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Thanks
for Your Comments!
From: Kathy - www.katherinearcher.com
How I found your page: Recommended by a friend
Comments about the web site: Hi! Wow! What a great website! Anna's getting more hits on her site than me! It is REALLY neat that you took the time to do this. I was extremely interested (and moved) by the whole thing. I learned of it at a very young age---my neighbor had it. This was Louisa VA in the 1960's. At the time, Tom White was probably at least 55, and had lived his whole life with club feet. He wore these HUGE custom made shoes. His feet must have been about 10 inches in diameter, no kidding. The shoes just looked like big squares. He had a very hard time walking at all--very laborious. This guy was a farmer, in fact--- brace yourself for this---he still plowed his fields the old-fashioned way---walking behind a mule pulling the plow as he steered. What a sight. That image is forever etched in my mind's eye. I always wondered, especially as a kid, what his feet looked like inside those shoes. Seeing those pictures of little Anna's feet as a newborn with this, I just can't imagine what it must have been like for Tom. Seems like it would have become more and more painful, as it's bound to effect all the muscles and bones in your ankles, legs, hips and of course your back. Wow--thanks for sharing that. Anna is obviously a real trooper. Hey--maybe she'll grow up to be a long distance runner! Good luck!
From: Cliff & Steve - steves@in4web.com
How I found your page: Recommended by a friend
Comments about the web site: Dear Dennis and Veronica: Congratulations on the good work. I'm sure you are relieved at the great results. Take care, Cliff and Steve
From: Jenny & Kelly Trevillian - beringer25@hotmail.com
How I found your page: Other
Comments about the web site: What a beautiful little girl, and what beautiful little feet! We're so happy that your treatments went so smoothly! Great website...I'll be recommending it to others! Jenny & Kelly 3-16-00 Unilateral clubfoot treated by Dr. Ponseti
From: Martin, Allyson and Joshua Egbert - martinegbert@earthlink.net
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: Dennis and Veronica, Congratulation on the arrival of Anna. You have done a wonderful job of documenting Anna's treatment and progress at NYU with Dr. Feldman's using the Ponseti method. Thank you for putting together this site. Martin, Allyson and Joshua (3-17-99) fellow Ponseti method parents and child
From: Ellen O. Hoeffel - ehoeffel@brooksbrothers.com
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: Thank you!
From: Paul Janquart - papapaulj@aol.com
How I found your page: Other
Comments about the web site: My daughter is currently pregnant with a little girl and she has one club foot, diagnosed after an ultra sound. Her son was also born with club feet and had sugery to correct it. She discovered this process on the web and she is the one who sent me your website. This is very interesting and encouraging. Thank YOu!
From: Lori Stime - gillam@rahul.net
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: I cannot tell you how happy I was to see your AWESOME website!!!! You have done the most fabulous job of documenting Anna's treatment and I that you site gets massive amounts of traffic. My daughter Annika was born 3/30/99 with bi-lateral CF also and we ended up in Iowa with Dr. Ponseti in May of 1999. I can't tell you...well yes I can...I started crying while looking at your photos of your precious daughter. I am so thrilled for you all! Thanks so much for taking the time to put together one great website! Lori Stime
From: Kay Miller - bahmiller@mindspring.com
How I found your page: Recommended by a friend
Comments about the web site: Dennis and Veronica: Your web page is great! My mom sent it to me. Anna is one of the most beautiful children I have ever seen. I'm sure your web page will be extremely helpful and supportive to other parents of children with clubfeet. And for family members who don't live nearby (like me), it allows us to see her growth and progress. GOOD JOB!!
From: Jo Ellen Finkel - jelf@bellatlantic.net
How I found your page: From a search engine
Comments about the web site: Excellent web site. My last name is spelled Finkel. It was nice to see little Anna again this week and to see how well she is progressing.
From: Travis Tyler - travis5uc@hotmail.com
How I found your page: Recommended by a friend
Comments about the web site: I'm a Physical Therapy student at Utica College. I enjoyed looking at your web page. Good luck to you and Anna.
From: Annette & Brian Pixley - pixleyyy@home.com
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: We just found out that our daughter, due Feb. 7, has clubfoot. Your page has been most helpful to us. So many pictures really helps us visualize what the treatments entail. We are so appreciative that you have created this site. And Anna is such a doll!
