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Welcome to the AF Page Message Board Archive. This page serves as a storehouse for AF patients in search of information that was shared previously with others on the board, and was created in order to keep all of our pages loading quickly in light of increasingly heavy traffic on the 'Net.

As is the case with our regular message board, replies to postings are not threaded. This means that you must fill in the subject field labeled "RE: ______" in order for your reply to be posted as a response to a specific message. Please note that all replies to messages that appear on this page will be posted to the regular message board...

Here are what some previous visitors have posted to the message board:

Posting of Oct 1, 2002, 00:33 EST

RE: Ablation

Bob W, CO. Congratulations on successful Ablation. I wrote to you a couple times prior to the ablation because my brother has chronic afib. Since your Ablation I've tried to write but keep getting my email back. Let me know your current email address. Hope you are still doing well. I was praying for you. Bob Owen, Seattle

From: Bob Owen, WA

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Posting of Oct 2, 2002, 08:42 EST

RE: Ablation

Bob: Thanx for the kind words and prayers. I've been in NSR since my ablation 09/19 and feeling better every day. I already (last week)staarted back on my sub teaching job here in the local school district. Sorry about my e-mail address. We changed our service provider last spring and I thought everything was ok. My new e-mail address is ~~~~~@attbi.com. Would like to hear more about your brother. Again, thanx for your thoughtfulness. Bob,Co

From: Bob Wilczek, CO

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Posting of Oct 2, 2002, 08:49 EST

RE: E-mail address

Bob: I'm not sure if all my e-mail address was properly posted. So here we go again.....~~~~~@attbi.com. Bob, Co

From: Bob Wilczek, CO

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Posting of Oct 2, 2002, 09:07 EST

E-Mail Address

Bob: Something is not quite right with sending you my e-mail. So the first part of my e-mail is ~~~~~ which should be added to the posts above. I hope this works. Bob, Co

From: Bob Wilczek, CO

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Posting of Oct 2, 2002, 09:07 EST

E-Mail Address

Bob: Something is not quite right with sending you my e-mail. So the first part of my e-mail is ~~~~~ which should be added to the posts above. I hope this works. Bob, Co

From: Bob Wilczek, CO

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Posting of Oct 2, 2002, 14:46 EST

Marijuana & AF

From everything that I can tell, I must have AF. I have a doctor's appt tomorrow in which I'm hoping to find out for sure. It started about 2 years ago, but in the last year I started to frequently smoke marijuana because I have noticed that after smoking even just a small amount, my heart feels sooo much better the next day. I feel normal! I asked my doctor about it, but he had no answers since there haven't been studies done with it yet. I have tried everything from not smoking it for periods of time to cutting out caffeine to find something to help it, but within a couple of days of simply not smoking, my heart is up to it's old tricks again. The change that I notice after smoking marijuana is very significant. I was just wondering if anyone has had any experience with marijuana in connection with AF. Any response would be appreciated! Thanks!

From: Tela, WA

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Posting of Oct 2, 2002, 17:05 EST

AF and Asthema

I am 39 years old and have had AF for about 6 years, some of the bouts I have had have lasted as long as 48 hours, I am also asthematic and because of this I cannot take beta blockers, the medication I take is Tambocor(Flecainide acetate). As time goes on the bouts of AF become more frequent (once every 3-4 weeks) at the moment this is really getting me down which in turn is not doing either my heart or my family any favours. every time I go to the specialist consultant to discuss the situation I get the same answers come back in 12 months for another checkup. Can anybody give any advice on how I can help myself to deal with this problem, I have come to the end of my tether with it and do not know what to do.

From: Andrew Greenwood, United Kingdom

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Posting of Oct 2, 2002, 17:34 EST

NEW:

hk

From: hj, Select State, Province or Country

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Posting of Oct 2, 2002, 18:53 EST

NEW: Ablation Update

I had a pv ablation done 3 months ago at Loyola University Hospital here in Chicago. Unfortunately, the results have been very disapointing. Two weeks ago I was in NSR about 90% of the time. Last weekend, I did half of a 150 MS Bike Ride and shortly after went into to afib -- I've been stuck in AF for almost 4 days now. My guess is I'll have to have another PV ablation done relatively soon. It sounds like Cleveland Clinic is really the place to go for this procedure.

From: Jack C., IL

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Posting of Oct 2, 2002, 19:22 EST

RE: Andrew in England

Andrew, I don't know enough about your medical system. In the US, when given the response you have received, we would switch physicians. Obviously, you need to get an episode captured by a 10-12 lead ECG, then see a specialist (cardiologist/electrophysiologist) and start some sort of treatment. To put you off for a year, with episodes increasing frequency and probably severity, is, in my opinion, close to malpractice. Also, check with physician about taking a blood thinner to obviate the risk of stroke during episodes. Good Luck.

From: John, FL

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Posting of Oct 2, 2002, 19:24 EST

RE: AF - Asthema

Hi Andrew, I Read your note on the notice board, may I say, "I no how you feel"!! The only advise I can give through my own experience is, to give up coffee, chocolate, any thing that has caffine in it. Look at the amount of diary products you take as well. I'm on Flecainde, I have just started them after being on solatol for 12 months. I'm finding it abit difficult as well. I might be looking at having the ablution operation, I will be talking to specialist in Novemember, so you might want to check that out? As far as your family goes, my family suffer in the same way, I have two little boys, and it frustates me that there are certain things I cant do, but I try. I'm 39 as well. I dont know if this helps much, but all of us on this board know how you feel, but check out about the abulation opp. Take care, Andrew from Aus.

From: Andrew Bearman, Australia

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Posting of Oct 3, 2002, 04:41 EST

Flecainide

Dont often visit this website anymore - however having had AF for the last four years and during that time spent most of it on Flecainide (upto 300mg a day) I just wanted to say that for me it is the only drug that has anywhere near controlled AF. The only downside is perhaps tiredness and the odd flickering lights around the eyes late at night when I am particularly tired. It has worked for me. I had an attempted pulm. vein ablation back in 2000 which was unsuccessful and I had another op in March where I had three of the veins ablated. I have just ten days ago come off all meds and am hoping to see at the very least some improvement. I wish you all the very best. Kind regards. Diana Andrews

From: diana andrews, United Kingdom

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Posting of Oct 3, 2002, 18:41 EST

RE: Reply to Kelly, Ky

Hello Kelly, My advice to you is to take your son to Dr. Natale at the Cleveland Clinic for a consultation. The last thing a 16 year old needs is to be on medication, especially if he's leading an active life style. I'm at almost 2 months post pulmonary vein ablation (performed by Dr. Natale) and so far I've remained in NSR most of the time. I can say with cautious optimism that my a-fib is behind me. Dr. Natale is an extremely gifted individual, and the Cleveland Clinic has been voted the #1 cardiac care facility 6 years in a row by US News & World Report. I certainly can't argue with success, so my opinion may be biased, but for my money (actually my insurance picked up most of the cost) the combination of Dr. Natale and the Cleveland Clinic is the best medical science can offer for curing a-fib at this time. I wish you and your son success in whatever decision you make.

From: Al, Select State, Province or Country

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Posting of Oct 3, 2002, 23:16 EST

NEW:

My mom recently had the MAZE procedure done at Scott & White in Temple Texas. She is having a very difficult time with things. She has poor lungs and has had cancer twice. Now, with this procedure she has run into some major digestive complications. Anyone gone through the same type of things and if so any suggestions?

