in all my research as to the
connection of my monthly period and incredible pain from my fibromyalgia.
I have been suffering with terrible periods for seven plus years and now
the pain, fatigue, etc. is just too much.
A: This is often due to myofascial trigger points. the myofascial
congestion tightens around normal fluid passages, such as blood vessels and
lymph vessels. Before your period, try some tennis ball acupressure-- lie
on your belly on a sofa or other soft area, and work the trigger points using
a tennis ball under your belly. Work the area where the leg and trunk joins.
There will be a lot of pain when you go over the trigger points. Groin stretches
are helpful for the trigger points in the pelvic muscles. Work on the low
back as well. This won;t take care of all the problems, because some are
due to FMS. Blood clots and membraneous flow are common. The TrP work will
lighten the pain load, however. Devin
METABOLIC
Q: What is a metabolic disease? I am having laser surgery on my
eyes in Jan and the list of candidates who should not have this surgery includes
those with metabolic diseases.
A: Ask your surgeon what is covered here. Usually this term means
conditions like diabetes or hypothyroid. We often have metabolic perpetuating
factors. Talk this one over with the doctor in question.
Q: FM appears increasingly to be connected to an imbalance
of several hormones, most but not all of them brain chemicals. Since all
of our body chemicals come from the foods we eat, FM could therefore be seen
as a metabolic disorder. CFS appears increasingly to be connected to faulty
energy metabolism at the cellular level. Thus, it, too, can be seen as a
metabolic disorder.
That, I have come to believe, is the connection between FM and CFS. It would
explain, for one thing, why there is such a significant overlap between the
two syndromes. Further, I believe that the fatigue experienced by PWF is
the result of lack of restorative sleep while the fatigue experienced by
PWC is the result of faulty energy metabolism.
A: I think you have it. Both FMS and CFS seem to me to be
neurotransmitter dysfunctions. there is probably a whole family of
neurotransmitter dysfunctions out there. Devin
 |
|
|
MULTIPLE SYMPTOMS
Q: ALL of our symptoms, migraine, trigger points, irritable bowel
symdrome, weight gain, panic attacks, sleeplessness, etc., etc. are symptoms
of FM.
A: Not so. The headaches are usually from MPS trigger points.
IBS can be from both FMS and MPS, and the weight gain and panic attacks can
be from reactive hypoglycemia. If you have RH, are you on the diet for it?
Dr. St. Amand will get you on it, but you should be on it right away. Reactive
hypoglycemia perpetuates both FMS and MPS. Work on as many aspects
of your health as possible, and you will get through this.
Devin
MUSCLE SPASMS
Q: I have had severe muscle spasms for the past few weeks- everywhere,
neck (sides, back, under jaw,) hands, ribs, back, legs, feet... Could this
be strictly from the FMS, or could the albuterol be the culprit?
A: This is probably from trigger points. Physicians (and everybody
elese) often get FMS and MPS (myofascial pain syndrome) confused.
This should not be allowed to go on, as the treatments are
quite different. So are the symptoms.
MYOFACIAL PAIN SYNDROME
Q: My docs insist that MPS is nothing more than "localized FM,"
and since I have a FM dx, they refuse to treat it. (I've brought
them Devin's book, only my neuro seemed even remotely interested).
A: In spite of the excellant medical texts of Travell and Simons,
MPS is not known enough. Today I listened to a tape from the Bethesda conference
I went to last March. It was wonderful to be in a room with all those doctors
who knew that FMS and MPS were different! The tape concerned ways to spread
the news about MPS. Each of you are teachers of FMS and MPS, and will form
your own network of teachers. We're gaining on the ignorance, but it's a
big job. Devin
Re: Dr. St. Amand's NEW Paper
Q. To us, "systemic candidiasis" and "myofascial pain syndrome"
are merely synonyms for fibromyalgia.