From: Tim Bianchi - Timb@Regencybuilders.com
How I found your page: Link from Ponseti Website
Comments about the web site: Thank You! Our son Keegan was born on October 12, 2000 with club feet. We live in Iowa and had his first set of casts put on four days after birth. Your web site is an inspiration! We learned from your websit about cutting the Achilles tendon and intend to talk with our doctor concerning this. Tomorrow is his eighth set of casts and we have never been told about this proceedure of cutting the Achilles as part of the correction. Thanks again! God Bless Anna's feet and upcomming life! Tim and Christine Bianchi
From: Cheryl Alberhasky - calberhasky@lone-tree.k12.ia.us
How I found your page: Other
Comments about the web site: Our oldest son was born with a clubfoot on his left side. By the time that he was 15 hours old be was placed in his first cast at Mercy Hospital in Iowa City. The doctor on call was Dr Law of Steinler Orthopedic in the Towncrest area. Dr. Law talked very highly of Dr. Ponseti throughout the entire procedure and assured us that Iowa City was the best place to have the correction done. I have never met Dr. Ponseti but an eternally grateful for the advances that he has made in this area. Our son suffered no undo stress and in now a normal 4 year old that you would never know any different. At the start of this ordeal I remember feeling very alone and not knowing where to get answers to questions about his future. I now know that he is going to have a normal life and we are not alone after all. Thank you Dr. Ponseti for your advancements and skills to teach other doctors this amazing technique
From: Judy Sueppel - sueppeljud@aol.com
How I found your page: Other
Comments about the web site: Enjoyed reading about Anna's treatment. Twenty-three years ago when our Carrie was born with clubfeet we were lucky she was treated by Dr Puhl (luckily we live in Iowa City) and went for one consultation with Dr. P. Carrie is now graduating from college as an elementary teacher. No residual effects, in fact she ran track in high school, three times state champion relay team member, and played basketball, one year on state qualifing team. So you can see her treatment really worked. Thanks again for sharing your story.
From: Rheana Nation - rheananation@hotmail.com
How I found your page: From a search engine
Comments about the web site: I would like to congratulate you on your inspiring web site. My son Sam was born with both feet turned however his right foot required surgery we are on the down hill run now and only have 5 weeks of this plaster to go. It is always wonderful to know you are n ot alone know matter where in the world you are. Regards Rheana Nation
From: Janine - vega7298@aol.com
How I found your page: Other
Comments about the web site: Thank you for a wonderful site. My son, Alex was also born with bilateral clubfoot on 3-7-99. He is being treated by Dr. Douglas Armstrong (he is on your list of Drs) but Alex needed to have surgery to correct his feet. Alex is now running everywhere and we couldn't be happier. He wears the Dennis Brown Boot & Bar at night. Your pictures really showed a good example of how the feet are corrected. This is a wonderful site.
From: maria mittermeier - riamitt@aol.com
How I found your page: From a search engine
Comments about the web site: I'm so happy to hear about anna. my daughter gabriela had the same problem when she was born. she had her surgery when she was 6 mts old now she is 2 1/2yrs old she walks and runs,shes a normal 2 year old. the only thing that i don't like is her ankles, they are skinny and a little below the ankle it is thick. does anna have that problem?