From: geoff, TX

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Posting of Oct 3, 2002, 23:24 EST

NEW: recent surgery trouble

My mom recently had the MAZE procedure done at Scott & White in Temple Texas. She is having a very difficult time with things. She has poor lungs and has had cancer twice. Now, with this procedure she has run into some major digestive complications. Anyone gone through the same type of things and if so any suggestions?

From: geoff, TX

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Posting of Oct 5, 2002, 01:04 EST

RE: VEC

I've been on amiodorone for only four months, but have noticed more aches and joint pains, especially in my hands. I've also experienced unexplained abdominal pain. I'm wondering if anyone else has had that as a side effect.

From: Jane, CA

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Posting of Oct 5, 2002, 07:10 EST

RE: AF and Asthema

Andrew I am 43 and have been suffering from AF for nearly twenty years albeit it has only been in the last five that it has been more frequent and I have had it diagnosed. I fully understand you frustration at the "come back in twelve months" responses you have been receiving. I saw three cardiologists both privately and on the NHS before I found one who came up with anything constructive. He reviewed my medication on a number of occassions when bouts of AF had become more frequent and all adjustments had positive effects. I also underwent some tests to determine if I would be suitable for cathater ablation. An ECG on the heart during a period of ectopic beats can show whether there is one sensitive location from where all your AF is triggered. If this is the case this sensitive area can be ablated through a procedure. Apologies - its a bit of a layman's description. Neither of my two previous cardiologists had ever discussed this with me. I assume you have been warned of various common triggers that can cause AF and have pobably noted a number yourself. Conact me if you would like to discuss further.

From: Simon Russell, United Kingdom

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Posting of Oct 5, 2002, 18:24 EST

Good AFIB Updated Unbiased Source

A good updated unbiased source. http://www.affacts.org/index.html

From: Dan, PA

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Posting of Oct 5, 2002, 23:12 EST

NEW: Flecainide

Flecainide has really helped me. I was heading for an Afib ablation when I went on Flecainide three months ago. I have been in NSR ever since and I work out and play a lot of tennis. Perhaps it won't last but for now I'm very thankful for Flecainide. I'm only on 50 mg twice a day.

From: Bob Owen, WA

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Posting of Oct 7, 2002, 13:20 EST

RE: E-mail address

Bob: I can't seem to get my e-mail address through to you on the message board. I'm really confused...do you have any ideas? Thanks, Bob,Co

From: Bob Wilczek, CO

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Posting of Oct 7, 2002, 18:50 EST

NEW:

Hi Iam a Senior Citizen female, found out 11 mths ago I have Ab Fib, Have been taken to ER twice with heart rate up to 230, I have tried Sotalol,Atenolol, both made me very dizzy, now on Digitek,Amiodarone, Warfarin, Still having problems, haven't seen a Cardiologist my Dr and HMO decided I didn't need one, now my DR has changed his mind and says I need to see one, (Medications not working),still waiting for approval from HMO, Dr said he thinks I need a pace maker, or to have the shock treatment, they use the paddles like when you are having a heart attack,( I think) Haven't read on the board any one mention a good Cardiologist, or treatment Centre in California, Does any one know of one? Thanks Ann

From: Ann, CA

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Posting of Oct 7, 2002, 20:45 EST

RE: Ablation

I agree with Jack and Al. The best place to go is Cleveland Clinic and the best electrophysiologist is Dr. Natale. They seem to be light years ahead in this field. I don't understand why the success rate there is so much higher than other hospitals. I had my ablation in December 2001 and I am still totally free of A-fib. I don't take any medications either. And I was supposed to be a poor candidate for the ablation, according to another cardiologist at another large medical center. I am so glad I took the risk. I was very tired of going through numerous cardioversions and several medicines. I knew it was time to try something different. I wish the same good fortune on those who are still dealing with the problem.

From: Donna Z., PA

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Posting of Oct 7, 2002, 23:13 EST

RE: Calif. Clinics

I've done some research in the past few months, and found that the Stanford Medical Center Cardiovascular Clinic is highly rated. They have five a fib specialists on staff, all doing research on this condition. I have an appt. there later this month. I've also heard of a Dr. Winkle in Redwood City, CA who is an electrophysiologist.

From: Jane, CA

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Posting of Oct 7, 2002, 23:15 EST

NEW: Publications and most interesting website!

All AF sufferers should visit the website www.af-ablation.org or go directly to http://www.af-ablation.org/news/latest/pdf/New_Ideas_aboutAF.pdf for latest informations.

From: Erich Reichardt PhD, Germany

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Posting of Oct 9, 2002, 20:24 EST

RE: email address

Hello Bob W. I tried again to email you direct last night and it came back. All that shows on the first part of you address is ~~~~~. I wanted to ask you about the cathater used. Because it was larger was that the reason you had the pain? Did you ever talk with Dr. Natale or CC about the French approach using Semental Ablation using Pulm Vein Potentials vrs the Circumferenial Ablation used at CC? Also, are you still NSR and any after affects or problems? Is you life a lot better now it's all over? Please try to email me directly so I can forward to my brother who had chronic afib. robertv777@aol.com. Thank you.

From: Bob Owen, WA

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Posting of Oct 10, 2002, 13:08 EST

NEW: AF TO VF TO IMPLANT

I thought I'd check in and tell you folks what's happened to me in the last few months. Afib got worse, then went into V-tach, then died in front of my house. The EMT crew hit me with paddles & M-M resuscitation. Fortunately, I'd been on this board & reading & studying for over a year. I knew what to do and where to go. Went to my preselected cardio the day after hospital release, set appmt for Medtronic II VR implant, got a catherization the next week & had heart failure again. Again with the paddles and M to M. Implant the next day, 5/9/02. Just went in for my 4,000 mile checkup two days ago and all is well. The Medtronic has cardioverter/defibrillator plus pacer so I'm covered from all sides now. Have to take amiodorone and it fouls up my balance, sleep and have to stay out of the sun here in FL. Side effects not so good, but better than the alternative. Have only had Afib a couple of times after a martini with dinner the night before. That's it. Pacer works when needed so heart keeps beating, have had no need of cardioverter or defibrillator (ZAP machine). Sleep time is improving as I begin to believe I may really have some life left to live. FYI. Good luck to all. Dennis

From: Dennis, FL

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Posting of Oct 11, 2002, 00:22 EST

RE:

Hi Dennis, So sorry to hear about your past health issues,hopefully everything has resolved and your on the road to recovery.What caused the v-tach? Do you have heart failure along with the a-fib? What is your EF(ejection fraction)? waiting to hear from you------allie

From: Allie, IL

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Posting of Oct 11, 2002, 12:48 EST

RE: Dennis

Dennis, I am happy to hear that you are doing so well. Amiodarone has a bad reputation, but obviously it can be helpful in some situations. Probably the pacemaker is playing a large role in your improvement also. I am also doing well and have been in straight sinus now for nearly five months. My health has generally improved in many ways, icluding the afib, since I dropped dairy products over a year ago. The absence of afib is certainly not due to an absence of stress because I have experienced plenty of stress lately, but my heart continues to tick along in sinus. I wish you many days of sinus and hope you will stay away from those martinis!

