San Jose Prostate Cancer Support Group

http://members.aol.com/mikea60/pc.htm

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At the meeting today, 3/12/2008, there was interest expressed in exploring health topics of interest to our group. The following web page was created with the desire to explore these other topics. http://members.aol.com/mikea60/lifeextension.htm You are encouraged to study this new web page and bring you comments to our next meeting.

555

Mmm

This is a reminder for the
S
an Jose Prostate Cancer Support Group
monthly meeting.

12:30 PM - Wednesday - July 9, 2008

Camden Lifetime Activities Center
Room #118
3369 Union Ave
San Jose, CA

This is on the west side of Union, just north of the strip mall.
Click on the address for a link to a MapQuest map.

Our speaker / topic for this month:

Roundtable discussion
New members are encouraged to share their experience with the group.


Prostate Cancer Research and Education Foundation (PC-REF) produces a monthly LIVE webcast
(second Saturday @ 11 AM Pacific time). You may get more information at
http://www.pcref.org/internet_webcast.php

 

mmm

Lll

July Meeting – Reminder

Wednesday, July 9, 2008, 12:30 PM

Topic:

  Roundtable discussion: new members are encouraged to share

  Their experience with the group.

Meetings:

  Second Wednesday of each month, 12:30PM

  Camden Lifetime Activities Center, Room # 117

  3369 Union Avenue, San Jose

For info call: 408 259.3196

No medical advice given.

lll

Kkk

SILICON VALLEY

PROSTATE CANCER (PCa) EDUCATION & SUPPORT GROUP

(Proud Affiliate of “Us TOO” International, Inc. Since 1990)

---> MONTHLY BULLETIN <---

 

PLEASE REMEMBER – THERE IS NO JULY MEETING!!

 

*****NEXT MEETING ****

DATE/LOCATION: The NEXT MEETING OF OUR PROSTATE CANCER EDUCATION & SUPPORT GROUP IS ON          THURSDAY, AUGUST 7, 2008           PLEASE SIGN IN BETWEEN 6:45 AND 7:00 P.M.

   

PLEASE NOTE THE FOLLOWING - All our regular 2008 meetings are held in the Cafeteria Conference Center on the Ground Floor of El Camino Hospital.  The Cafeteria Conference Center is at the back of the Cafeteria.  As you come off the elevator, turn right and go to the end of the hall.  Turn right again and proceed through the dining area of the Cafeteria to the west end. For directions to the hospital at: 2500 Grant Road, Mt. View, call 1/800-216-5556 or via www: elcaminohospital.org.

 

JUNE REVIEW:  We met 5 new men who shared their stories and questions for the group. Hopefully we were of value to them as they ponder their next steps in their treatment of their cancer.  We also welcomed Dr. Leon G. Kaseff as our speaker last month.  His talk was well received.  The major point he wanted to make was the importance of getting a “second opinion”.  In every case, he encouraged getting a second opinion should be mandatory!  He also predicted a cure will be found for Prostate Cancer within 10 years.  He explained that, since we have identified the genes that support Prostate Cancer our need is now to find the way to inhibit their actions.  I hope we can see this result as he predicts!  As an involved participant on the Regional Cancer Foundation, he provided the following contacts to the Foundation:

            e-mail at: mail@thesecondopinion.org

            phone:     415/775-9956 

 

JULY – NO MEETING:  We will resume our monthly meetings on the regular date and at the regular time in August.  We hope to get caught up to date on where you are in your program of Living With Prostate Cancer  then.  However, if you can’t wait to attend the meeting and  want/need to talk to someone who “has been there”, feel free to contact any of the leadership group listed below.  We stand ready to help where we can.  As well, we can help you with the many references available to us.

 

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

JULY SILICON VALLEY ADVANCED PROSTATE CANCER SUPPORT GROUP   

This group supporting advanced care people, will also take the month of July off and reconvene on August 7, 2008, at 5:30 to 6:45, in room ‘D/E’.  The purpose of this group is to provide each other emotional support, a forum to share experiences, and help to explore treatment options and develop an action plan.  The group is looking for a professional facilitator.  Walt D’Ardenne will be leading this August group meeting. In August, if you wish, bring something to eat, eat before you come, or buy food in the cafeteria and bring it with you to join us.   Come with an open mind and be prompt.  We will adjourn to the regular meeting area just before 7:00 p.m. 