From: Connor Hogan - connorhogan@yahoo.com
How I found your page: Link from Ponseti Website
Comments about the web site: Thank you for taking a time to put together this web site! Three months into our pregnancy a routine Ultra-sound showed that were was a high probably of our son being born with a club foot. After a long search we selected one of the top orthopedic doctors in Chicago. After 4 casts and a brace we were told that the only solution would be surgery, once he reached 6 months of age. We were each convinced that surgery was the only reasonable alternative for our son. One week before the scheduled surgery my wife found Dr. Ponseti’s via the Internet. Quite honestly it seemed too good to be true but we owned it to our son to gather more information. After sitting down with Dr. Ponseti and his staff we knew that we there was hope for our son to be cured without surgery. Dr. Ponseti cured his foot without surgery and today our son is walking, skipping, hoping and running. Thanks again! (The Des Moines Register put together a wonderful article outlining the amazing success and story of Dr. Ponseti - December 10, 2000) Three months into our pregnancy a routine Ultra-sound showed that were was a high probably of our son being born with a club foot. After a long search we selected one of the top orthopedic doctors in Chicago. After 4 casts and a brace we were told that the only solution would be surgery, once he reached 6 months of age. We were each convinced that surgery was the only reasonable alternative for our son. One week before the scheduled surgery my wife found Dr. Ponseti’s via the Internet. Quite honestly it seemed too good to be true but we owned it to our son to gather more information. After sitting down with Dr. Ponseti and his staff we knew that we there was hope for our son to be cured without surgery. Dr. Ponseti cured his foot without surgery and today our son is walking, skipping, hoping and running. Thanks again! (The Des Moines Register put together a wonderful article outlining the amazing success and story of Dr. Ponseti - December 10, 2000)
From: Kathleen Furtado - Kwitkos862@cs.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: Great pictures! Thank you for sharing. Dop you still go to Dr. Feldman in Manhattan? We are going to Dr. Harold van Bosse now but have seem Dr. Feldman on our second casting. Zachary was born on October 28, 1999 with a right clubfoot. We changed to the Ponseti method when he was six months of age and what a great difference that has made. He is usung the DBB and going to be using an AFO brace everyother night to stretch the tendon since he has tightened some. He is walking and into everything as a normal child. We are getting physical theropy everyother week for tips to stretch the achilles tendon. Thanks again for sharing. Take care, Kathy
From: Joan Scheuren - jcvs@compaq.com
How I found your page: Recommended by a friend
Comments about the web site: Since I am Anna Catherine's Grandmother, I want everyone to know how well she is doing and that, to us, it is almost a miracle that she does not have to have surgery. God Bless all the Doctors that have made this possible to babies with Club feet. How wonderful that they do not have to go through life crippled. Thank you!
From: Lorena - dlfabian@bellatlantic.net
How I found your page: From a search engine
Comments about the web site: Thank you so much for sharing your story. My sister just had a baby today, and he is beautiful and healthy, but he does have clubfoot. I wanted to gather some info for her and I know your story will help her feel much better. Thanks again.
From: Christy Lamb - Christy.Hampton@Wichita.BOEING.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: Your website is great and very informative. You daughter is beautiful!! My son Michael is 10 months old and has severe Bi-lateral clubfoot. He went through 16 weeks of traditional castings and is currently in AFO's. My doctor has pretty much said Dr. P is the OLD way of treating clubfoot and he wants to do surgery on my son. I live in Wichita, Kansas. My son's feet looked very similar to your Anna's. I am amazed at her success!!! After 16 wks of casting my son's feet are only 50% corrected. Please give me your opionions and suggestions on how I should proceed. Thanks
From: lisa zidlicky - zid_chick@hotmail
How I found your page: From a search engine
Comments about the web site: I recieved this page from my friend,who has a newborn baby boy. Baby Devin's left foot is a clubfoot. seeing other people get through this diffucult has to be such a reassurance for parents, and family. Good luck to you all.
From: Suzanne Prak - sunback@pacbell.net
How I found your page: Recommended by a friend
Comments about the web site: Very nicely done, this will be a huge help to others.
