Revised September, 1999

this list may be viewed in its entirety at

http://www.tri21.org/kayasun/

http://www.downscity.com/kayasunshine/

THIS LIST MAY BE FREELY DISTRIBUTED

*anyone wishing to submit suggestions for future editions of this list, please email to Aunt Gini at: GiniKM@aol.com

http://members.aol.com/TheRagans

Site summary: Provides current information on Targeted Nutritional Intervention (TNI). Site includes an FAQ, NuTriVene-D ingredient list and dosage conversion charts, parent testimonials, photographs of Madison Lawrence, and links to other web sites that are helpful in understanding nutritional supplements, piracetam and teaching children with Down Syndrome.

http://www.altonweb.com/cs/downsyndrome/

Site Summary: A few of the topics covered at this site include newsletters, communication, early intervention inclusion, life planning, literacy, milestones, supplements, therapies and a medical series, some of which covers: Alzheimer disease, celiac disease, dentistry, feeding disorders, genetics, sleep disorders, thyroid and much, much more.

http://www.tri21.org

Site summary: Slide show of the biochemistry of certain overexpressed genes in Down syndrome. Coverage of Nutrivene-D and brief discussion of components. Links to Russian, Italian, Spanish and other languages; Dr. Leichtman’s Physician’s Information Page and more.

e-mail: swenson@tri21.org

http://www.ceri.com

P O Box 4029

Menlo Park, CA 94026

415-321-2374

Site summary: CERI is an organization which "researches the research" on supplements and "smart drugs" and then publishes informative, concise newsletters stating their findings. Steve Fowkes, the Director of CERI, is one of the US’s leading experts on "smart drugs" like piracetam, and avails himself to parents of children of Down syndrome. If you call, be sure to ask for Steve and indicate that you are a parent of a child with DS. The CERI Web site includes information on the biochemistry of Down syndrome and interviews with Dixie Lawrence-Tafoya (note: interviews are historical in nature and the TNI protocol has developed beyond that discussed in the interviews).

http://www.epix.net/~mcross/down-syn.html

Site summary: Focusing on first-person experiences, opinions, pictures and questions from those who love someone with Down syndrome. Noted in Newsweek’s "Your Child" special edition, pg. 50.

http://www.downscity.com

Mission: To provide a forum for information impacting the Down syndrome world while "opening up" the Internet to any and all members of the Down syndrome community. To attract new users to this forum, to benefit the entire community and to strengthen the Down Syndrome cyber community. Areas now available: Event Calendar; Information Services; Marketplace; Down Syndrome Directory; and Down Syndrome Personalities.

Email: webmaster@downscity.com

http://www.nacd.org

Robert J. Doman, Jr., Director

2380 Washington Boulevard

Ogden, UT 84401

801-621-8606

Summary: The National Association for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. Founded in 1979 by internationally recognized educator and lecturer Robert J. Doman, Jr., NACD designs very specific home neurodevelopmental programs for infants, children, and adults.

Site summary: Current information on TNI which has been translated into the following languages:

http://www.tri21.org/Russian/index.htm

http://www.tri21.org/Italian/index.htm

Also look for the following languages to be added:

Other languages will be added as interpretations are made available.

Biomedical, Clinical Geneticist and Pediatrician

Genetics & Disabilities Diagnostic Care Center

933 First Colonial Road, Suite 109

Virginia Beach, VA 23454

http://www.macs.net/users/lleichtman

E-mail: Lleichtman@macs.net

H. H. Dow Professor of Chemistry

Saginaw Valley State University

University Center, MI 48710

http://www.tri21.org/DrDave/

E-mail: swenson@tri21.org

Director, Cognitive Enhancement Research Institute (CERI)

P O Box 4029

Menlo Park, CA 94026

415-321-2374

E-mail: fowkes@ceri.win.net

DIXIE LAWRENCE TAFOYA (Research Consultant)

E-mail: DiLeLa@aol.com

Subscribe from: http://www.home.tbinet.org/DSFIRST

Click on DS-Nutrition Mailing List

Subscribe from: http://www.onelist.com

In the "By Name or Subject" search box, type DSTNI and click on "Find it". Click on DSTNI at the beginning of the list description.