A: Please be aware that Dr.St.Amand and I differ in this regard,
The mother and father of myofascial pain syndrome, Janet G. Travell M.D.
and David G.Simons M.D. have delineated carefully the differences between
fibromyalgia and myofascial pain syndrome, both in their medical texts and
many papers. These are entirely different conditions and should not be confused.
There are a number of medical papers confirming this. Please see the bibliography
on the physicians' side of my website
This is not a matter of opinion, but of medical fact. It is possible for
someone to have one and not the other. Trigger Points and Myofascial Pain
Syndrome have been defined by Travell and Simons, and I believe we should
accept that they know the difference between MPS and fibromyalgia. They defined
the terms clearly in the first Trigger Point manual over a decade ago. FMS
and MPS often occur together as FMS/MPS Complex, but not always. Most doctors
have not read these medical texts, which is the main reason for the confusion
about terms. This in no way detracts from my regard of Dr. St. Amand nor
my respect for the work he has done with guaifenesin. Guai has redeemed too
many lives, including mine, for me to think otherwise. "Systemic candidaisis"
is a perpetuating factor, possibly an effect of reactive hypoglycemia, also
a common perpetuating factor of both FMS and MPS. Devin
NEUROPATHIC PAIN
Q: Is there anyone out there who has any experience with
neuropathic pain (not specifically RSD) superimposed on FMS?
A: I often see neuropraxia as a result of entrapped nerves
from myofascial trigger points. Depending on the trigger point and the extent
of the problem, this can be handled several ways--spray and stretch, galvanic
stim, etc., but it is important to find the perpetuating factors. Entrapped
nerves generally respond to ice for relief. Devin
NEUROTRANSMITTERS
Dopamine is another neurotransmitter. The neurotransmitters should be in
balance, but because we don't always get the deep sleep we need--where they
are balanced and regulated--we have imbalances. FMS is among other things
an imbalance in neurotransmitter and endocrine systems. Each patient is very
different. Some of us may have too much of some neurotransmitters, such as
histamine. That's why it is often trial by error to find the right meds that
work for each of us. Devin
ONSET OF FM
Q: What is the possible cause of Fibromyalgia?
A: Any kind of physical or emotional stress, such as a virus
or other infection, can spark FMS in a predisposed individual--one with the
genetic trait. This can be Lyme disease, parasites, yeast overload, auto
accident, etc. It is the straw that breaks the proverbial camel's back.
Devin
PHANTOM PAIN
Q #1: I have been having a problem with what I call Phantom
pain (for lack of a better term). It is this sharp pain in various parts
of my body, not aparently caused by anything (except FM of course). It is
very intense and there seems to be nothing that I can do for it but wait
for it to go away. I usually doesn't last very long, but the frequency has
increased lately. It is becoming very unsettling. It seems as though it just
picks a spot and makes it hurt! For instance last night watching tv, my left
elbow just started to hurt. A sharp pain. The other night, my pinky finger
on my right hand, same sharp pain, more intense. They just go away in time.
Does anyone else have this? Am I going crazy? It hurts, but why?
Q #2: I never thought of them as phantom pains -- someone
called them zingers -- I like that one. Oh, I've been having them for years,
and yes, I sometimes involuntarily yell out in pain because they come without
warning and are so severe that they take my breath away. The real killer
is when it happens in my knees or ankles or hips while I am walking. Well,
that ends that -- I just have to stop and stay still until the pain goes
away.
A: This is possibly nerve entrapment by myofascial trigger points.
Travell and Simons showed the phantom pain--TrP connection in their manuals.
There are many things you can do to relieve these. The ankle problem would
be from entrapment by peroneal TrPs, and the hip would be piriformis TrPs,
probably with satellite and secondary TrPs. Devin
PILLOW - CERVICAL
Q: Does anyone know where I can buy mail order a cervical
pillow for my neck? I don't get out much to hunt one.
A: There is some problems with this. We usually have to
try several to find one that fits the curvature of the neck. just right.
this varies with how tight the scaleni and sternocelidomastoid muscles are.