From: Melba Beasley - uspsomi@juno.com
How I found your page: Recommended by a friend
Comments about the web site: Thank you for a very informative web page. I have a new grand daughter that has the very same condition, and this information gave me more "peace of mind" just being able to understand what she will be going through
From: Ginnie - jadis68@hotmail.com
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: Anna Catherine, your feet look beautiful!! I was born with bilateral clubfoot 32 years ago. I don't know what method they used to correct my feet..I did have the heel to groin casts for many weeks, and then I had surgery around the age of 2 to lengthen my achilles tendon. It was more invasive than what Anna had, and my scars are about 4-6" long now (but very faded), but I don't think I had the kind where they mess with tendons and bones. I remember the braces, too! I also had another bout of casts when I was in first grade, and braces at night for a year or so after that. I have had very litte trouble since then! So I suspect Anna has a very bright future ahead of her! I am now pregnant with my first child, and am praying that he/she does not inherit this condition, but if it so happens, I know there is hope!! Love, Ginnie
From: Catherine Beasley - Beezf16@aol.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Dear Anna, Thanks so much for sharing your story on the Internet. It was your story, in part, that convinced my parents to take me to Dr. Ponseti. In fact my mommy is writing this note from Iowa. I had my third set of casts put on yesterday. Alison Beasley 3 weeks old
From: Kim Foster - kfoster@terraworld.net
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: I am truly thankful to you and others for your time spent on getting the word out. Without websites and stories like yours we would have been sending our baby boy, Mason, into surgery. I stumbled onto information about Dr. Ponseti while looking for info about the surgery. My faith had flown out the window. I had prayed so hard for his feet to be fixed without surgery and on Dec. 15,2000 our doctor said she would have to do surgery. I thougth that God had not heard our prayers but then 4 days later I found this message board and called Dr. P and 2 days later on Dec. 22nd we were on our way, 8 hours one way, to see him and now Mason's feet are as straight as ours. God bless you for your time. We are truly grateful. Kim and Mason Foster
From: Diane - sliotta@msn.com
How I found your page: From a search engine
Comments about the web site: Thank You for sharing your story. My son, now 9, was also born with club feet. In addition to his feet being turned in his tendon was so short that his toes were touching his heels. He was casted about 8 hours after birth and the changes were significant with the first cast change!! I had borrowed a camera to use in the hospital because mine was broken and we loaded the film incorrectly and we have no befor cast pictures!! After 4 months it was apparent that the casting was no longer working and he had his first surgery. When his feet were opened up the surgeons discovered that his tendon was wrapped around the metatarsals and they were in one bunch...in both feet. To correct this his bones were reset in the proper places and held with pins. He has had 5 more surgical procedures, the last when he was in kindergarten. Because he had been casted for so long he was delayed in crawling and walking. He wanted to do it but couldn't figure out how to crawl with casts!! But about 3 months of physical therapy when he was 18 months old got him going really well and he hasn't slowed down since. I'm happy to report that although his left foot still turns in quite a bit, he plays baseball, basketball, and runs like the wind. I don't know what his future brings with those stubborn feet but he is a really resiliant boy who is happy to teach his friends about why his feet look so funny. When his feet hurt from a long day of play we have found that a nice foot and leg (especially those skinny calves) massage really helps!!!
From: Rebecca Johnson - Rbeckyjohnson@aol.com
How I found your page: From a search engine
Comments about the web site: What a beautiful little girl! We have a son, Tyler, who was born with severe bilateral club feet in May of 1993. We did not have access to the internet at that time and pretty much went through it alone. What a great electronic tool we have today! He had his first casts applied at only 3 days old. He had his right foot in a cast for only three months. However, during his first year he had two surgeries on his left foot and was in a cast for 11 months (one month in the bar). He then had an AFO (plastic orthotic) and also orthopedic shoes with a metal brace up to his knee (you see these a lot in the older publications for muscular dystrophy/Jimmy's Kids). He ended up having surgery on his tendons at age 5. There is a 1 1/2 size difference in his feet but he can get away with wearing the same size shoe. There is also a very noticeable size difference in the size of his calves. Despite all of this, he continues to play soccer, baseball, and basketball. We were so discouraged when he was first born, but with the help of a wonderful doctor, William Greene at the University of North Carolina Children's Hospital, he has come a long way and we are very grateful!!! When I was pregnant with my daughter in 1995, they told me that it looked (by ultrasound) as though she, too, would have club feet. However, they were wrong. She had perfect feet. We could not handle going through it again!!! Good luck to all of you and may you buy plenty of shoes!!!!!
From: Johanne DeLaFosse - jdefrenza@sympatico.ca
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Extremely interesting and touching at the same time. I myself was born with a clubfoot but I did not know what my foot looked like. I had 17 operations and about 7 years in a cast. My first cast was when I was 6 days old. I can honestly say I don't really have alot of problems now except the odd stiffness here and there. I'm greatful to my parents for having tuned in 44 years ago to problems like this and not having any insurances. Yes we were poor but happy. Keep up the good work I'm sure Anna with thank you one day like I thanked my parents.