From: Mary, WA

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Posting of Oct 12, 2002, 02:04 EST

RE: DENNIS

I'm so sorry to hear about your frightening ordeal you went through, but since you got your new medtronic pacemaker that should keep you on the mend. Take care and God Bless You. Geri

From: Geri, CA

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Posting of Oct 13, 2002, 19:32 EST

Terrified of Flying

Hello. I was diagnosed as having AF when I was about 24. For years I experienced horrible sensations but my doctor put this down to panic attacks (which many of these episodes probably were). The first time I can recall having an episode was when I was on holiday in Spain. In hindsight I can see how too much sun/dehydration, alcohol, dancing into the wee hours followed by a puff on an asthma inhaler pushed my heart into an abnormal rythym. My heart seemed to stop momentarily, then there was an extremly heavy thump and my heart began racing like a steamtrain - easily 300 bpm. This has been repeatedly dismissed by various doctors but it really was so. As I have already said, my condition went undetected for years. The resulting skips, flutters, thumps and palpitations practically turned me into an agoraphobiac. I could barely leave my hometown - sometimes leaving my own home seemed too much. Then one day my heart rythym went into freefall. I hadn't been eating or sleeping well. I was doing some mild excercise when - boom. When I lost my rythym before it returned after a few seconds - a minute or two at most - but this time it wouldn't disappear. I rushed to hospital thinking I was having a heart attack (or about to have one) and going to die at any moment. After tests the A&E doctor told me I had had an AF episode. Subsequent visits to my GP made me more aware of the condition. I experienced mixed feelings - apprehensive about the implications of AF combined with a strange sense of relief that there was something wrong and that it wasn't simply panic attacks. My AF has been fairly well controlled. I had been on beta-blockers and flecainide but my doctor has gradually weaned me off both of them. I seem to have come full circle. He now believes that whilst I do occaisionally have AF periods the vast majority of my irregular/pacy heart rythyms are due to harmless, unrelated ectopic beats and panic attacks. Unfortunately I still feel extremely vunerable. I can barely pass through my self-imposed safety zone. If I do manage to travel I constantly monitor my heart, become fearful if I don't know there is a hospital nearby and can't relax until I return to my safety zone. I did manage to make a couple of flights last year (after years of avoiding the situation), however I spent both in a constant state of near terror. I have cancelled two holidays this year and I really can't see how I'll be able to get on a plane again. The thought of having a prolonged AF attack on a long flight absoloutely petrifies. I really do think that the stress of such a situation could kill me (even if the actual AF episode wouldn't). Sorry, to have rambled on. I only intended to ask other people with AF how they coped with flying - but this is the first I've spoke to people who know exactly how I feel when my heart kicks off. Best regards, Josey Rowan

From: Josey Rowan, United Kingdom

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Posting of Oct 15, 2002, 20:15 EST

NEW: Geri, IA; Mary, WA; Allie, IL

Ladies, thank you for your great responses. I feel better already. Geri, CA: Thanks for your good wishes. Mary, WA: Thanks Mary, much of your counsel has kept me going for a long time. I'm very happy you've been in sinus for so long and hope it continues forever. The amiodorone keeps my AF in line and there'll be no more martinis before dinner, not even one. Allie, IL: Yes the Vtach led to heart failure and was a result of the AF I've had so long plus moving a little too fast trying to do too many things at once. Patience and pacing are unsung virtues. I believe my last EF was 15% to 25% (or maybe 25% to 35%). They couldn't get a good reading for some reason or other. Thanks for the advice and information from each of you and many others over the last year or so. I've tried to find another board dealing with implant problems, but the ones I've found so far don't seem to have the quality or knowledge base I've found here. Thanks again, good luck to you all and God Bless. Dennis

From: Dennis, FL

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Posting of Oct 15, 2002, 22:07 EST

RE: Radio Frequency Ablation

Elizabeth, I would advise you to contact the Cleveland Clinic and arrange an appointment with Dr. Natale at (800) 225-2273 ext. 44293. The Cleveland Clinic is considered the number one heart hospital in the United States and Dr. Natale is, in my opinion, the number cardiac electrophysiologist for treating heart arrythmias. Dr. Natale has a 80% success ratio on the first ablation for A-fib patients and if he has to repeat the ablation, it goes up to 95%. His thinking is to correct the A-fib so that when a patient leaves his goal is to correct the condition so that the patient will not need drugs or a pacemaker. He is one of the few electrophysiologists that is capable of ablating the pulmonary veins where 94% of arrythmias originate. I had atypical atrial flutter and had an ablation done by him in August and it appears that he has corrected my problem. I just sent another friend there who has had A-fib for 18 years and he just had the procedure yesterday. I highly recommend Dr. Natale and the Cleveland Clinic. Feel free to mention my name when you call them. Linden LaViano

From: Linden LaViano, CA

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Posting of Oct 16, 2002, 00:57 EST

RE: Josie: Fear of Flying

Josie, I think that afib and panic attacks are easily confused because of similarity of symptoms. When my afib began nineteen years ago, I think episodes of afib and tachycardia often triggered what I was told by doctors were panic attacks. Unfortunately none of these doctors thought about giving me an ECG to find out if abnormal activity was actually occurring in my heart along with the symptoms of panic attack. Over the years of afib, I have learned that afib will not kill me because here I still am after at least a hundred afib episodes! As a result, I no longer experience panic attacks when I feel tachycardia or ectopic beats begin. In fact, I remain quite calm and go about my life. I think that is the key idea. If you have no other heart problems in addition to afib, you need not worry about dying from afib, and that knowledge should help you fight the panic as it helped me. Also, since afib won't kill you either on the ground or in the air, having afib while on a flight would not be any more dangerous than having afib on solid ground. Some people report that the altitude predisposes them to afib, but I don't know if that is a proven fact. I used to think that altitude was an afib trigger for me because I experienced afib every time I visited a mountain retreat that I own. However, since I have now been in sinus for five months and have visited my high altitude mountain place frequently, I no longer regard altitude as a trigger. Of course, there is a great difference between mountain altitude and flight altitude, but if your doctor approves of your flying, I don't think you should allow fear to hold you back. Feel the fear and do it any way. (provided, of course, that the activity really is safe) That philosophy helped me to overcome irrational fear associated with panic attacks.

From: Mary, WA

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Posting of Oct 16, 2002, 02:45 EST

NEW: New To AF

Wow, I finally found a site in which I everyone expresses their true fellings. As I read some of the messages I kinda get scared that my symptoms may worsen over time. I came to know what AF was last December (2001). I was out on a relatively normal date with my girlfriend and once we got back to my place, I started to feel as though my heart was about to jump out of my chest. I've never experienced anything like that before. I was hospitalized for an overnight observation. I went to my cardiologist and he prescribed Toprol. After about a month in a half, I felt better and I did not have anymore "episodes". I took myself off of the meds and felt no symptoms up until last week. I read somewhere that I could take asprin and it would help with preventing blood clots (my biggest fear). Is this true??? Have anyone one else try this same type of "therapy?" Since my episodes do not "fire up" that often, should I continue in this manner and hope my symptoms don't get worse. Should go back to the cardiologist and find other treatments or alternative placebos??? What do you think?

From: Mike Powell, GA

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Posting of Oct 16, 2002, 13:10 EST

NEW: Vagal AF

I was just wondering if anyone has any info on the success rate of Vagal Af when having an ablation.Im vagal type and have read we have a less succress rate then other types.Mine always occur at night.Please pass on any info should you have any.Or any other Vagal types which have had an abalation done....Thanks

From: FRANK, Ontario

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Posting of Oct 16, 2002, 22:24 EST

RE: Dr Wilbur

My son had WPW fibrillation in high school and Dr. Wilbur performed an ablation that cured it completely. I wish this procedure was available for other types of A-Fib because my husband is suffering from it terribly.

