This page contains links to useful, relevant web sites. Here you'll find: organizations which offer support, information, and patient's reference guides; a collection of medical centers concentrating on neurology, neurosurgery, neuro-oncology and radiosurgery; lists of well known, respected faculties; information about various treatments; 'Encyclopedic' type medical information sites; brain tumor information literature--including helpful books that can be purchased online; chat rooms created for those dealing with a brain tumor; personal stories and support and an online support group with members from various parts of the world. Simply click on any of the following 'titles' to visit a site.  

• Brain Tumor Organizations

  American Brain Tumor Association ABTA offers information about the newest treatments, links to clinical trial listings, physician information, and support services for brain tumor families.

  The Rory David Deutsch Foundation a national foundation that funds research in medical laboratories that study pediatric brain tumors. The Rory David Deutsch Foundation has raised over $1 million for medical research. National Brain Tumor Foundation Throughout this web site you will find responses to frequently asked questions about brain tumors, information about brain tumor types, background on brain tumor treatments and rehabilitation and clinical trials.

  Pediatric Brain Tumor Foundation An altruistic organization, seeking to increase public awareness of children with brain tumors.

  The Brain Tumor Society Features research, education and support.

  The Tillison Research Center This center offers complete up to date research on any type of brain tumor and much more.

  South Florida Brain Tumor Association Contains useful research updates, an anatomy of the brain, and a personal story.

• Cancer Organizations

  American Cancer Society The largest private source of funds for scientists studying cancer, the ACS offers support, patient information and advocacy, along with countless other services.

  National Cancer Institute Answers Cancer questions, provides access to research and other useful URL's of interest.

• Medical Facilities

  MGH BT Center Here you'll find: information about different tumor types, research and education resources, and the MGH BT Center medical staff.

  The Brain Tumor Center at Duke Inludes:Neuro-oncology team members, clinical trials, adult Neurooncology programs and a family support program.

  Cleveland Clinic Foundation--Neurosurgery Clinical programs, Neuro-oncology, radiosurgery, Pediatric Neurosurgery, and more.

  University of Pennsylvania Cancer Center A wide collection of Cancer information. Also features medical journals and a helpful search engine.

  University of Pennsylvania Oncolink Disease oriented menus. Including brain tumors and pediatric links.

  Longwood Skull Base Program for the treatment of tumors, trauma & congenital defromities.

• Medical Faculties

  Dr. Henry Friedman Chief of Neuro-Oncology, Duke

  Dr. Darryl Longee Pediatric Neuro-Oncologist, Duke

  Dr. Allan Friedman Chief of Neurosurgery, Duke

  Duke Physician Directory Connects to Duke's entire medical staff

  Dr. Patrick Kelly Chairmen of Neurological Surgery, NYU

  NYU Neurology Faculty A complete list of Neurosurgery, Neuro-Oncology, and Neuropathology

  Cedars Sinai Neurosurgical Institute One of the world's most preeminent neurosurgical centers; includes Dr. Keith Black, Director of the Institute.

  Boston Neurosurgical Foundation Features Brigham and Women's Hospital Children's Hospital, Boston Dana-Farber Cancer Institute and Harvard Medical School. Includes Dr. Peter Black, Neurosurgeon-in-Chief, B&W.

• Treatment Types

  Al Musella's Clinical Trials & Noteworthy Treatments Supplies a vast amount of information regarding the brain tumors treatments, journals, web links, memorials, and much more.

  Clinical Trials University of Pennsylvania, clinical trial links and updates.

  Clinical Pharmacology Base Describes investigational products, and medications in clinical practice.

  Brain Surgery Information Center A non technical, useable description of brain surgery.

  NYU Brain Tumor Treatment Info A guide to different treatment types available.

  Harvard Neurosurgical Center Provides information on different subspecialties of neurosurgery.

  San Diego Gamma Knife Center An intro to Gamma Knife, contains a list of useful articles and web sites.

  University of Florida Radiosurgery Home page Presents a great deal of information concerning LINAC radiosurgery, a modified linear accelerator designed to focus on the tumor, including several 'real audio' informative lectures.

  Johns Hopkins Hospital Brain Tumor Treatment Provides a detailed comparison of conventional radiotherapy and different types of radiosurgery, focusing on the advantages of fractionated radiosurgery. Also provided: Brain tumor radiosurgery consultation through e-mail, and an opportunity to join the Johns Hopkins Brain Tumor mailing list.