From: Karen Poore - poorehousell@aol.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: My daughter Lindsey, was born April 3, 1998 with a right club foot. We went through all the same treatment and she is doing great. However, she also has hip dysplasia and I wondered how your daughters hip's turned out. Did the pavlik harness do the trick? We used the harness and a plastic brace when she was older and continue to do so but now she must have surgery. Thanks for this website, I'm going to pass it along to others.
From: Rachel and Chad Switzer - switzer@inebraska.com
How I found your page: From a search engine
Comments about the web site: My husband and I just had a little girl on April 24, 2001, and she has club feet. As a first time mom, I was a little emotional and scared for our Hailey Ann. The Dr. we have is excellent. We were aware of what club feet was from the doctors, but after being at the doctor's office today to have her casts changed for the fourth time, he had mentioned something about some shoes she would have to wear until she was two years old or so. We thought after the casts were removed after the 3rd month or so, that was it. So, I decided to get on the internet and see what they were talking about. My husband and I hated the thought of Hailey wearing anything else after the casts were finally removed, but the shoes don't seem as bad as we had first imagined. We just didn't know if they would be a hassle for her and for us, but they don't seem to be for your daughter. But, we figured that being that she is so young, that it wouldn't be so bad to have it done now. It doesn't hurt her as you know with your own daughter, so that makes it much easier on Chad and myself. It was nice to see that there are other people like yourselves who have gone through what we are going through now. I just didn't realize that club feet was that common. We are glad that your daughter is doing so well. Thanks for your story and pictures. Best of luck. Rachel and Chad Switzer
From: Bridget Berenson - Bridaryl@bellsouth.net
How I found your page: From a search engine
Comments about the web site: My daughter was also born with bilateral club feet. The Orthopedic doctor wants my daughter to get recontructive surgery next month. I am very concerned over placing an infant so young under anesthia (4 months old). I was told no one uses the "bar" shoes anymore and surgery was my best option. After reading your comments and looking at your pictures it is obvious to me I do have another option. Thank you ! Bridget
From: Tricia - luecktl@aol.com
How I found your page: From a search engine
Comments about the web site: Your story is very informative and comforting. I am 30 weeks pregnant and on my last ultra sound our baby was diagnosed with having a clubbed foot. It is all very scary, but your story gives us hope and encouragement that has a very good chance of working out so our baby can have a normal life. Thank you for your wonderful story. Trish
From: anonymous - anonymous
How I found your page: From a search engine
Comments about the web site: I work at University of Iowa Hospitals and Clinics and I recently interviewed Dr. Ponseti for a article that I am writing about him and his treatment method. You have a wonderful website and you are doing a great thing by informing other parents about his superior method of treating clubfoot.
From: Ange Callum - scallum@inspire.net.nz
How I found your page: From a search engine
Comments about the web site: Thanks for sharing your beautiful little girl and your experiences with me. I am a staff nurse in New Zealand who works in an orthopaedic clinic / plaster room. We deal with an average of 4-6 new talipes babies and parents a year and our care is a little different to yours. However the Ponseti method of treatment is starting to be heard of and I found this a great site to learn more about it. Thankyou very much
From: anon - anon
How I found your page: From a search engine
Comments about the web site: Thanks for sharing your beautiful little girl and your experiences with me. I am a staff nurse in New Zealand who works in an orthopaedic clinic / plaster room. We deal with an average of 4-6 new talipes babies and parents a year and our care is a little different to yours. However the Ponseti method of treatment is starting to be heard of and I found this a great site to learn more about it. Thankyou very much
From: anon - anon
How I found your page: From a search engine
