This is a brief list of references meant as a starting point for those looking for infomation on premature infants. For a more complete listing, please click here. If you have any questions or problems, please contact me at MarAim@aol.com
SOURCES:
Books and other articles followed by AM can be obtained from Amazon.com Books, 549 South Dawson, P.O. Box 81410, Seattle, WA 98108-1310, (800) 201-7575, fax (206) 346-2950, http://www.amazon.com.
Books and other articles followed by BLB can be obtained from the Birth and Life Bookstore, 141 Commercial Street NE, Salem, OR 97301, customer service and catalog requests (503) 371-4445, orders (800) 443-9942, fax (503) 371-5395, http://www.1cascade.com/birthlife.html.
Books and other articles followed by CC can be obtained from Centering Corporation, 1531 N Saddle Creek Road, Omaha, NE 68104, phone (402) 553-1200, fax (402) 553-0507, http://webhealing.com/centering/.
Books and other articles followed by CF can be obtained from The Childbearing Family, 5032 Wendover Road, Yorba Linda, CA 92686, (800) 234-7405, j1200@aol.com.
Books and other articles followed by NI can be obtained from NICU-Ink, 1410 Neotomas Avenue, Suite 107, Santa Rosa, CA 95405-7533, (707) 569-1415, http://www.neonatalnetwork.com/nicuink.
Books and other articles followed by TLC can be obtained from TLC Clothing Company, P.O. Box 245, Hunt Valley, MD 21030-0245, (410) 876-9071, (800) 755-4852, http://www.tlcpreemie.com, customerservice@tlcpreemie.com.
Books and other articles followed by PTR can be obtained from A Place to Remember, (612) 645-7045, (800) 631-0973, fax (651) 645-4780, http://www.APlaceToRemember.com, mailto:info@APlaceToRemember.com.
GENERAL BOOKS
Caring for Your Premature Baby by Alan H. Klein, MD and Jill Alison Ganon, 1998. ISBN: 0062736205. AM. Purchase from Amazon.com.
For Parents of Preemies, Answers to Commonly Asked Questions, available from Meriter Hospital, Neonatology 6C, 202 South Park Street, Madison, WI 53715,http://www.medsch.wisc.edu/childrenshosp/parents_of_preemies/index.html.
Newborn Intensive Care- What Every Parent Needs to Know by Jeanette Zaichkin, RNC, MN, 1996. AM, TLC, NI. Purchase from Amazon.com.
The Preemie Parents' Companion: The Essential Guide to Caring for Your Premature Baby in the Hospital, at Home and Through the First Years, by Susan L. Madden, M.S., 2000. ISBN: 1558321349. AM. Purchase from Amazon.com.
Preemies: The Essential Guide for Parents of Premature Babies, by Dana Weschsler Linden, Emma Trenti Paroli and Mia Weschsler Doron MD, 2000. ISBN: 067103491X. AM. Purchase from Amazon.com.
The Premature Baby Book by Helen Harrison, St. Martin's Press, NY, 1983. AM, BLB. Purchase from Amazon.com.
What to Do When Your Baby is Premature: A Parent's Handbook for Coping with High-Risk Pregnancy and Caring for the Preterm Infant, by Joseph Garcia-Prats and Sharon G. Hornfischer, RN, BSN, 2000, ISBN: 0812931092. AM. Purchase from Amazon.com.
Your Premature Baby by Frank P. Manginello, MD and Theresa Foy DiGeronimo MEd., Wiley, NY, 1991. AM, BLB, CF, TLC. Purchase from Amazon.com.
Your Premature Baby and Child: Helpful Answers and Advice for Parents, by Amy E. Tracy, Dianne I. Maroney, Judy C. Bernbaum and Jessie Groothuis, 1999. ISBN: 042516506X. AM. Purchase form Amazon.com.
ORGANIZATIONS
The Alexis Foundation, P.O. Box 1126, Birmingham, MI 48012-1126, Detroit area:(248) 543-4169, toll free (877) ALEXIS-0, thealexisfoundation@prodigy.net, http://pages.prodigy.net/thealexisfoundation/THEALEXIS1.html.
Family Care Network, 103 William Howard Taft Road, Cincinnati, OH 45219-2191, (606) 331-2056.
Graduate Parent Support - NICU, Primary Children's Medical Center, Attn: Shauna Hatton-Ward, Director, 100 N. Medical Dr., Salt Lake City, UT 84113.
Hands On Preemie Experience (HOPE), Attn: Michele Reeves, 107 Willow Branch Drive, Simpsonville, SC 29680, (864) 963-9091.
High Risk Moms, Inc., P.O. Box 389165, Chicago, IL 60638-9165.
ISCU Parent to Parent, Evanston Hospital - Evanston , IL, c/o Stephanie Lerner-Ernsteen, 221 Birchwood Ave., Deerfield, IL 60015.
JT's Hand, P.O. Box 40699, Indianapolis, IN 46204-0699, (317) 767-0586, fax (317) 844-6250, http://www.jtshand.org, tanyah16@aol.com.
La Leche League, 9616 Minneapolis Ave., P.O. Box 1209, Franklin Park, IL 60131-8209, http://lalecheleague.org.
Lehigh Valley Hospital NICU Parent Support Group, c/o Colleen Ornosky, 1341-B Johnston Dr., Bethlehem, PA 18017, (610) 867-0740.
Minneapolis Children's Hospital and Clinics, Attn: Patti Reynolds, 2525 Chicago Ave. South, Minneapolis, MN 55404, (612) 813-5878.