From: Marilyn Higdon, IL

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Posting of Oct 18, 2002, 13:06 EST

NEW:

I was diagnosed with AF 10 years ago when I was pregnant with my son. My OB/GYN said that it was only temporary and would go away. It never did. It only became much worse. My question is Can this be associated with hormones? My AF seems to act up during certain times of my menstrual cycle. Most women get sore breasts right before my AF acts up. Then right after it will act up for 2 or 3 days straight, then I am fine until the days before all over again. Does anyone else have the same problem? Or am I just crazy?

From: Paula, PA

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Posting of Oct 18, 2002, 17:38 EST

the cure?

what the heck is "the cure" that you talk about? Details, please.

From: David, MA

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Posting of Oct 18, 2002, 20:26 EST

NEW: Abrupt Cessation of Afib

I had been experiencing afib since 1996. The occurences followed the usual temporal profile with one event every 3 months, then each month then weekly and so on. Approximately 5 months ago my wife decided to go on a diet and since I was a little over weight I started dieting as well. After I lost approximately 10% of my body weight, I noticed that the period between bouts of Afib gradually increased to the point where I have not had an episode for over 3 months. Has anyone on this list had a similar experience?

From: Skip Mathewson, Ontario

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Posting of Oct 19, 2002, 12:24 EST

NEW: COUMADIN/HAIR LOSS

For those of you who are on Coumadin, have you experienced any exceptional hair loss while washing your hair but not when hair is dry? I know that it is normal to lose a certain amount of hair, but I notice that hair loss is one of the side-effects of Coumadin. In my case, I have noticed while washing my hair, I get some loose hair in between my fingers and more in the drain of the shower than the usual amount. If so did you stop the Coumadin or did you find a remedy? Your comments are appreciated. geri

From: geri, CA

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Posting of Oct 20, 2002, 02:48 EST

RE: Geri: Coumadin

Geri, I have noticed greater than usual hair loss of the kind you mention (excess in my hands and in the drain) but I had not connected this with Coumadin. It is not a problem because my hair appears as thick and full as ususal when dry, but then I have always had a very thick, full head of hair. New hair must be quickly replacing the lost hair. When I asked the woman who has been cutting my hair for years if my hair seems thinner, she said she doesn't notice that it's thinner. I take a very small dose of Coumadin (2.5 m.g. daily), so I don't know if I can relate the hair loss to the Coumadin. I wouldn't stop taking Coumadin because of hair loss, however, because I would rather have thin hair or no hair at all than to have a stroke!

From: Mary, WA

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Posting of Oct 20, 2002, 13:20 EST

RE: RESPONSE TO MARY, WA. RE COUMADIN

Thanks Mary for your reply. I take 2.5mg. of coumadin 4 days a week and 5.0 three days. I have been on it for about 4 years now. I also have thick hair and never had a problem, but I could see a little difference. My thyroid checks out so it isn't that, but I've read that one of the side-effects of coumadin is hair loss. I appreciate your reply and it is also the sentiments of my daughter-in-law. Geri

From: Geri, CA

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Posting of Oct 20, 2002, 17:07 EST

alternative to coumadin

Omega3 oils get into the blood platelets and make them less likely to clot. You can get Omega3s from certain foods such as salmon and mackerel (but they must be wild, not farm raised, because the omega3s in the fish come from algae that the wild fish eat), english walnuts, and others. I eat several of ounces of salmon just about every day. I don't know exactly how effective this is, and it's probably not an alternative to coumadin, which acts earlier in the clotting cascade, but I'm sure it gives me a bit of an edge. I do this on top of taking an aspirin every day.

From: david, MA

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Posting of Oct 20, 2002, 20:45 EST

RE: Geri and Mary

Hi, I have been on coumadin almost 2 yrs. still have blood drawn every week. I have not noticed hair loss, but did with amiodarone and other beta blockers, also cholesterol meds, which all had to be changed..I have had 3 TIA and 1 stoke, thank God nothing major, but a wig ( if necessary) is better then taking a chance on having another stroke...best to all

From: Amelia, MD

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Posting of Oct 21, 2002, 00:32 EST

RE: coumadin

Geri - I have taken coumadin for one year now and have definitely noticed my hair thinning. It took about 4 months from the start of the medication to notice. I personally think it's poisoning my hair follicles. I take the same amount as you do. It's very depressing but better than a stroke.

From: Jean, CA

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Posting of Oct 21, 2002, 00:45 EST

RE: AMELIA AND DAVID

Thank you both for your reply to my concerns regarding hair loss and Coumadin. I do take a very small dose of Atenolol which is helpful to me. I would like to know David where you buy the wild salmon. I also eat a lot of fresh salmon per week, but I don't believe it is wild as it is either Alantic salmon or it is from Alaska. Best to you both. Geri

From: Geri, CA

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Posting of Oct 21, 2002, 06:08 EST

RE: Tikosyn

My husband was placed on Tikosyn October 29, 2001. He converted to normal sinus rhythm within 24 hours and stayed in NSR until March 14, 2002. I don't know what to tell you about the side effects. He experienced some side effects but we found out it was from another drug he was taking for another medical condition. Since he started both meds around the same time, I wasn't sure which was causing them at first. Anyway, my husband went into the hospital on March 14 and just when they were going to shock him he went into NSR on his own. He was released from the hospital on March 17 and when he went to the VA on March 18, he was back in A fib. He has been in A fib ever since. He has tried every medication and we were told to try the MAZE. The problem with the MAZE is that for some patients it can cause cognitive problems. Apparently when you are put on the heart and lung machine, some people have been known to have cognitive problems thereafter. My husband has cognitive impairment (we believe due to his many heart problems and TIAs) and so we are still searching for a way to get him into NSR. Don't know if this helped you or not. Please note that my husband was very athletic. He served in the military for over 23 years and was physically fit. In the past year, he couldn't do very much exercising without getting fatigued. He took a treadmill test about a month ago and his heart rate was up to 147bpm in just three minutes. Hope this info helped.

From: Elaine, FL

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Posting of Oct 21, 2002, 06:23 EST

RE: Jody - Meds making things worse

Hi! My husband was diagnosed in October 1992 with A fib during a routine physical exam. He has tried every medication possible and had three ablations to correct the atrial flutter he was experiencing as well. Two weeks after his last A flutter he went into A fib. In October 2001 he went on a new medication called Tikosyn which kept him in NSR until March 2002. He was in the hospital for three days. The day after he got out of the hospital he was back in A fib. His cardiologist at the VA put him on Diltiazem and I've been told that will control his heart rate. Diltiazem keeps the heart at under 100bpm. However, my husband has had a few times of 105bpm. He is still in A fib. I've noticed my husband is fatigued a lot and I don't know if it's the medications he is taking or not. He still complains about feeling lightheaded and having a "buzzed" feeling. Don't know if this helped you or not.