Comments about the web site: Thanks for sharing your beautiful little girl and your experiences with me. I am a staff nurse in New Zealand who works in an orthopaedic clinic / plaster room. We deal with an average of 4-6 new talipes babies and parents a year and our care is a little different to yours. However the Ponseti method of treatment is starting to be heard of and I found this a great site to learn more about it. Thankyou very much
From: CLINT WEBB - CJHWEBB @AOL.COM
How I found your page: Other
Comments about the web site: I can relate to your story about your child with club feet.My little boy was born with it on 6-13-01.He has went through 3 cast so far and it has been realy hard for him and us but we now at the end he will be like your little girl. He is going through the same stages as your daughter did. But right now he has them off so me nad his mom can streach the tindins and his feet was rubbed realy bad.We have a long rode ahead of us but he is truly worth it.I realy like your wesite it helped alot and I would like to know how shes doing now. Thanks, Clint Webb
From: CLINT WEBB - CJHWEBB @AOL.COM
How I found your page: Other
Comments about the web site: I can relate to your story about your child with club feet.My little boy was born with it on 6-13-01.He has went through 3 cast so far and it has been really hard for him and us but we now at the end he will be like your little girl. He is going through the same stages as your daughter did. But right now he has them off so me nad his mom can streach the tindins and his feet was rubbed realy bad.We have a long rode ahead of us but he is truly worth it.I really like your website it helped alot and I would like to know how she's doing now. Thanks, Clint Webb
From: Julie Watford - J_M_Watford@hotmail.com
How I found your page: From a search engine
Comments about the web site: My daughter has bilaterial club feet also and when I first seen her when she was born I cried because I did not want my baby to go through this. She is now 2 years old and has had the cast at 3days old and surgery at 8 months. Her feet has straighted a lot but her doctor says she still needs another surgery. She will not have that until she is about 4 or 5 years old. But I cry every time I think of the thing my baby has to go through because she really has to be strong. I am happy to read someone else story because I am not alone. Her name is Jevlin and she will be 3 years old July 18, 2001, and it seems that time is counting down to when she has to go through surgery again. I hope that your little girl is doing fine.
From: Lorraine Pahucki - jackpot@catskill.net
How I found your page: From a search engine
Comments about the web site: Hello, Your little Anna is an absolute doll. I found your story fasinating. You are truly blessed to have such a special little angel and she is blessed to have two very special parents. Lorraine
From: Jeni Ried - jreid@lanset.com
How I found your page: Link from Ponseti Website
Comments about the web site: My son was also treated by Doctor Ponsetti, but we live in CA so we are being treated regularly by someone else. I know Dr. Ponsetti believes in being in the brace at night until the kids are about 3 years or so. Here they are telling us that it's already over corrected and perfect and to leave it alone. I have always worried. He's two now - everything is still fine (those toes still list inward, but they say they grow out of that - and the small size and the small calf; but it looks like a well corrected club foot - the best one our doctor has ever seen he says, but do you have your daught in a brace of some kind? Jeni
From: Mary Fryk - mfryk@amfam.com
How I found your page: Link from Ponseti Website
Comments about the web site: What a wonderfull website. A friend of mine just had a baby with clubfoot and to see the success your daughter has had is amazing. I hope hers is just as great as yours.
From: Patrick Lehmann - pattyboylehmann@netscape.net
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Thank you for producing this web site. Our son(first) is 6 weeks old, came home in casts 7/31/01. My wife and I were both a little shaken, but this info really helps us to get a perspective on the next few months. Kudos to you good people.
From: Dianne Knight - knightfm@netection.net
How I found your page: From a search engine
Comments about the web site: We are thinking about adopting a 2 year old boy from Bulgaria that has club feet, certainly not as bad as Anna's. Just wondering what to be prepared for and what procedures are available, I am sure early intervention is best, and this little guy is two already, so this may not work for him, but if we proceed we will certainly check it out. Thanks for a very informative web site and congradulations on your beautiful little "Model"!!