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

 

PLEASE! If your home or e-mail address has changed, please let Ted Chamberlain know at 408/241-0949 or at tedjo59@comcast.net.  We don’t want to lose you!

 

“Significant Others” are always cordially invited to attend as well.

 

OTHER SUPPORT GROUPS:  

.           The San Jose Prostate Support Group meets on the second Wednesday of the month at 12:30 P.M. at the Camden Lifetime Activities Center, Room #118, at 3369 Union Avenue, San Jose, CA.

.           The Palo Alto Veteran’s Hospital hosts a general cancer support group meeting every third Tuesday of the month from 11:00 to 12:30 p.m. in the VA’s Bldg. 101.  You don’t have to be a veteran to attend.  Call 650/852-3223 for more details.

.          Avenidas Senior Center Prostate Support Group – Palo Alto

Meets the fourth Tuesday, every other month at 5:30 p.m. at the Avenidas Senior Center, 450 Bryant Street, Palo Alto.  Led by Dr, Leon Kaseff, Diagnostic Radiologist, the next meeting is July 22. Call 650/289-5400 for more details.

 

All support group meetings listed in this BULLETIN are open to all comers.

 

UsTOO International – Overview:  Us TOO is our umbrella parent organization.  UsTOO has a wealth of information in all areas of interest to Prostate Cancer Survivors.  UsTOO publishes a monthly magazine titled “THE HOT SHEET”.  We distribute this publication in our meetings.  If you did not get it, it is available on line (and back issues too).  Where are other chapters of UsTOO?  Go on line at the Internet address below for this info as well.  Links to every published source of information on treatments, clinical trials and latest developments can be found there.  UsTOO produces a weekly update titled “Prostate Cancer NEWS You Can Use” (it is also available on line).  To subscribe, you can sign up on the Website (link entitled “Prostate Cancer NEWS” – left menu).  But, start by logging in to: www.ustoo.org.  Then, see what a wealth of good help you can find there.  This is definitely worth your time. 

TELL NEWLY DIAGNOSED MEN TO START THEIR STUDY OF OUR COMMON ENEMY AT www.ustoo.org!

Another great publication is the magazine CURE - (Cancer Updates – Research & Education). It is free to all Cancer Survivors. To subscribe, visit www.curetoday.com.

For More Information on anything PCa related:                        REMEMBER!

Dick Clark, 408-245-4597;                                         Check in at the door from

Bob Manniello, 408-732-3522;                                       6:45 to 7:00 p.m.

Bob Scruggs, 408-746-0904;                                       on Thursday, 8/07/08           

Tom Horsley, 408-879-7519;                                                    or                        

Phil Steward, 408-741-5956;                                                5:30 p.m. 

(For borrowing loaner materials)               for the advanced support meeting

            Dean Andrus, 408-379-4022 or

            Chris Lianides, 408-370-9106;

Walt D’Ardenne (Advanced Group) 650-961-4875                        

Or Ted Chamberlain, 408-241-0949, Bulletin Editor and Lead Facilitator

 

PLEASE CHECK OUR WEB SITES FOR OTHER RECENT INFORMATION

                                http://members.aol.com/MikeA60/pc.htm

                                                And www.ustoo.org!

 

AND…AS WE SAY EVERY TIME – NOT ONE MEMBER OF OUR GROUP IS ALONE. WE CARE for each other and SHARE our caring.  What each one of you contributes to the meetings is helpful to others in the group.  WE ARE NOT DOCTORS, but we are concerned CANCER PATIENTS who want to help increase your understanding of our common challenge.  Join us for these next informative meetings in August.

 

P.S. THE MEETINGS ARE ALWAYS HELD ON THE FIRST THURSDAY OF EACH MONTH

                                             (Except for January and July)

 

kkk

Jjj

Prostate Cancer

What is prostate cancer?