From: Elaine, FL

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Posting of Oct 21, 2002, 06:42 EST

RE: Anti-depressant and Tikosyn

Hi! My husband was on Zoloft from January 2000 until January 2002. He was placed on Aricept in September 2001 because of memory problems and he started Tikosyn on October 29, 2001. As I learned more about my husband's medical condition (cognitive impairment) I asked him to go off the Zoloft. My concern was that he was already taking one psychotropic drug (Aricept) and did not feel the Zoloft was helping. As it turned out, I learned that Aricept had negative side effects and my husband went off of that and went on Exelon. My husband went off the Tikosyn in April after consultation with his EP. He went into A fib in March 2002 and was hospitalized for three days. He then got out of the hospital and the next day went back into A fib. We had hoped the Tikosyn would kick him back into NSR but it didn't. So, after a month, he went off the medication. Now, he's taking Diliazem which controls the rate but he's still in A fib. Hoped this helped.

From: Elaine, FL

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Posting of Oct 21, 2002, 06:55 EST

RE: Charles in CA - Memory problems

Hi Charles! I read your message and am intrigued about something. My husband had memory problems and we got it checked out. He has cognitive impairment, not otherwise specified. One doctor mentioned that because of all the TIAs, my husband may have subdural embolic disease or something to that effect. We always thought that because of the numerous problems he had been having with his heart (ie. Hypoxia, TIAs, 3 separate ablations for A flutter and numerous A fib episodes) that it caused the memory problems. For awhile, the doctors had us convinced that it might be Alzheimers. My husband is only 60. He was 58 when we noticed the memory problems. His cognitive impairment is worse when he is in A fib. In any case, I don't know that you have what my husband has. We had to go to a Memory Disorder Clinic to find out if it was or was not Alzheimers. We were pleased to learn that it was not. My husband also had a PET scan done on his brain. He was in the military and had shrapnel in his head. The PET scan was not much help. It said further clinical diagnosis is recommended. That's when we went to the USF Memory Disorder Clinic. My husband is still in A fib.

From: Elaine, FL

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Posting of Oct 21, 2002, 12:59 EST

RE: Elaine

Hi Elaine--fortunately for me, I do not have the same issues that you have described. My perceived memory problems are slight but are most likely due in some measure, to one or both of my present medications; Toprol (50mg x 1 daily) and Tambocor (100mg x 2 daily). I seem to have slight short term memory issues but nothing that has been caused by TIAs. You say that your husband's memopry problems seem to get worse during AF episodes--just thinking logically, I wonder if that could be due to a reduced blood flow during AF. In my situation, when I have an AF attack, I tire easily, attributed I believe to lack of oxygenated blood--due to the inefficient pumping action of the heart while in AF. I wish you luck in the future course of your husband's treatment.

From: Charles, Select State, Province or Country

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Posting of Oct 21, 2002, 14:11 EST

RE: David The Cure

This is the Maze Fax board, I had the Maze on March 1, 2002 and have not been in a-fib since, and with the exception of asprin I have been off all heart meds since the day before surgery. Would I go back no, its great not worring about all the bad feelings that I had while dealing with a-fib. There are many treatments out there, you need to research and find the best treatment for you. I wish you luck in finding it. Check the {Maze Alumni and those thinking of it) it will give you a lot of information. Finding your answer is up to you. ch and read

From: mary, Select State, Province or Country

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Posting of Oct 21, 2002, 20:28 EST

NEW: Ablation, Cleveland Clinic

Hi Everybody: Greetings from beautiful Colorado. Today I am 32 days post ablation and still in NSR! Just returned from a visit with my local cardiologist and he was totally amazed with my rhythym strip and all other vital signs. He is still not a true believer in PV Ablations. I feel great and back to my substitute teaching job. Just want to say thanks, thanks and thanks again for all of your thoughts and prayers. I go back for my follow up in December. Right now, all I can say is God Bless America, and God Bless Dr. Natale and the CLEVELAND CLINIC! Bob Wilczek, Co

From: Bob Wilczek, CO

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Posting of Oct 22, 2002, 00:02 EST

RE: Jean - Ca.

Thanks Jean for your reply to my concerns of hair loss while on Coumadin. Yes, it is better to be on the Coumadin than to have a stroke. Best wishes.......

From: Geri, CA

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Posting of Oct 22, 2002, 14:38 EST

RE: av-node ablation for treatment of a-fib

don't do it!!!!, there are many other options other than av-node ablation. I work with an e.p doc that does 2-3 chronic a-fib ablations per day. we have never done an av-node ablation.

From: mark, CA

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Posting of Oct 22, 2002, 19:47 EST

RE: ablation, Cleveland Clinic

Bob, congratulations - glad to hear you're doing so well. I met with an E.P. yesterday here in Houston, and I'm going to have the PVA sometime before the end of the year.

From: Dorothy , TX

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Posting of Oct 22, 2002, 21:22 EST

Ablation, Cleveland Clinic

Dorothy: My thoughts and prayers go out to you for a very successful ablation. Just curious.....what hospital? Bob, CO

From: Bob Wilczek, CO

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Posting of Oct 23, 2002, 10:20 EST

NEW: Meds have failed

I have had afib for approx. 10 years. I have been on all medications, now on Tykosin for about a month and it is failing. Meds would last about a year with increases in dosage. There are no new meds available. I am considering the MAZE procedure and ablation with pacemaker. I'm very frustrated by all of this and am trying to make an informed decision. I travel internationally and very frequently. Am told that pacemakers and the security devices(walk though and wands) cause pacemaker problems and would have to be hand searched (ok if it's my wife but no thrill with others). I'm sure others have considered these alternatives, any experiences would be helpful. I'm having a hard time with this now...thanks

From: robert evans, NC

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Posting of Oct 23, 2002, 13:20 EST

RE: Meds failing

Robert--are you considering a PV ablation? You did not list it with the maze and the ablation/pacemaker options. Based on the latest info. I have, in addition to many on this board who have benefited from PV ablation, I think you ought to at least give that alternative due consideration. The maze seems to work well but it is open chest surgery bringing all of the risks associated with open heart procedures. Ablation with pacemaker--I assume you mean AV node ablation--causes irreversible destruction of the pacing node in your heart which is why a pacemaker is required. It is also my understanding that the AF does not necessarily go away with AV node ablation--the heart may still quiver but the pacemaker allows for a strong heartbeat, reducing the unpleasant and exhausting effects of AF. Each of us needs to make a personal decision for our course of treatment and I wish you good luck no matter what you decide but I just want to be sure that you consider ALL options, particularly since the results on PV ablation are getting better almost daily.

From: Charles, CA

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Posting of Oct 23, 2002, 17:37 EST

RE: ablation at Cleveland Clinic

Hey Bob, I am glad to hear that you are doing so well after your ablation. I agree with your praise for Dr. Natale and his staff at CC. I am now into my 5th month and still no afib. and of course no med's.