http://www.altonweb.com/cs/downsyndrome/piraceso.html

http://www.ceri.com

P O Box 4029

Menlo Park, CA 94026

415-321-2374

QUALITY HEALTH, INC. (England)(Click on ‘Interesting Links’)

http://www.qhi.co.uk/index.htm

http://www.epix.net/~mcross/11pirace.html

http://www.altonweb.com/cs/downsyndrome/piracedo.html

http://www.epix.net/~mcross/97/Pircalc.htm

MASTERS MARKETING (England) (prescription Not needed)

Phone: 011-44-181-424-9400 Fax: 011-44-181-427-1994

E-mail: mmc@mastersint.com

HAZLE DRUGS COMPOUNDING PHARMACY (prescription required)

20 North Laurel Street

Hazleton, PA 18201

Phone: 800-439-2026 or 717-454-2670

Fax: 800-400-8764 or 717-454-4534

Ask for Bill Spear, Jr.

Free shipping service

MEDICAL CENTER PHARMACY (prescription required)

3675 S. Rainbow Blvd., Ste 103

Las Vegas, NV 89103

Phone: 800-723-7455 or 702-873-8455

Fax: 800-238-8239 or 702-873-6845

Info@mcpharmacy.com

MAR MAIN PHARMACY (prescription required)

South Bend, IN

Phone: 800-439-2466

NuTriVene-D: Available exclusively from:

Rob Pugaczewski, President

11436 Cronridge Drive, Suite W

Owings Mills, MD 21117 USA

800-899-3413

410-902-1760

Fax 410-902-1767

E-mail: ask@nutrivene.com

http://www.Nutrivene.com/

http://www.upside.org

upsidemail@aol.com

email: TNILA@aol.com

Jane Bonus Kempton, IN e-mail: hollyr@netusa1.net

Kim Cuneo Herndon, VA e-mail: undrtech@ro.com

Irene James Hull, GA e-mail: IJames123@aol.com

Jenny Marrs Paris, IL e-mail: ccunning@comwares.net

Ann Marsilio Hazleton, PA e-mail: marsilio@ccomm.com

Karen Meier Warrenville, IL e-mail: Kmeier001@aol.com

Michele Mikolosko Shavertown, PA e-mail: meeshell-2@iname.com

Gini Mullaly Mashpee, MA e-mail: GiniKM@aol.com

Tamera Ragan South Bend, IN e-mail: TheRagans@aol.com

Nikki Schmid Martinez, CA e-mail: nikncody@jps.net

Toni Slowinski Cherry Hills, NJ e-mail: TSlowin484@aol.com

Beverly Spurlock Baton Rouge, LA e-mail:pspurlo@TMCPOP.TMC.TULANE.EDU

Debi datts@home.com Alberta, Canada

Leo TRI21UK@aol.com Surrey, England

Swenson swenson@mdn.net Michigan

Clover clover4@geocities.com Montserrat, British West Indies

Alice castella@bestweb.net New York

Karyn KAUDY@aol.com New York

Donna D4MOM@aol.com Pennsylvania

Nannette skyelawr@webtv.net Pennsylvania

Linda ptlc@nashville.net Tennessee

Tamra aprldash@rev.net Virginia

Linda ldrake@cp.duluth.mn.us Wisconsin

Brett, Melissa and Cristen Ames

http://www.erols.com/bames/

Alice, Tony and Mary Alice Castellano

http://bestweb.net/~castella

Clover, David and Noah Lee

http://www.geocities.com/Heartland/Hills/8852

Dixie, Dan, Madison and Robert

http://www.angelfire.com/ca2/downsyndrometni

Jenny, Greg and John Marrs

http://www.comwares.net/marrs.index1.htm

Linda, Jeff and Nathan Drake

www.cpinternet.com/~ldrake

Lisa, Vincent and Karina Piraino

http://members.aol.com/seacilian/Karina.htm

Sandra, Rick and Sean McElwee

http://home1.gte.net/mcelwee

Tamra and April Rose Lovern

http://www.rev.net/~aprldash/index.html

Celiac Support Page: http://www.celiac.com or http://gluten-free.com

Online Gluten-free shopping: http://www.glutenfreemall.com

Apraxia Kid’s Hope Page: http://www.avenza.com/~apraxia/index.html

Autism Society of America: http://www.autism-society.org

Center for the Study of Autism: http://www.autism.com

Listserv: email to: LISTSERV@maelstrom.stjohns.edu; Message body: Subscribe

Diet/Nutrition information relating to Autism: http://www.sci.fi/~biopteri/e-index.html