Prostate cancer is the abnormal growth of cells in a man's prostate gland. The prostate gland is part of a man's reproductive system. It is, on average, a little bigger than a walnut. It is located between the base of the bladder and the beginning of the penis. It surrounds the upper part of the urethra. (The urethra carries urine from the bladder out through the penis.) The prostate makes the fluid that nourishes and carries sperm.

Prostate cancer has become the most commonly diagnosed cancer among men in the US. It usually grows slowly. Men who have it more often die from other causes before the cancer kills them. Still, prostate cancer is one of the most common causes of cancer death in American men. The prostate cancer death rate is especially high among African-American men for unknown reasons.

How does it occur?

The cause of prostate cancer is not known. Studies have found or suggested the following risk factors for prostate cancer:

  • Age: Age is the main risk factor for prostate cancer. Prostate cancer is rarely seen in men younger than 45. The chance of getting it goes up as a man gets older. Most men diagnosed with prostate cancer are older than 65.
  • Heredity: A man's risk is higher if his father or brother had prostate cancer.
  • Race: Prostate cancer is more common in African-American men than in white men, including Hispanic men. It is less common in Asian and American Indian men.
  • Diet: Studies suggest that men who eat a diet high in animal fat or meat may have an increased risk for prostate cancer. Men who eat a diet rich in fruits and vegetables may have a lower risk.

What are the symptoms?

Prostate cancer often has no symptoms, especially in the early stages. Symptoms that may occur are:

  • weak flow of urine
  • urine flow that starts and then stops too soon
  • trouble starting or stopping the flow of urine
  • frequent and urgent need to urinate, especially at night
  • not being able to urinate
  • blood in the urine or semen
  • pain or burning during urination
  • trouble having an erection, or pain when semen comes out of the penis (ejaculation)
  • frequent pain in the lower back, hips, or upper thighs (usually because of a spread of the cancer beyond the prostate gland).

More often these symptoms are due to BPH (benign prostatic hypertrophy), an infection, or another health problem. BPH is a growth of the prostate that is not caused by cancer. BPH normally occurs as men get older. If you have any of the symptoms listed above, you should see your healthcare provider so that problems can be diagnosed and treated as early as possible.

How is it diagnosed?

Because prostate cancer often causes no symptoms, it may be found as part of a routine rectal exam or during an exam for some other problem.

A blood test called the prostate-specific antigen (PSA) test may be done to check for prostate cancer. However, like many cancer screening tools, it is not perfect and can give misleading results. If the PSA is normal, there may still be cancer in the prostate. If it is a bit high, it may not be from cancer, but the abnormal result may cause anxiety, expense, and unnecessary medical procedures. For this reason, healthcare providers do not agree about when or if PSA tests should be done.

If you have a symptom or a test that suggests cancer, other tests that may be done are:

  • Transrectal ultrasound to look at the prostate. A probe is inserted into the rectum. The probe bounces sound waves off the prostate to create a picture of the prostate on a video screen.
  • Cystoscopy. The healthcare provider uses a thin, lighted tube to look into the penis, urethra, and bladder.
  • Transrectal biopsy. The healthcare provider inserts a needle through the rectum into the prostate. A piece of the prostate tissue is removed to look for cancer cells. It is the only sure way to diagnose prostate cancer.

If a biopsy shows cancer cells, you will have other tests, such as a bone scan, CT scan, or MRI to see if the cancer has spread and help decide how to treat it.

How is it treated?

