Seth's Cystic Fibrosis Web Page
It's my home page because I am a PWCF (Person With Cystic Fibrosis), Mom says that makes me special. Next to me is my brother Justin, He does'nt have CF, but he's special too, especially at the video games we play and picking on me (just like brothers). I hope you enjoy your visit here, please take a moment to read Moms' poem, it's not just for me but for everyone touched by CF.
Please wait while the sound file loads, it's worth the wait, Thank you.
Seth and brother Justin |
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Seth and Rags
(Rags watches over us from heaven now)
Touch the Rose
65 Roses
Flowers give special meaning to each person differently
and special are the roses my child has brought to me.
He didn't hold them in his hand or pick them from a vine,
His bouquet described his fragile life and the thorns we know as time.
My little one, so full of life, must face the thorns each day
for he has an illness with a special name he says a special way.
65 Roses, he tells the world, the disease of so many born;
and as he makes blooms of illness I'll make hope of thorns.
For Seth
LINKS
Seth's Walks for Great Strides
In Memory of Seth's Grandfather (His
Challenge)
CF Peacock of Excellence Award
Congratulations! "Seth's 65 Roses"
James Binegar "If you ask James about CF"
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