Mothers of Supertwins (MOST), P.O. Box 951, Brentwood, NY 11717-0627, (631) 859-1110, fax (631) 859-3580, http://www.MOSTonline.org, Maureen@Mostonline.org.
National Perinatal Association, 3500 E. Fletcher Ave., Suite 209, Tampa, FL 33613, (813) 971-1008, FAX (813) 971-9306.
Neo-Fight, 4364 Idlewild Lane, Carmel, IN 46033, (317) 255-5242, http://members.tripod.com/~neofight/.
Neonatal Parents Network of Oklahoma, Inc., P.O. Box 720665, Oklahoma City, OK, (405) 949-4130.
NICU Parent Support Group, St. Joseph's Medical Center, Attn: Vicki Walker, Clinical Nurse Specialist1800 North California Street, Stockton, CA 95204.
NICU:Parent Support, Inc., 18 Lovett Road, Newton Center, MA 02159, (617) 964-8778, (800) 964-NICU(6428).
NICUP's, St. John's Mercy Medical Center, Attn: Kathy Boswell, Family Support Coordinator, 615 South New Ballas Road, St. Louis, MO 63141-8277, (314) 569-6222.
Parent Friends, Lynn Lafey, c/o Volunteer Services, Sacred Heart Hospital, P.O. Box 10905, Eugene, OR 97440.
Parent to Parent, McKay Dee Hospital NICU, Attn: Tami Bovero, 3939 Harrison Blvd., Ogden, UT 84409.
Parent to Parent of Utah Valley, c/o Utah Regional Valley Medical Center, Attn: Nancy Boldt, 1034 N. 500 W., Provo, UT 84604.
Parent to Parent - University of Utah Hospital, 50 N. Medical Drive Room 2553, Salt Lake City, UT 84132, (801) 581-2098.
Parents for Parents, St. Luke's Regional Medical Center, Attn: Niquel Thurber, Director, 190 E. Bannock, Boise, ID 83712.
Parents for Parents, Attn: Karen Rohrs RNC, MSN, St. Vincent's Mercy Medical Center, 2213 Cherry Street, Toledo, OH 43608.
Parents Helping Parents of Intensive Care Newborns, 300 Halket St, Pittsburgh, PA 15213, (412) 641-NICU(6428).
Parents of Preemies, St. Charles Medical Center, Attn: Brenda Betsch, 61561 Eastlake Dr., Bend, OR 97702.
Parents of Prematures, P.O. Box 3046, Kirkland, WA 98083-3046.
Partners in Intensive Care, P.O. Box 41043, Bethesda, MD 20824-1043, (301) 681-2708, fax (301) 681-2707.
Pediatric Adolescent Gastroesophogeal Reflux Association (PAGER), P. O. Box 1153, Germantown, MD 20875-1153, (301) 601-9541, gergroup@aol.com, http://www.reflux.org.
Pilot-A-Child Nonprofit Foundation, 23441 Golden Springs Drive #428, Diamond Bar, CA 91765, (909) 594-5544, fax (909) 598-7401, pilot-a-child@worldnet.att.net.
Precious Beginnings: Parents Supporting Parents of Critically Ill Newborns, P.O. Box 19508, Portland,OR 97280-0508, (503) 244-3350, http://www.precious-beginnings.org, info@precious-beginnings.org.
Preemie Pride, Attn: Linda Standiford, 1502 Pilgrim Lane, Finksburg, MD 21048-1413.
Preemies Power, Attn: Jennifer Gillett, 6194 S. 34th West Avenue, Tulsa, OK 74132.
Preterm Infants' Parents' Association, Attn: Rebecca O'Brien, 35 Mountridge Street, Everton Park QLD 4053, Austrailia.
INTERNET RESOURCES
For Parents of Preemies, Answers to Commonly Asked Questions, available from Meriter Hospital, Neonatology 6C, 202 South Park Street, Madison, WI 53715, http://www.medsch.wisc.edu/childrenshosp/parents_of_preemies/index.html.
An Introduction to Extremely Premature Babies, http://hometown.aol.com/Dderleth/extreme.html.
Spanish version of above page, http://www.medsch.wisc.edu/childrenshosp/Preemie_Parent_Sp/spindex.html.
Mara Tesler-Stein's Preemie Webformation, http://www.preemieparentsupport.com, docmara@home.com.
Parents of preemies support group, http://abilene.com/armc/wwwboard/messages/39.html.
The Preemie Channel, http://kingproductions.com/preemiechannel/.
Preemie Chats, http://www.preemies.org.
PreemieParenting.com, http://www.preemieparenting.com.
Preemie Parents.com, http://www.PreemieParents.com.
Preemie-child support group for parents of children born prematurely who are now 4 years or older, http://www.comeunity.cojm/premature/preemie-child/index.html.
Preemie-l mailing list homepage, http://www.vicnet.net.au/~garyh/preemie.htm.
Preemie-l Resource Website, http://www.comeunity.com/preemie/preemiepgs.html.
Preemie Partners.com, http://www.preemie.homestead.com.
Premature Baby Internet Resources for Preemie-L, http://www.comeunity.com/premature/preemiepgs.html.
Premature Baby - Premature Child, http://www.comeunity.com/premature/index.html.
Preterm birth FAQ, stuarth@newbridge.com.
Premature Infant.com, http://www.premature-infant.com.
A Primer on Preemies, http://kidshealth.org/parent/growth/growing/preemies.html.
T-Bone's Tips for New Preemie parents, http://members.aol.com/KBone91/tbone.html.
Tommy's Cybernursery, with links to premature birth, birth and parenting sites, http://www.kingproductions.com/.
After the NICU, advice for when baby finally comes home: http://www.ixpres.com/tbangs/advice.htm.