Treatment depends on how large the tumor is, whether it has spread to other parts of your body, your symptoms, your overall health, and your age. Some of the treatments, and their side effects, are:

  • Surgery to remove the prostate (prostatectomy). For a short while after surgery you may have some problems, such as discomfort and some loss of control of the flow of urine (incontinence). Most men are able to control their bladder again after a few weeks. Surgery may also cause erectile dysfunction (trouble having or keeping an erection, also called impotence). Nerve-sparing surgery may help so that this problem does not last. But in some cases, men become permanently impotent. Also, when your prostate is removed, you will no longer produce semen. You will have dry orgasms. If you wish to father children, you may consider sperm banking or a sperm retrieval procedure before surgery.
  • Radiation therapy. This treatment uses high-energy rays to kill cancer cells. It may also lead to long-term problems such as diarrhea, erectile dysfunction, and poor control of the flow of urine. The radiation may be given externally (radiation beamed at your body from a machine). This may cause the urethra, rectum, and anus to become inflamed. Or the radiation may be given internally, which means the radiation comes from radioactive seeds placed in the prostate gland. This may cause erectile dysfunction and loss of bladder control.
  • Hormone therapy. Surgery to remove both testicles or drugs may be used to keep prostate cancer cells from getting the male hormone (testosterone) that they need to grow. The testicles produce the most of the testosterone in your body. Drug treatment can include medicines that keep the testicles from making testosterone, block the action of male hormones on the prostate cancer cells, or prevent the adrenal gland from making testosterone. Side effects of treatment depend on the treatment used. They may include erectile dysfunction, hot flashes, loss of sexual desire, weaker bones, breast tenderness or slight enlargement, nausea, or diarrhea.

Watchful waiting, which means not having treatment, may be chosen if:

  • The risks and possible side effects of treatment outweigh the possible benefits.
  • You are an older adult.
  • You have other serious health problems.
  • You are diagnosed with early-stage prostate cancer that seems to be growing slowly.
  • You have no symptoms.

How long will the effects last?

Most prostate cancer grows very slowly. Prostate cancer is often found when the cancer is at an early stage and can be treated successfully.

How can I take care of myself?

  • Follow the full course of treatment prescribed by your healthcare provider.
  • Eat a healthy diet.
  • Recognize that having the cancer is an added stress in your life. Take more time for your important relationships and for rest.
  • Be candid with your family and your healthcare providers about your concerns.
  • Ask your healthcare provider any questions you have about the course of the disease, treatments, side effects of the treatments, support groups, and anything else that concerns you.
  • Find a counselor to help you deal with difficult issues.
  • Spend time with people and activities you enjoy.

For more information, contact:

How can I prevent prostate cancer?

Because the cause of prostate cancer is not known, healthcare providers do not know how to prevent it. However, researchers are actively studying possible methods of prevention, such as diet, supplements, and drugs.

Developed by McKesson Corporation

Published by McKesson Corporation.

 
Last modified: 2006-12-07
Last reviewed: 2006-02-27

This content is reviewed periodically and is subject to change as new health information becomes available. The information is intended to inform and educate and is not a replacement for medical evaluation, advice, diagnosis or treatment by a healthcare professional.

Senior Health Advisor 2007.2 Index
Senior Health Advisor 2007.2 Credits

Copyright © 2007 McKesson Corporation and/or one of its subsidiaries. All Rights Reserved.

Page footer image

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Iii

**********

Material posted here is intended for educational purposes only, and
must not be considered a substitute for informed medical advice from
your own physician.

**********
From: Stephen Strum, MD
To: < Susan Horn >
Work Time:  25 min


From: susan horn <suziq150@aol.com> Date: Wed, 4 Jun 2008 13:41:09
-0400 To: P2P P2P <p2p@prostatepointers.org> Subject: [P2P] recurrent
prostate cancer what to do?

**********
Material posted here is intended for educational purposes only, and
must not be considered a substitute for informed medical advice from
your own physician.
**********
< Susan Horn >
I regard to my husbands recurrent prostate cancer

Name is Kenneth Horn current age 58 We live in Margate New Jersey and
Florida Diagnosed in 2004 with psa of 5.6 Laproscopic surgery in feb
2004 Surgery was messed up Had internal bleeding and had go back in to
stop the bleeding. Pathology Gleason 4+3 Minor grade 5 is also
identified the tumor invades the following quardrant right and left
posterior right and left anterior vasular and perineural invasion is
present multicentric foci of invasive carcinoma are present the tumor
invades the prostatic apex left there is established extracapsular
extentin at the following sites left posterior and surrounding the left
semnal vessel where the tumoer is focally present at a cauterized edge.
all other surgical margins are free of tumor the seminal vessicles are
free of tumor pathalogical stage pt3a 5 benign lymph nodes Following
surgery psa 0.09 One year later psa 0.2>>