You may find a chiropractor or physical therapist who will lend one out (plastic
covered) before you buy. Devin
PROGRESSION OF FM
Q: *Remitting-intermittent-disappear, reappear after initial
onset *Fluctuating-periodically abates, never
disappears *Progressive-persistent, increasingly
intense ?
A: I think this is due to the term "fibromyalgia" being
used as a catch-all dx. The "progressive" cases I have seen have all been
due to lack of proper management and the addition of myofascial pain syndrome.
In all cases, the "progressiveness" was reversible once the perpetuating
factors were dealt with and the conditions properly treated. Devin
SHORTNESS OF BREATH
For those of you who have shortness of breath and pain in between your shoulder
blades, there is an article in the recent Journal of Myofascial Pain called
"Treating Subjective Shortness of Breath by Inactivating Trigger Points of
Levator Scapula Muscles with Acupuncture Needles", by Neoh Choo Aun. The
levator scap TrPs are located just above the inner top point of the shoulder
blades. Shortness of breath can also be caused by TrPs in other respiratory
muscles. Devin
 |
|
|
SINUS PROBLEMS
Q: Awhile back it seems like people were talking about sinus
and vision problems. The thing that drives me crazy about FM is the not knowing
when to NOT blame something on it.
A: These are part of MPS, not FMS. We must keep them straight
when we can, so that confusion is minimized. See my handouts for ENT/Allergists
and Eye Care Professionals on my web site at
http://www.sover.net/~devstar
Devin
Q: I have been having a killer headache over my left eye
today, my eyebrow and cheek on that side are sore, and the top part of my
nose on that side is slightly swollen. My vision in that eye is also foggy-plus
my eye even hurts some. I have been blaming this on probably sinus's, probably
FM related.
A: No, but it could be MPS related. It is always wise to
check out possible infections. But even sinus infections can set up trigger
points. Do the eye exercises--looking up can be very painful if you have
trigger points. Try pressure right under the ear--press on your neck there
with the heel of your hand. There is a TrP there that often contributes to
clogs. Check the pterygoid and masseter TrPs--cutaneous facial too. Whenever
you have time, start doing some pressure point work on your face and head.
If you feel sore spots, they are probably TrPs. Devin
SORE THROAT
Q: Would appreciate hearing from anyone who has experienced
a chronic sore throat as a symptom of FMS. What are your symptoms
and what, if anything, has given relief? Also, any ideas about
the relationship to FMS.
A: Sore throat is often secondary to myofascial trigger
points. As the TrPs tighten the myofascial constriction around normal drainage
channels, the fluid can back up and the sinuses become clogged. During the
night the post nasal drip causes sore throat. Also, sternocelidomastoid TrPs
and a few other TrPs in the area can refer pain to the back of the throat.
Devin
SWALLOWING PAIN
Q: Hi, I was wondering if anyone on the newsgroup has had
pain in the throat and chest (especially when swallowing,
it feels like something is stuck in my throat all the time
even though I drink liquids to try and clear this sensation,
the sensation is no longer gone after I do this, it has continued
for about a week.
A: This is a sternocleidomastoid trigger point. The SCM
TrPs refer pain differently depending on which portion of
this divided muscle the TrP is. These muscles can be found
moving diagonally along the side of the neck, and attaching
both to the breastbone and the collar bone. Trigger points along
the inner margin of the sternal portion (attached to the breastbone
at the lower side) refer pain to the back of the throat and
tongue during swallowing. Devin
TACHYCARDIA
Q: I've recently been dx'd with "postural tachycardia."
My resting pulse is about 120 beats per minute!!! Any connection
with FM? Need I worry about Mitral Valve Prolapse?
A: I don't think it is a cause for worry, but you should
ask your doctor if he/she thinks you have it. You should also
look for pectoralis major/minor and sternalis trigger points,
especially close to the breastbone, because they are usually
responsible for tachycardia when there is tachycardia,
especially if myofascial pain syndrome is part of the picture. FMS
can also contribute with adrenalin surges due to the dysrupted
HPA-axis, and reactive hypoglycemia can cause these as well.
