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Krabbe Disease... Anthony and Dalton's Home Page |
My name is Dianna Greene. I want to tell you about my boys, Anthony and Dalton. They are the reason for my web page. You see, both of my boys were diagnosed with Krabbe disease, which is a rare genetics disorder that is proven fatal. This we know because we lost Anthony to it. Unlike most children with infantile Krabbe, Dalton has had a second chance at life. He received a bone marrow transplant at 2 month old from his twin sister, Dakota, in order to try to replace an enzyme his brain wasn't able to make. Dalton is now 10 years old and as to date, his transplant has been a success. He has a normal enzyme level and continues to show improvement. |
Dalton was followed for a case study by Dr. William Krivit at the University of Minnesota Hospital. Dr. Krivit published his study in The New England Journal of Medicine -- April 16, 1998 -- Volume 338, Number16. He is patient # 5...the only child in this study with infantile Krabbe. |
This is our son, Dalton, at 10 years old. |
This is our son, Anthony, at 2 months old. |
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