< Stephen Strum, MD > One could just about predict problems from the start
with the adverse finding of operative bleeding, then the GS of (4,3) with a
tertiary grade 5.  Some of what you are writing above is jumbled with
sentences incomplete and fused. Vascular and PNI (perineural invasion) are
adverse prognostic factors for PSA recurrence. The apex is a weak point for
PC escaping the gland. The PSA post RP of 0.09 and then 0.2 is indicative of
PSA recurrence (PSAR). The key questions relate to

Where is the PC?
Is it locally recurrent and amenable to salvage RT or is it more extensive
where local RT will not effect a cure?

< Susan Horn >
Salvage radiation imrt plus 6 months lupron psa non detectable but
started to rise when lupron wore off Started 400 celebrex with vit d
psa still rising.

< Stephen Strum, MD > Your history is lacking significant detail.  In the
setting or context of what is presented above, I would not expect Celebrex +
Vitamin D to curtail the PC.

< Susan Horn >
Added 800 celebrex and psa stopped rising for three months and then
started to rise again doubling time 9 months Then in nov 07 psa started
to rise fast doubling time 3months all scans are normal bone and ct
scans. Looked into prostatsent scan but said that because of radiation
would not be helpful also combidex said same thing.

< Stephen Strum, MD > both statements are without basis (that's being nice).
If there is nodal involvement the RT would not affect the Combidex showing
abnormal nodes.  The ProstaScint may result in a false positive finding at
the PROSTATE but not at the nodal sites of involvement.  Comparing the two
tests, in my opinion, is unrealistic since Combidex is a far more accurate
test than ProstaScint.

< Susan Horn >
What are you going to do anyway .Even if you found something. In January of
08 psa was 6.

< Stephen Strum, MD > If you found positive nodes you would at least restart
ADT using at least 3 agents.  You might also later add chemotherapy and/or
immunotherapy.

< Susan Horn >
Ken started Lupron 50 casodex and avodart. One month shots for three
months

jan 08 start casodex 50 mg jan 23 psa 3.4 2 weeks of casodex only Jan
24 end casodex Jan 30 restart casodex feb 3 stop casodex severe
Headaches.

< Stephen Strum, MD >
I have not seen headaches as a common complaint from Casodex  I would have
used a different anti-androgen such as Flutamide to see if this side effect
went away. I would also routinely be looking at other causes of headache
such as hypertension. I do not like starting and stopping drugs when
treating a cancer problem.

< Susan Horn >
feb 18 psa 0.8 testosterone 64 feb 19 restart casodex try again seems
to be ok now march 19 psa 0.3 testosterone 65 vit d 79 april 14 3 month
lupron shot april 21 psa 0.21 testosterone 33

< Stephen Strum, MD >
You really should present the above so the reading of what you present is
not so jumbled. Try using some punctuation to separate events. A
testosterone of 65 ng/dl is not acceptable when trying to deliver ADT
(androgen deprivation therapy) and many new treatments precisely aim at
lower testosterone levels throughout the prostate environment.  The Vit D of
79 could be OK or not since I do not know if the units were ng/ml (then OK)
or nM/L (then very low).

< Susan Horn >
may 13 psa 0.29 testosterone 39 vit d 73 same labs lab corp but
different sites one N.J. one Florida Ken is going to be taking his psa
next week to see what is going on and check LH

At this point what are some of his options? We are looking into
clinical trials but maybe there is better therapy not in trials?

< Stephen Strum, MD >
You need to find a physician focused on the treatment of PC. You are too
scattered in your understanding of the important elements in successful
management.  A good analogy is painting a house. A good paint job involves
the painter preparing the area to be painted, protecting the areas NOT to be
painted, using high quality paint and brushes and using an artist to paint
and not a smearer (or shmearer as some of my relatives would call them).

