
Of all the trials and challenges that God gives us as parents, just imagine the worst, your child is diagnosed with cancer. Jacob was diagnosed on May 12, 1998 with Stage IV Neuroblastoma. He received several rounds of chemotherapy, 9 hours of major surgery, a stem cell transplant, radiation, monoclonal antibody therapy and a year of cis-retinoic acid over the course of 2 years. Jacob is now in complete remission and has a very good prognosis. This is due to the excellent medical care received, the prayers and support of so many people, and to the research of the Neuroblastoma Team of doctors at Memorial Sloan Kettering Cancer Center in New York City.
More of Jacob's story may be found in an article written about Jacob, to read the full text, clickhere


Jacob, Nicholas, (in front) Cheryl and Mark
Since this disease only has a 50% survival rate we feel that we have been granted something very special. Unfortunately, because neuroblastoma is a rare disease, not much funding goes into it, so any amount helps! The Katie-Find-A-Cure fund was started by a family whose child, Katie, died at age 2 1/2 from neuroblastoma. They have high praise for the doctors at Sloan Kettering who tried to save her life and want to help other families going through this ordeal now. These are the same doctors who developed the protocols Jacob was treated with, and we are also very grateful. All donations are 100% tax deductilbe and people will receive an acknowledgement from Sloan Kettering for their contribution. Very little money is put into this type of research as it is a rare disease (only 500-600 cases per year in the USA), so any little bit would help!
Katie's Find A Cure Fund
Attn: Kathy and Joe Figliuolo
P.O. Box 142
Bourbonnais, IL 60914
OR:
Katie's Find A Cure Fund
Memorial Sloan-Kettering Cancer Center
Attn: Travis Holland
Associate Director, Major Gifts
1275 York Avenue
New York, NY 10021
Checks should be made payable to "Katie's Find A Cure-Neuroblastoma". Every penny goes towards Neuroblastoma reasearch at Memorial Sloan Kettering Cancer Center in NY, on of the top Neuroblastoma research institutions in the world.
FOR KATIE'S FIND A CURE FUND-NEUROBLASTOMA WEBSITE: CLICK HERE.
A letter to your local congressman would help too! Let's make them aware of this ugly disease and how important money is needed for research! These kids need our help! To locate and email your congressman click here.
CANCER RESOURCES
National Childhood Cancer Foundation Provides information on advocacy issues pertaining to childhood cancer and helpful informational links.
An Internet listserve (e-mail) support and information group from Association of Cancer Online Resources (ACOR) with nearly 300 subscribers of patients, families and health care providers involved with Neuroblastoma. Subscriptions are free.
Glossary of Useful Terms Contains a glossary of useful terms, information on leading research and treatment centers, diagnostic information, explanations of common treatment options, and links to other reliable sites.
Hope Street Kids Another valuable informational website which was started by Congresswoman Deborah Pryce (R-OH) whose child died of Neuroblastoma.
The Children's Cancer Web
The Neuroblastoma Children's Cancer Society
The National Cancer Institue contains information on types of cancer, risk factors, treatments, clinical trials, coping issues. Links to PDQ, NCI's database of summaries, registry of clinical trials, directory of oncologists.
The Candlelighters Childhood Cancer Foundation A Resource for childhood cancer information and support. Show your support for Childhood Cancer Awareness! Wear a Gold ribbon!
This awareness campaign is part of the Candlighter's Cancer Foundation. They are a international, nonprofit, tax exempt organization. Their mission is to educate, support, serve and advocate for families of childern of cancer, survivors of childhood cancer and professionals who care for them. Gold was chosen because it symbolizes candelight and because gold is a precious metal, as our children are precious! Visit their website to obtain these pins.
Food and Drug Administration Their website lists FDA approved products, patient advocacy programs, aritcles, directory of clinical trials and other informative items.
University of Pennsylvania Offers news, FAQ's information on specific cancers, research and clinical trial information.
Quackwatch Provides papers that discuss questionable treatments, therapies, alternative methods. They are currently working on a site specific to cancer treatments.
American Association for Cancer Research Defines cancer by type and posts updates on action alerts, funding and public forums.
American Society of Clinical Oncology
CancerCare, Inc. Contains explanations of different cancers and treatments, patient networking, links to other support organizations, clinical trials information, bookstore.
American Cancer Society
WHAT IS a Stem cell transplant? So many of you have asked. So, to find the answer, click HERE to find out!
Jacob's family would also like to encourage everyone to donate platelets, blood and bone marrow to your local blood banks for community use! There is always a very high demand for these products! A lot fo platelets are used at Children's Hospital's. Please make that phone call today to schedule your appointment to become a donor!
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In memory of all the many children that Jacob has encountered throughout his ordeal who have died of this horrible disease--Jimmy, Christopher, Ashley, Catie, Missy, Breanna, Justin...

Childhood doesn't wait.........
I was sitting on a bench while in a nearby mall, When I noticed a young mother with two children who were small.
The youngest one was whining, "Pick me up," I heard him beg but the mother's face grew angry as the child clung to her leg.
"Don't hang on to me," she shouted as she pushed his hands away, I wish I'd had the courage to go up to her and say...
"The time will come too quickly when those little arms that tug, Won't ask for you to hold them or won't freely give a hug.
"The day will sneak up subtly just as it did with me, When you can't recall the last time that your child sat on your knee.
"Like those sacred, pre-dawn feedings when we cherished time alone Our babies grow and leave behind those special times we've known.
"So when your child comes to you with a book that you can share, Or asks that you would tuck him in and help him say his prayer...
"When he comes to sit and chat or would like to take a walk, Before you answer that you can't `cause there's no time to talk.
"Remember what all parents learn so many times too late, That years go by too quickly and that childhood doesn't wait.
"Take every opportunity, if one should slip away Reach hard to get it back again, don't wait another day."
I watched that mother walk away her children followed near, I hope she'll pick them up before her chances disappear...
by Kathie Davis
"The fullness of our heart is expressed in our eyes, in our touch, in what we write, in what we say, in the way we walk, the way we receive, the way we need. That is the fullness of our heart expressing its self in many different ways....."
MOTHER TERESA
If you would like to send words of encouragement to Jacob's parents, Mark and Cheryl, please click here A Special Thank you for this Award, received Janaury 1999!
Thanks also for this Award, received July, 1999

This page has been visited times since August 14, 1998.
© 1998, 1999, 2000, 2001, 2002, 2003, 2004, 2005 by Lisa Rainwater. This page may not be used in part or whole without written permission from the owner. This page is for non-commercial use only. All images are copyrighted by Walt Disney Productions. Page created by Lisa Rainwater last updated August 9, 2001. A special thanks to Danielle Thompson for the Gold Ribbon graphic!

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