From: Wayne Cook, NE

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Posting of Oct 23, 2002, 20:44 EST

RE: ablation, Cleveland Clinic

Bob, I tried to e-mail you but it came back as "undeliverable". I appreciate your good thoughts and am glad your PVA went so well. I am scheduled for next Thursday (Halloween) and all of a sudden it's, oh my gosh what am I doing. I'm off amiodarone because of side effects so I just keep visualizing what it was like the last time I was off it, with 5 days in the hospital going in and out o a-fib. Again, I really appreciate your good thoughts, and would appreciate any input you can give me about what it was like to go through it. (I'm probably going to have to be put out because of back problems.) Dorothy

From: Dorothy, TX

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Posting of Oct 24, 2002, 13:59 EST

NEW: DEALING WITH AF

HI, MY NAME IS KIM, I AM 32 YEARS OLD AND HAVE JUST FOUND OUT THAT I HAVE AF. THE DOCTOR SAYS ITS A SECONDARY CONDITION CAUSED BY MY CARDIOMYOPATHY. LET ME SET THE STAGE, I HAD 2 HEART ATTACKS IN 2000,HAVE HAD 4 STENTS PLACED, CHF, CARDIOMYOPATHY, MITRAL VALVE PROLAPSE, AND NOW HAVE AN INTERNAL DEFIBRILLATOR PLACED FOR V-TACH. MY DEFIBRILLATOR KEPT GOING OFF AND WHEN I WENT TO THE DOCTOR, HE NOW INFORMS ME THAT I HAVE AF. IN READING RESEARCH ON AF, I NOW KNOW WHY IVE BEEN FEELING LIKE SH--! ALL THE TIME NOT TO MENTION DEPRESSED AND SCARED TO DEATH OF DYING EVERY TIME I HAVE AN EPISODE.I WAS WONDERING IF ANYONE KNEW IF ANYTHING COULD BE DONE FOR ME OTHER THAN MEDICATION IF I HAVE ALL OF THESE OTHER PROBLEMS. WOULD ALSO LIKE TO KNOW HOW TO DEAL WITH THE DEPRESSION THAT COMES ALONG WITH ALL OF THIS. I HAVE THREE SMALL CHILDREN AND IM FINDING THAT THE ONLY THING THAT KEEPS ME FROM GOING OVER THE EDGE IS THEM. ANY HELP, ADVICE, OR JUST PLAIN FRIENDSHIP AND UNDERSTANDING WOULD BE GREATLY APPRICIATED. THANKS FOR LISTENING, KIM

From: KIMBERLY ADAMS, CA

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Posting of Oct 24, 2002, 14:18 EST

NEW: DEALING WITH AF

HI, MY NAME IS KIM, I AM 32 YEARS OLD AND HAVE JUST FOUND OUT THAT I HAVE AF. THE DOCTOR SAYS ITS A SECONDARY CONDITION CAUSED BY MY CARDIOMYOPATHY. LET ME SET THE STAGE, I HAD 2 HEART ATTACKS IN 2000,HAVE HAD 4 STENTS PLACED, CHF, CARDIOMYOPATHY, MITRAL VALVE PROLAPSE, AND NOW HAVE AN INTERNAL DEFIBRILLATOR PLACED FOR V-TACH. MY DEFIBRILLATOR KEPT GOING OFF AND WHEN I WENT TO THE DOCTOR, HE NOW INFORMS ME THAT I HAVE AF. IN READING RESEARCH ON AF, I NOW KNOW WHY IVE BEEN FEELING LIKE SH--! ALL THE TIME NOT TO MENTION DEPRESSED AND SCARED TO DEATH OF DYING EVERY TIME I HAVE AN EPISODE.I WAS WONDERING IF ANYONE KNEW IF ANYTHING COULD BE DONE FOR ME OTHER THAN MEDICATION IF I HAVE ALL OF THESE OTHER PROBLEMS. WOULD ALSO LIKE TO KNOW HOW TO DEAL WITH THE DEPRESSION THAT COMES ALONG WITH ALL OF THIS. I HAVE THREE SMALL CHILDREN AND IM FINDING THAT THE ONLY THING THAT KEEPS ME FROM GOING OVER THE EDGE IS THEM. ANY HELP, ADVICE, OR JUST PLAIN FRIENDSHIP AND UNDERSTANDING WOULD BE GREATLY APPRICIATED. THANKS FOR LISTENING, KIM

From: KIMBERLY ADAMS, CA

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Posting of Oct 24, 2002, 14:20 EST

NEW: DEALING WITH AF

HI, MY NAME IS KIM, I AM 32 YEARS OLD AND HAVE JUST FOUND OUT THAT I HAVE AF. THE DOCTOR SAYS ITS A SECONDARY CONDITION CAUSED BY MY CARDIOMYOPATHY. LET ME SET THE STAGE, I HAD 2 HEART ATTACKS IN 2000,HAVE HAD 4 STENTS PLACED, CHF, CARDIOMYOPATHY, MITRAL VALVE PROLAPSE, AND NOW HAVE AN INTERNAL DEFIBRILLATOR PLACED FOR V-TACH. MY DEFIBRILLATOR KEPT GOING OFF AND WHEN I WENT TO THE DOCTOR, HE NOW INFORMS ME THAT I HAVE AF. IN READING RESEARCH ON AF, I NOW KNOW WHY IVE BEEN FEELING LIKE SH--! ALL THE TIME NOT TO MENTION DEPRESSED AND SCARED TO DEATH OF DYING EVERY TIME I HAVE AN EPISODE.I WAS WONDERING IF ANYONE KNEW IF ANYTHING COULD BE DONE FOR ME OTHER THAN MEDICATION IF I HAVE ALL OF THESE OTHER PROBLEMS. WOULD ALSO LIKE TO KNOW HOW TO DEAL WITH THE DEPRESSION THAT COMES ALONG WITH ALL OF THIS. I HAVE THREE SMALL CHILDREN AND IM FINDING THAT THE ONLY THING THAT KEEPS ME FROM GOING OVER THE EDGE IS THEM. ANY HELP, ADVICE, OR JUST PLAIN FRIENDSHIP AND UNDERSTANDING WOULD BE GREATLY APPRICIATED. THANKS FOR LISTENING, KIM

From: KIMBERLY ADAMS, CA

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Posting of Oct 24, 2002, 15:24 EST

RE: Kimberly

Kimberly: My heart goes out to you. Generally speaking afib will not kill you. A side effect of afib is a blood clot, this can kill you. If you are on blood thinners this will minimize the possibility of a clot. I have had afib for 15 years. I am at the point where medication is useless. My doctor is giving me an ablation December 18. Over the last year his ablation success rate is very high. If you are interested Dr. Platt is one of the best doctors for afib. He practices at Loma Linda medical center (near San Bernardino) and Pomona Valley Hospital. Email me if you need more info or comforting. God Bless

From: Henry, CA

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Posting of Oct 25, 2002, 01:38 EST

NEW: AF and stress

I have been recently diagnosed with AF in June 2002. I am still trying to get on a medication that will keep me out of AF. I am allergic to Verapamil... I tried Trophyl, Triazac, and am now on Sotalol... but have had to double the dose, as of today and still dont know if it will work... I have Lone AF , I am 58. I wonder if episodes of AF can be stress related...my husband has been unemployed for a year, and I have financial stress, my cardiologist said that the rate can be affected by stress but not the AF itself.. Can anyone share info regarding stress and AF?

From: PAT Z, CA

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Posting of Oct 25, 2002, 07:08 EST

RE:

Pat. There are numerous triggers for AF and what affects one person might not necessarily affect another, but in my husband's case, stress has always been the number one reason for going into AF. We all suffer stress in our lives but how we deal with it is important. My husband tries really hard to avoid getting worked up about things that would have previously worried him and as a result, he has now been AF free for 18 months and has reduced his level of sotalol to half the normal adult dose. He also eats sensibly and avoids alcohol but I really feel that for him, these measures wouldn't be enough if he was still allowing himself to get stressed. Good luck.