An LH level is likely not to be helpful in light of the last testosterone
level of 39. Levels of LH < 1.0 indicate satisfactory suppression of LH.  A
real question is whether or not the Lupron is being given on schedule with
7.5mg given every 28 days and the 22.5 given every 84 days. Often this is
not the case. 

Abiraterone could be a good trial for Ken but his PSA would have to be in
the 5 level or higher.

< Susan Horn >
Question is the estrogen Patch better than the lupron.?

< Stephen Strum, MD >
Both estrogen as either intramuscular injection, transdermal estrogen (TDE),
or even i.v. Estrogen is a good therapy that can given meaningful results.
There are major elements of skill involved in using estrogen as well as
other active agents like HDK (high-dose ketoconazole).  At this point in
Ken's journey with PC, you really need to find an excellent physician to
guide you.  You have Richard DiPaola in New Jersey.  In Florida you can call
the PCRI and ask for Jan Manarite and ask her opinion and share this message
with her.

Jan Manarite
PCRI Helpline
987 Beach Rd
Sanibel, FL  33957
T: 239-395-0995
E: jmanarite@pcri.org

< Susan Horn >
How to get the testosterone lower??

< Stephen Strum, MD >
This is the goal of a lot of major therapies. I have touched on some of this
above regarding scheduling of Lupron. Checking a fasting prolactin level and
treating to lower prolactin if 5.0 or higher also helps to desensitize the
AR (androgen receptor).

< Susan Horn >
Would that help to get the psa
lower? WE were at a conference in Boston where they said that the
lupron actually makes the cancer worse and the cancer makes it own
testosterone.

< Stephen Strum, MD >
You are hearing half or less of the story.  The nature of PC is that if ADT
is not done early and properly the PC will find androgen in the form of
testosterone and DHT to grow.  The Japanese and Swedes have noted this for
decades.  The American doctors have administed ADT in a cavalier manner
without paying attention to even serum levels of testosterone or the
inadequacy of testosterone blood testing when testosterone is in the 50 or
lower range.

< Susan Horn >
There was a trial with avastin and taxotere and lupron
but they said that he was not eligible because he started the lupron.
so the cancer is now changing . Thank you in advance

Susan Horn

< Stephen Strum, MD > Chemotherapy is still an option but HDK, Estrogen and
other approaches are a lot simpler to use. Most important is to access what
has gone on in a lot more accurate way than so far presented above.

Good luck to both of you.

Please consider a donation to smile train to help a child obtain a surgery
for cleftlip deformity.  A donation of $240 pays for one operation.

< Stephen Strum, MD >

=-=-=-=-=-=-=

Prostate Cancer Education and Support -- visit the Us TOO website:
http://www.ustoo.org

=-=-=-=-=-=-=

Prostate Cancer News You Can Use
http://www.ustoo.org/Prostate_Cancer_News.asp

=-=-=-=-=-=-=
______________________________________________

iii

Hhh

This is a reminder for the
S
an Jose Prostate Cancer Support Group
monthly meeting.

12:30 PM - Wednesday - June 11, 2008

Camden Lifetime Activities Center
Room #118
3369 Union Ave
San Jose, CA

This is on the west side of Union, just north of the strip mall.
Click on the address for a link to a MapQuest map.

Our speaker / topic for this month:

Roundtable discussion
New members are encouraged to share their experience with the group.

   

 

Prostate Cancer Research and Education Foundation (PC-REF) produces a monthly LIVE webcast
(second Saturday @ 11 AM Pacific time). You may get more information at

SILICON VALLEY

PROSTATE CANCER (PCa) EDUCATION & SUPPORT GROUP

(Proud Affiliate of “Us TOO” International, Inc. Since 1990)

---> MONTHLY BULLETIN <---

*****NEXT MEETING ****

DATE/LOCATION: The NEXT MEETING OF OUR PROSTATE CANCER EDUCATION & SUPPORT GROUP IS ON          THURSDAY, JUNE 5, 2008           PLEASE SIGN IN BETWEEN 6:45 AND 7:00 P.M.