Devin
TEMPERATURE
Q: Greetings, I have good improvement with cool or even
cold water as well as warm water. I swim laps. It might be
different for water walkers.
A: The water temperature is mostly a function of myofascial
trigger points--the temperature has to be warm, in a very
narrow range, from about 88 tp about 94 F, or the TrPs are
often aggravated. FMS doesn't have that problem, but can be
aggravated by heat and/or cold. Devin
TENDONITIS
Q: This is the second time that my tendonitis has flared
up.
A: Do you often feel like you have a "toothache in your
shoulder?" There is a trigger point that causes that feeling,
as well as referring the pain to the wrist. Check the area
behind your armpit, just under the rim of the shoulder blade.
That is the subscapularis TrP. You can work at it by using a
tennis ball and lying on your side on the floor. It will hurt. The
ankles--are they weak and do they give out? Or do they hurt? If they
hurt, is it both sides, around the ankles, or one side or
another? This may also be TrPs. Or it could indeed be tendonitis.
The symptoms may be similar. Devin
TINGLING & PAIN
Q: my symptoms include: 1. Pain, tingling, and muscle fatigue
in my right hand and arm . . we thought at first that it might
be carpal tunnel syndrome.
A: This is probably axillary artery entrapment by the
subscapularis trigger point.
Q: my doctor's just overlook it. It's not their feet that
go numb and hurt and pins and needles. It's something with
the nerves, maybe Devin or Dr Nye could explain why it happens.
A: It could be neuropathy, which is a technical term for
"something is going wrong with the nerves". Dr. Nye is our
neurological expert, and I defer to him on that explanation.
It could also be myofascial trigger points. These can be reversed.
If I know the total condition of the body--FMS, MPS, and
perpetuating factors, especially trigger points in the legs and feet,
I can often figure out what the pattern is. Devin
Q: I've been diagnosed with fibromyalgia and am doing reasonably
well, but recently my skin has started tingling.
A: This is not FMS, but myofascial pain syndrome and nerve
entrapment by trigger points. Superficial TrPs can cause what
has been called "The Skinache Syndrome". Devin
TENS UNIT
Q: is using a tens unit on trigger points helpful at all?
A: TENS can be helpful for some pain, but I have found it
totally useless for trigger points, as it does not provide
the contraction needed to flush the muscles. The NEMS units,
some microstim units, and galvanis stim can provide muscle
contraction. I use them myself. Devin
TRIGGER POINT INJECTIONS
Trigger point injections should NOT be done using cortisone. I
heard that
right from the lips of Janet Travell, who pioneered TrP injections
and mapped
the TrPs. Procaine is the medication of choice, according to Travell and
Simons' Trigger Point Manuals. The person doing the injections
should be very
familiar with the techniques set forth in these medical texts.
Devin
Q: My new Dr. has suggested that I undergo trigger point
injections to try to "break up" some spasms that I am having.
A: It has been shown that for people with
both MPS and FMS, TrP injections are not as effective and
don't last as long, and they hurt more. Check the article
by Dr. Hong on my website bibliography. At any rate, this
procedure is for when other methods, such as "Spray and stretch",
galvanic stim, etc have failed. Also, you must still find and deal
with the perpetuating factors. If you have reactive hypoglycemia,
for example, you must tend to that before any method of treatment
works well. Therwise, even the best of therapies won't last.
Most doctors I have spoken with, including David Simons, suggest
that it is better to avoid botulism toxin. Some TrP
injections, such as the soleus, are extremely painful and
can be disabling for a time. Your doctor should be thoroughly
familiar with the Travell and Simons texts and methods for TrP
injection therein before he does TrP injections. And he should
have exhausted other methods and helped you find and deal
with perpetuating factors. Devin
|
|
|
TRIGGER POINTS
Q: Trigger thumb in my left hand
A: This is probably a trigger point in the long thumb flexor.