From: Sue, United Kingdom

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Posting of Oct 25, 2002, 12:37 EST

RE: alternative to coumadin

On topic of Omega 3's: Here is reply from son Jon on farmed vs wild. He manages a fish store. It does'nt make a difference if fish is farmed or wild. Salmons range in Omega 3's from .6 to 1.4grams per 3.5 ounce servings. King and sockeye salmons have the most and Atlantics have the least. But just a few servings a week is plenty to do the job. Other fish with high levels of omegas are mackerel(2.3) herring(1.7) bluefish (.8) anchovies(1.5). tuna 1.2 oysters 1.0. bass 1.0 etc.. jon

From: Bob Blood, MN

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Posting of Oct 25, 2002, 13:37 EST

RE: VEC Afib PatientNJ

Very interesting. I have been on amiodarone 3-1/2 years (with the exception of 3 months) when I ended up in the hospital with A-Fib. I stopped taking it a week ago and feel so much better. And its raining here in Houston, and that usually affects my aches and pains. I am having a PVA on 11/7 at St. Lukes in Houston, had my cardiac scan yesterday which just assured me more that I am making the right decision. My veins are shot from hospitalizations. Good luck with your PVA. Keep us posted and I would appreciate hearing from anyone who has had one or is about to have the procedure done. Dorothy

From: Dorothy, TX

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Posting of Oct 25, 2002, 17:30 EST

STress and AF?

In reply to Pat Z - whether or not stress and AFib are related - If your cardiologist suggests stress can affect the rate but not the AFib itself - he's showing a pitiful lack of knowledge about the condition. There is NO QUESTION THAT A STRESSFUL SITUATION WILL GIVE RISE TO AF. It has happened to me many times, especially earlier in my AF experience. When I got "accustomed" to the AF pattern, I found myself having fewer stress-initiated episodes, and though now episodes are very frequent, most arise through less obvious triggers, although I know for certain that caffeine and MSG are two of them. There is another factor that I am convinced causes AF episodes in one whose heart structure is somehow pre-disposed to AF, and that is some kind of electrolytical imbalance. One day the powers that be will wake up and start researching in detail the cases of those AF'ers who have cyclical patterns of predictable AF. NO end of speculating goes on about the cause of an AF episode, but if, as my cardiologist believes, the cause is solely the result of a compromised heart, WHY, ONCE THE FAULTY PATTERN IS ESTABLISHED FOR SEVERAL HOURS, WHY THEN DOES IT SUDDENLY REVERT TO SINUS. WHY, IF WE ARE DEALING WITH AN AF-PRONE HEART, CAN IT JUST QUIT THE CRAZY RHYTHM? In my case, this occurs much more predictably when the Big P syndrome accompanies the episode. After several trips to the bathroom, I can feel the AF less pronounced, and at that point, some small adrenalin shock, a cold shower, or sex, will kick me back into NSR more quickly than just a natural spontaneous reversion. I find it incredible that no researcher has examined this phenomenon, (what exactly happens as regards electrolytic changes in the body during an AF episode) to date. If the condition of the heart makes it vulnerable to AF, and, as popular theory has it, AF begets AF, why can that same heart, after limping along in AF for hours or days, suddenly revert to NSR? I realize this is not true for all cases, but for those who experience paroxysmal Af, it most certainly is. It would seem to me to be well worth a careful study of a group of AF'ers who experience this pattern. This applies as well to the stress-and-AF phenomenon. No one denies that stress, a fight-or-flight adrenalin situation, most certainly affects the heart RATE. But in some people, that in turn affects the rhythm as well. A cardiologist who isn't aware of this must have just one case of aF on his files! Thankfully procedures such as pulmonary vein ablations are beginning to show promise of relief to some af sufferers, but these, too fail to answer the "why" I posed. Technically, the conditions that WOULD give rise to aF are still happening. The same is true of the Maze approach. If any of you has a cardio that isn't deaf to interesting questions, would you pose this to him/her? Lawrence

From: Lawrence, Saskatchewan

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Posting of Oct 25, 2002, 17:44 EST

NEW:

Hello, Im 39 and was diagnosed with A/fib about 4 mths ago, although now that I know what it is I remember having it 8yrs prior, only because I was in a first aid course and couldnt count my pulse as it seemed to beat in threes. Any how to get to the point, I only get it at night and the longest it has run is about 24 hrs, I have looked for relevant triggers and am now of the belief that its because I overheat in my sleep, so dont use a doona, go with a thermal type, and if I wake at around 3 am hot and parched I wait untill I have cooled before getting up.What i believe is the heart is working hard to pump the blood through expanded arteries to cool me and then if I wake up you know, like hot,dry mouth etc the first thing is you jump out of bed for a drink and bang the heart cant go any harder to up the blood to your head and it breaks into A/fib.I do believe that generaly then it is the go to stay on the side of cool.Its only a theory, good luck to all of you and thanks for posting your letters which inspired me to give something back.

From: Darren, Australia

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Posting of Oct 25, 2002, 20:35 EST

Ablation at Cleveland Clinic

I've put this message on the board before, but it's worth repeating. Add my name to the list of people who have found a "cure" by having a pulmonary vein ablation at the Cleveland Clinic with Dr. Natale. For me it's been 11 months with no A-Fib and no medications (after having A-Fib for most of 4 years). I believe everyone with A-Fib should look into this possibility to see if they are a candidate for this procedure.

From: Donna, PA

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Posting of Oct 25, 2002, 23:27 EST

RE: Abalation Candidate

HI Donna Glad to hear you have been cured its an inspiration to all of us to take the same road.I know for one i will very shortly.My question is what makes one a candidate for a PVA what do they look for and what makes you not a good candidate.Please advise if you have any info on this. Thanks Frank Toronto,Canada nk

From: Frank, Ontario

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Posting of Oct 26, 2002, 00:28 EST

RE: Pat Z. -- Afib and Stress

Stress can definitely cause afib for me. In fact, my first identifiable afib episode was triggered by finding myself unexpectedly in a life threatening situation. That episode lasted 24 hours, long after the stress had disappeared. During the past nineteen years since then, I have had numerous afib episodes start while I was in an acutely stressful situation. Typically as a result of stress, I experience either sinus tachycardia or ectopic beats which then lead to afib. Recently, however, I have been in sinus for five months, despite some situations which caused me to have either tachycardia or ectopics. For some reason, stress is not currently triggering afib for me. I hope this happy state continues, and I hope you can find some ways to deal with your stress. Good luck.

From: Mary, WA

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Posting of Oct 26, 2002, 09:45 EST

RE: DEALING WITH AF , for KIMBERLY

I tried to mail you 2 times, and the address you gave won't work. Here is what I mailed. Kimberly, I have read your post several times over the last two days, and I was wondering if I could be of any help to you or not. At least I can be a friend and offer my moral support. I had AF most of my life, but it didn't really bother me much until I was in my mid 30's. Then I had to start on medication and endured that with all the many side effects for almost 30 years. AF is a progressive ailment, and by the time I was 64, all the medication failed to control my AF any more. I had the surgical Maze Procedure and I have been AF, and medication free for 4 1/2 years now. My AF was lone AF, and with no other heart problems, I was ahead of the game. I don't know what, or how much help the maze would be to you, or if you would even be a candidate, but I think you should inquire with one of the maze surgeons about this. This would probably be a huge step for you, but take your time and read and learn all you can about the maze, or any other procedure that might help you. Information is one of your best friends, and it usually helps a person cope with their problems. 2 years ago I started the Maze Alumni message board at, http://mddietofutah.com/wwwboard/ and you might want to read some of the post there about the maze. also there is a lot of information under the ARTICLES AND STUDIES page there. There is a also a partial list of the surgeons that do the maze, but the list is not complete, and there are many that are not listed. It is not where I had my maze, but the Cleveland Clinic does more maze procedures, and also Pulmonary, Vein Ablations than any other hospital. Kimberly, you have my prayers and best wishes for the best for you. If you just want someone to write to, that is ok also. Jack Drum