Web sites: http://upledger.com/clinic.htm

http://swiftweb.com/ha/cst.html

http://www.americanwholehealth.com/library/osteopathy/cranfaq.htm

http://users.tss.net/babymassage/babyhome.htm

http://www.childbirth.org/articles/baby/infantmassage.html

Herbs For Kids: http://www.herbsforkids.com/

Uno Mas 21: http://www.unomas21.com

Poop Goop recipe for constipation: http://www.geocities.com/HotSprings/Spa/6889/poopgoop.htm

http://www.tri21.org/IEP/

http://thyroid.about.com/mbody.htm?PM=112_100_T&terms=thyroid

http://www.magicfoundation.org

National Information Center for Children and Youth with Disabilities

PO Box 1492

Washington, DC 20013

800-695-0285

E-mail: nichcy@aed.org

Internet: http://www.nichcy.org

Home Schooling Legal Defense Association

P O Box 3000

Purcellville, VA 20134

540-338-5600

Internet: http://www.hslda.org

P O Box 39

Porthill, ID 83853

Email: NATHANEWS@aol.com

Joe and Susan Kotlinski

P O Box 4088

Dearborn, MI 48126

313-581-8436

http:///www.loveandlearning.com

Email: Lovlearn@concentric.net

What makes these materials unique is the way letters/words are clearly presented to help children focus their attention. There are there parts to each learning kit. An audio tape works on vocalization and is played at naptime, bedtime or playtime and lets the child hear the words spoken in a clear, slow manner. A video tape repeats the same words visually and phonetically, again in a clear, focused presentation. Special books clearly present the same letters/words and, when used for just a few minutes each day, reinforce the audio and video tapes as well as provide a special time for parent and child to read together. Included on each video is a presentation on how to use this technique to best meet the individual needs of your child. The materials were originally developed with the infant/toddler in mind but can also be used in other situations.

P O Box 495

Charlottesville, VA 22902

888-977-8389

Email: edufun@comclin.net

This music is recommended for speech pathologists, preschool teachers, parents and anyone working or playing with children ages two-seven. The lyrics and music composition are easy for early developing sounds; for later developing sounds, the lyrics and music are more sophisticated. Available on CD and cassette tape.

All-In-One CD (item 110-100)

Timberdoodle

E 1510 Spencer Lake Road

Shelton, WA 98584

360-426-0672

http://www.Timberdoodle.com

This is the beginning course recommended for ages four and up. All-In-One teaches hundreds of words and phrases in Spanish, French, German, Japanese and English. It is an ideal beginning program for both little learners and those who are otherwise intimidated by learning a new language. It is also perfect for special needs children learning English as it requires only basic point-and-click skills. There are 27 games and multiple levels of difficulty, which makes it challenging for a wide variety of learners. Children can replay games as often as they wish.

Bow Wow House

P O Box 8659

San Jose, Ca 95155

888-899-0798

http://www.babywow.com

Email: info@babywow.com

An innovative program to stimulate babies and toddlers mentally. This program provides many pleasant sounds and clear and colorful images that can be beneficial. This is a program based on a new wave of research that helps babies to learn and to benefit from early stimulation. Your child likes to watch the screen and now they can have something interesting to view for a short time and select the items they want to watch.

Small Fry Productions, Inc.