According to Travell and Simons, " a bulbous enlargement of
the flexor pollicis longus tendon becomes ensnared by a restricted
flexor sheath at the head of the first metacarpal bone, where
the tendon is firmly attached to the thumb after it has passed over the adductor
pollicis and between the two heads of the flexor pollicis brevis muscle."
Check the base of the pad of the thumb, palmar side, close to the wrist.
As you press along the muscle, you will feel the trigger points.
On page 554 and 555 of "Myofscial Pain and Dysfunction: The
Trigger Point Manual" Vol I by Travell and Simons, your doctor
can find how to get rid of it for you, either by injection
or spray and stretch.
Q: My mother was diagnosed yesterday with FM. She has had
tension in her neck (constant stiffness) and achiness all
over for about 2 months now.
A: The constant stiffness is probably due to levator scapulae
trigger points. Check an area just above the inner upper corner
of the shoulder blade. There may be a lump, and should be
a trigger point right there. That is what is causing the referred
pain. this can often be relieved by tennis ball acupressure,
but you have to figure out what is perpetuating it. Trigger
points are part of MPS, not FMS.
Q: Will this go away?
A: Not by itself. You have to find the perpetuating
factors.
Q: What what would be the difference in treatment for trigger
points?
A: The trigger points of MPS are reversible, and can be
treated by "Spray and stretch" or galvanic stim, among other
modalities. These will do nothing for tender points of FMS.
The differences are covered in detail in my book and website,
and I have a two-hour video on TrPs. It is important that
your physical therapist knows the difference between FMS,
single trigger points, and chronic MPS, so that the treatment is
given in the proper order. For instance, the pectoral TrPs must
be released before the sternocleidomastoid TrPs. Furthermore, you
have to look for and eliminate perpetuating factors. Devin
Q: Devin, Do degenerative disc disease and osteo in the
shoulders, clavicle, and scapula also cause trigger points?
A: You bet. This is very well documented by Travell and Simons.
{{{}}} Devin
VULVODYNIA
Vulvodynia may be caused by a number of trigger points which can refer
pain to the area. You need a trigger point expert to find out which
one, although that can be done by elimination. I have them
on the video, but many are in internal muscles. There are
also many other possible causes. Devin
Q: I have at times a sensation that appears to be in the
perineal/vaginal area. It feels as if there is so much pressure
it is almost painful and causes me to break out into a sweat
and I have almost fainted because of this. Could this be caused
by a trigger point?
A: This is indeed probably a trigger point, although it
could be caused by something going on internally. It could
also be left over from a pelvic infection, a pregnancy or
a painful period. Groin stretches, sitting on a warm heating
pad, and electrical stim to the perineal area and area around
pelvis are all helpful. These TrPs will be in the video, but are not
in the book. Pelvic TrPs can cause all sorts of symptoms.
There is also a TrP high in the adductor magnus area, where
the thigh meets the trunk of the body, inner midleg. This TrP
can cause symptoms mimicing a severe pelvic infection, or
infection of the prostate. Devin
YEAST
Q. I would like to have explained the link between high
yeast/sugar craving/pain cycle. Is the yeast level increasing in the blood
due to the sugar diet?
A. This is often due to reactive hypoglycemia. I suggest
that you check out the book "Mastering The Zone" by Barry
Sears. Your library should have it. The carbocraving is due
to the dysfunctional insulin/glucagon ratio in the blood. Reactive hypoglycemia
can have similar symptoms to FMS, and these will go away with
proper balanced diet. Devin
ZINGERS
Q: Are you referring to the sharp jolt of pain that feels
like an electrical shock and lasts about 3 seconds (if that
long). I get them at the base of my head (where it connects
to the neck). One was so bad I spilled a cup of hot, hot coffee
all over.
A: This can be due to nerve entrapment by myofascial trigger
points. There are a number of small muscles that run along
the spine that can do this, if they have TrPs. Other nerves
can get entrapped too. Devin
|
|
|
Devin Starlanyl
http://www.sover.net/~devstar
book & video info 800-748-6273
 |
|
|
|
|