From: Jack Drum , Select State, Province or Country

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Posting of Oct 26, 2002, 13:01 EST

Connecticut EP

Can anyone refer a great Connecticut electrophysiologist? My father, age 74, has had AF for 24 years. My father's medication was diogoxin, coumadin, norpace. He switched cardiologists about 7 years ago who took him off norpace and perscribed atenolol. A few weeks ago, my father's heart rate dropped to 40 on two occasions. The doctor took my father off atenolol. Now my father's heart is too fast (120 to 130 about 4 times a day) and the doctor recommends a pacemaker in order to place him on atenolol or a similiar medication. I feel that the cardiologist should experiment with some more medications before a pacemaker. Is the doctors recommendation common? We want to consultan electrolphysiologist. Is this a good plan of attack ? Any suggestions or comments will be greatly appreciated. Thank you

From: diane allegra, CT

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Posting of Oct 27, 2002, 04:33 EST

NEW: cardiac arrest in surgery

I had gall bladder surgery (laproscopic) last Friday and was amazed to find when I came to, that the procedure had been aborted after the first incision because my heart stopped for two minutes and had to be restored by CPR. I am wondering if anyone else has ever had this experience. Have been on Verpamil for 10 years, and Rythmol for several months. Apparently this is a very rare occurence because the operating team were quite honest about saying this event frightened them. I was told that I MUST have this procedure, but am now afraid of it as i really prefer not to die just yet. The frequency of episodes has progressed from once a month to anywhere from twice a week to twice a day. The plan now is to see a new cardiologist who specializes in electrical behavior of the heart before trying the gall bladder procedure again. Would appreciate hearing of similar situations. I am 70 yrs old and have consistently had the blood pressure of a teenager, work out often, and otherwise in robust health. Thanks Frank Akers

From: Frank Akers, VA

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Posting of Oct 27, 2002, 12:22 EST

RE:FRANK -CARDIAC ARREST IN SURGERY

My husband, who did not have any AF, always in NSR, had your experience while undergoing a procedure near his retina (under general anesthesia). They gave him some kind of shot, I was told, and his heart bounced back immediately and so they continued with the surgery. They didn't need to use the paddles. He was, indeed, as frightened as you and anyone would be, but had a couple of other surgies sometime after and there was no problem. It was mentioned at that time it could have been due to the Vagal nerve as that nerve, as you know runs through all of the organs of the body. That was the first time I had heard of the Vagal nerve and term. Hang in there. Could the problem have been with the anesthesia they put you under with??? geri

From: geri, CA

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Posting of Oct 27, 2002, 13:26 EST

Just looking for info?

Hello. last week I had a palpitation that lasted for about and hour with a heart rate of aprox. 198. I finally had to got to the hospital because I felt lightheaded and I'm pretty sure they gave me a shot of digoxin which broght it back to a normal rate in a couple of seconds. I am a 37 year old male and very active, 500 km/mnth on the mnt bike. I have an appointment with a specialist next month but in the meantime I'm just looking for as much information as I can get from the internet. The more I have researched I think I have "Paroxysmal Atrial Tachycardia" because it starts without warning and ends abruptly? I have to admit I'm worried about this but don't want to get carried away thinking too much. Any information would be greatly appreciated. Thanks in advance. Paul

From: Paul Curwen, Ontario

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Posting of Oct 27, 2002, 22:06 EST

RE: RF Ablation

I am in non-stop afib for the last 12-18 months after heart valve surgery and have considered RF ablation at Cleveland. Tried all the meds with no success. I am 61 and otherwise in very good health, and have very little symptoms from the afib. Major pain is having to take coumadin and tiazac (sp?). I would like to hear from anyone who has been free of afib and/or other associated problems for longer than 18 months after having had an ablation at Cleveland. My cardiolgist is skeptical because of potential stenosis of the pulmonic veins after they are ablated. Thanks for any responses! Jim

From: Jim Foust, NY

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Posting of Oct 28, 2002, 07:52 EST

NEW: my mothers condition

well im 14 years old and i just yesterday found out that my mother had atrial fibrillation. i thought it wasnt anything serious but i guess it is.im writing from a school computer because i asked my teacher if i could came to the library to search for any possible sites having to do with this.i've all my life always been in a hospital with my mother, you can say mass general hospital is my second home i know that hospital like it was the back of my hands.i love my mother thats why im here writing this with tears in my eyes. i will love her to know i did this and that i love her till death.......thank you for listening and if you have any comments write to me ill be visiting as much as i can ciao

From: laura santana, MA

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Posting of Oct 28, 2002, 07:54 EST

NEW: my mothers condition

well im 14 years old and i just yesterday found out that my mother had atrial fibrillation. i thought it wasnt anything serious but i guess it is.im writing from a school computer because i asked my teacher if i could came to the library to search for any possible sites having to do with this.i've all my life always been in a hospital with my mother, you can say mass general hospital is my second home i know that hospital like it was the back of my hands.i love my mother thats why im here writing this with tears in my eyes. i will love her to know i did this and that i love her till death.......thank you for listening and if you have any comments write to me ill be visiting as much as i can ciao

From: laura santana, MA

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Posting of Oct 28, 2002, 12:17 EST

NEW: EMAIL CORRECTION

SORRY, THIS IS MY CORRECT EMAIL CNTRYBUMKYN@AOL.COM LOOKING FORWARD TO HEARING FROM ANYONE, LIKE ME WHO NEEDS A FRIEND JUST TO LISTEN AND UNDERSTAND. THANKS, KIM

From: KIMBERLY ADAMS, CA

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Posting of Oct 28, 2002, 18:58 EST

Response to Jim Foust

I had my PVA at the Cleveland Clinic this past August and have been relieved from permanent a-fib ever since. Dr. Natale utilizes a "cool tip" catheter to minimize the risk of PV stenosis. Although I'm only at 2 months post ablation, I feel like a new person, and would not hesitate to do it all over again. Hope this helps, best of luck to you.

From: Al, CA

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Posting of Oct 28, 2002, 19:31 EST

RE:Pulmonary Vein Ablation(PVA)/Cleveland Clinic

Al: While I am a Cox Maze III vet of the Cleveland Clinic, I could not agree more: the CC is THE place to go currently for a PVA. Their expertise/success/lack of complications rate is currently unparelleled. Anyone considering this procedure should compare the success/lack of stenosis or stroke rate of any other physician/heart center to that of the CC before undergoing this delicate procedure. Currently, for an ablation, I would go almost no other place if given a choice.

From: Carl, FL

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Posting of Oct 28, 2002, 20:23 EST

RE: Al's PVA

Al: How long were you in permanent afib and, if you don't mind, what is your age? I understand these factors are important in predicting the possible outcome of a PVA. Thanks.

From: Don, Ontario

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Posting of Oct 29, 2002, 00:14 EST

RE: Laura - mother's condition

I tried to reply to your email address but it kicked back to me. I read your post with a very heavy heart. I will keep you and your mom in my prayers. Your mom is blessed in having you as a daughter, one who loves her alot. She will appreciate the effort you have taken in finding out all you can about this crazy thing they call Afib. I personally don't have Afib but my 16 year old son does. Fortunately for him, he responds pretty decen