1200 Alpha Drive, Suite B

Alpharetta, GA 30004

678-339-1990

http://www.small-fry.com

Eamil: smfryprod@aol.com

Baby's First Impressions is a fun educational video designed to help infants and toddlers learn their educational basics (shapes, colors, letters, numbers, etc.) It's different than any other video, because it uses real objects and other children's faces that a child can relate to in his or her environment. It does not use computer animation or puppets, but rather simple objects that each child can understand in a fun and exciting way. This encourages interaction with your child, instead of being a passive viewer. As a result, this teaching technique ensures a solid learning connection with your child. Each video is 32 minutes in length and is professionally produced. Babies really LOVE this video! It holds their attention for the entire length and they absorb information quickly. It inspires and educates by using bright colors, familiar objects, positive music and soft reassuring voices. Each learning section of the video is followed by a fun, interactive "Play" section, where children learn by example. The videos repeat objects on the screen several times and it has a good balance of both objects and children's faces. This helps children to quickly absorb information, while they have hours of fun learning.

Healing Childhood Ear Infections; Michael A. Schmidt, MD ISBN: 155643216X

Encyclopedia of Natural Medicine; Michael T. Murray, ND and Joseph Pizzorno, ND; ISBN: 0761511571

Babies With Down Syndrome: A New Parent’s Guide; Karen Stray-Gunderson; ISBN 0933149646; Woodbine House; 800-843-7323

Omega-3 Oils-Why You Can’t Afford To Live Without Essential Oils; Donald

Fats That Heal, Fats That Kill; Udo Erasmus; ISBN: 0920470386

How to Have a Smarter Baby; Dr. Susan Ludington; ISBN: 0553265415

What To Do About Your Brain Injured Child; Glenn Doman, David Melton; ISBN:

0895295989

Health Care Law And Ethics In A Nutshell (SERIES); Mark A. Hall and

Teaching the Infant With Down Syndrome; Marci Hanson; ISBN: 0890791031

Physician’s Desk Reference; available through Barnes and Nobel Books; on the Internet at: http://www.barnesandnoble.com

Brain Allergies; Dr. William Philpott and Dwight Kalita Ph.D.; ISBN: 0879834269

Smart Medicine For A Healthier Child; Janet Zand, Rachel Walton, & Bob Roundtree; ISBN: 0895295458

Intelligence; Michael Schmidt; ISBN: 1883319625

Toilet Training In Less Than A Day; Nathan H. Azrin and Richard M. Fox;

ISBN: 0671693808

Taught Early Learner Goes to School; Neil Harvey, Glenn Doman; ISBN: 0895296144

Goodman, Robert Coles; ISBN:0898624916

Opportunities; Sharon Hensley; ISBN: 1568570104

How to Give Your Baby Encyclopedic Knowledge: More Gentle Revolution; Glenn Doman, Janet Doman, Susan Aisen; ISBN: 0895296020

Janet Doman; ISBN:0895296004

How to Teach Your Baby to Read; Glenn Doman, Janet Doman; ISBN:0895295970

Hearing Equals Behavior; Guy Berard, Simone Monnierclay (Translator), Catherine

Autism-Handle with Care; Gail Gillingham; ISBN:1885477147

Professionals; Patricia C. Winders, PT; ISBN: 0933149816

Angel Behind the Rocking Chair; Stories of Hope in Unexpected Places; Pam Vredevelt; ISBN: 1576732509

Expecting Adam; Martha Beck; ISBN: 0812929802

Sugar Busters; Cut Sugar to Trim Fat; H. Leighton Steward; ISBN: 0694520764

Yoga for the Special Child; A Therapeutic Approach for Infants and Children with Down Syndrome, Cerabral Palsy, and Learning Disabilities; Sonia Sumar; ISBN: 096580240X

Sensory Integration and the Child; A. Jean Ayres and Jeff Robbins; ISBN: 0874241588

The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction; Carol Stock Kranowitz; ISBN: 0399523863

Child of Mine: Feeding with Love and Good Sense; Ellyn Satter; ISBN: 0923521143

How To Get Your Kid To Eat…But Not Too Much; Ellyn Satter; ISBN: 0915950839

Children of Dreams, Children of Hope; Raymundo Veras and David Malton; ISBN: 093667671X

Methyl Magic; Maximum Health through Methylation; Craig Cooney Ph.D.; ISBN: 0836235851

1-2-3 Magic; Effective Discipline for Children 2-12; Thomas W. Phelan; ISBN: 0963386