  Vanderbilt Stereotactic Radiosurgery The Computerized Photon Knife for Stereotactic Neurosurgery

  MGH Proton Radiosurgery Features Bragg Peak Proton Radiosurgery, which reduces doses to tissue surrounding the target to a theoretical minimum of zero.

  Nomos/PEACOCK System Web Site Intensity Modulated Radiation Therapy (IMRT), an approach to conformal radiation therapy that conforms a high dose to the target.

• Medical Information & Resources

  Neurosurgery-On Call Features patient and physician resources, providing a list of neurosurgeons by region, treatment info, descriptive articles and more.

  CARECOUNSEL,LLC SM Provides a Cancer Care Quality Review through Memorial Sloan-Kettering Cancer Center for those diagnosed with cancer.

  WWW Cancer Information This ACS link page features various sources of information.

  Cancer Directory University of Pennsylvania's ONCOLINK

  MedicineNet A free medical resource, includes: medical dictionary, diseases and treatments, and pharmacy information.

  MedHelp A consumer health information library, contains tens of thousands of entries describing most illnesses & diseases.

  The Human Brain a quick look at the brain's structure and functions.

  The Whole Brain Atlas A technical demonstration of the brain's structure.

  Neurosurgeons List Provides geographical and alphabetical lists of neurosurgeons; covers the U.S and the world.

  Children's Health An educational video corporation for the benefit of parents of children with health problems.

  Familial Brain Tumor Registry Aimed at identifying families who are at high risk for brain tumors and multiple cancer risk.

  Child Cancer in St. Lucie, Fl. Features a series of articles that propose a correlation between environmental surroundings and brain tumors; also discusses an unusual number of cancer occurrences in St. Lucie, FL

  Jim Kenzig's Brain Tumor Information Other useful BT information web links.

  Al Musella's Information Links Features organizations, medical resources, personal stories and much more.

  Jim Kenzig's Brain Tumor Links Provides links focusing on specific brain tumor types.

  UK "Give Hope Resources" Lists brain tumor resources & organizations found in the UK and throughout the world.

• BT Literature

  "Making Miracles Happen" by Gregory Smith. This inspirational book covers an entire range of necessary issues that accompany a serious medical condition--overcoming the improbable or impossible; finding the 'right doctor'; dealing with insurance; making important decisions-- it can be purchased online or at your local bookstore.

  Available Books A list of relevant books that can be purchased online.

  ABTA Literature A patient's reference manual.

  Glomus Tumors An analysis of glomus tumors and its history.

• AOL Chatrooms

  Braintumor ChatMeets nightly @ 10:00pm eastern.

  BT support Meets nightly @ 10:00pm et.

  Cancer Support Meets everyday.

  Pals96Children dealing with brain tumors, directly or through a family member or friend, meets Saturday 11:00am and Monday 4:30pm eastern.

• Personal Stories & Support

  Beyond the Road's End an entire book available for free viewing or download. It tells the true story of a five-month battle with a brain tumor.

  Brain Tumor Forum A discussion area set up to provide information and support to those experiencing brain tumors.

  MT Sinai NY, Cancer Chat An interactive internet discussion group.

  Surviving a Brain Tumor Surviving a glioblastoma multiforme or an anaplastic astrocytoma brain tumor.

  Doug's Brain Tumor Details his treatment and recovery.

  Jazzy's Home Page The story of a young girl's battle against a malignant brain tumor.

  The Tommy Frasier Page A family seeking information about alternative treatments.

  Acoustic Neuroma Stories Patients sharing their experience with acoustic neuroma and various treatment types.

  4th Annual Duke Forest 5k Run/Walk a fundraiser held yearly at Duke for pediatric braintumor research.

  A Prayer and Positive Thought Page A list for those dealing with brain tumors.

  The Amy Hogan Hartman Memorial Provided by her loving family.

  The Skye Mhari Stewart Memorial Features a touching gallery of photos, poetry and experience; also includes useful BT information links.

• An Online Support Group

  There is a brain tumor support group online. Over 1,000 people-consisting of patients, friends, family members, and medical professionals- interact through this service. To join, send an e-mail message to: LISTSERV@mitvma.mit.edu Leave the subject line empty or type "NONE". Type in "subscribe braintmr" followed by your first and last name or "ANONYMOUS".

send any comments or suggestions to pritchdl@aol.com

have visited this site