From: Scott and Faye Hodgin - hodginfamily@msn.com
How I found your page: From a search engine
Comments about the web site: Thanks for sharing your story and pictures. We are currently travelling to Baltimore,MD from Richmond, VA so our daughter, Courtney, can be treated for bilateral clubfoot using the Ponseti method by Dr. John Herzenberg. He is a wonderful doctor as well and we love the staff there. Courtney had her tenotomies done last Tuesday and we are looking forward to the same wonderful result that Anna got. By the way, what size was her first pair of shoes? Did she stay in that pair from 9 weeks to 7-1/2 months? Just curious. Thanks again for your hard work. The site looks great. Scott and Faye Hodgin
From: JJ Streit - jstreit@osullivancreel.com
How I found your page: From a search engine
Comments about the web site: Thank you for all of the information that you have shared on your site. I first visited your site when I learned of my son's bilateral clubfoot at 20 weeks in my pregnancy. I found Anna's story uplifting in a time when I needed to hear some good news. And it was nice to see some updated pictures. My son is almost five months old. He started his treatment at 11 days old. He has been through 4 weekly castings and changes, the tendon lengthening surgery followed by three more weeks of plaster casting, the bar shoes, custom made plastic casts (braces), and now the wheaton brace. He had some great results from the plaster casting, but my boy grew so fast and so strong that he was fighting the shoes. We couldn't keep his feet in the shoe. So we went to the custom made plastic cast from Hangar. It seemed like we were at Hangar twice a week to stretch out the plastic and lengthen the legs of the casts. My son couldn't keep anything on him long enough for them to do any good. So the latest thing we have tried is the Wheaton brace. It would probably do some good if my son wasn't so strong. His orthopedic surgeon wants to wait a few more weeks before she did any further treatment. And as a new mother, I couldn't wait that long and I didn't want to lose any progress that we have worked this hard and long for. My husband and I went to see the head of the Orthopedic department at Nemours Clinic. He saw my son and said that there isn't any brace or casting that will work at this stage. My son is too strong and fights the braces and gets blisters and pressure sores from them. So it looks as if we are headed to surgery twice in October. They will do one foot at a time. My husband and I will be sitting down with both surgeons soon to discuss the details of the surgery(s). Please keep us in your prayers and thank you again for sharing your precious photos of dear Anna. Best wishes to your family! Sincerely, JJ
From: Jill Feldman - jillfeldman@hotmail.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: My grandson was born just 4 days ago (3rd September, 2001)and his feet look identical to Anna's. He had his casts yesterday. His mum and dad (Yvonne and Luke) had shown us your story before the baby was born and it's been so very helpful to read of your experiences and to see how beautiful your Anna is and to know that you and many others have gone through what my son and his wife are just beginning. We thank you for sharing what must have been a difficult phase of your life at times - it's been most informative and encouraging and we thank God that He has blessed you with your little Anna and to see how successful the treatment has been. In fact my husband had a club feet and strangely enough, his name is David Feldman - what a small world it is... i think perhaps my son, Luke, may have emailed you earlier on this year with this story - however, Dylan George Feldman has arrived, is THE most beautiful boy and smothered with love by his big 17 month old sister Maddison- again thank you from a grateful granny. Jill Feldman
From: Jo Ann King - kkkittykat@home.com
How I found your page: From a search engine
Comments about the web site: Thank you for sharing your plight with us. I have a brand new great grandaught that was born with club feet and I was certainly given lots of hope that she will be as perfect as your Anna.
From: Martie Land - landdisney@aol.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Our Son Sean was also born with clubfeet on December 31, 1999. He has undergone this method as well. He has done well but, for the last month he has had difficulty in wearing the Denis Browne Bar at night. He cries and cries until we take it off. He seems to prefer to sleep on his side and it is most unnatural to have one leg sticking up in the air. Any suggestions?
From: Jan Bunten - janisbmom23@yahoo.com
How I found your page: From a search engine
Comments about the web site: Thank you so much for sharing your story online. Like you, I found out at 20 weeks in an ultrasound that our baby has bilateral club feet. Anna's story was invaluable to me as we search for the right direction for our daughter's treatment. We are searching for a doctor in the southeast trained by Dr. Ponseti. Thanks again!
From: stephanie hogan - shogan29@hotmail.com
How I found your page: From a search engine
Comments about the web site:
From: stephanie hogan - shogan29@hotmail.com
How I found your page: From a search engine
Comments about the web site: please contact me asap stephanie hogan 713/392-5055
From: Christine Jarmon - hsmcrissy@aol.com
How I found your page: Link from Ponseti Website
Comments about the web site: Thank you for sharing. Our son is only a month younger than your little girl. He is being treated by Dr. Ponseti. We love this man and he has a great love for these babies. Josiah is now walking all over the place. I hope and pray that Dr. Ponseti's method continues to be more widely used. Sincerely Christine Jarmon
From: meredith weaver - trenton-babyw@excite
How I found your page: From a search engine
Comments about the web site: thank you so much for your amazing story. my 10 week old son Trey has been going through casting since he was a day old. it's nice to hear of the success stories to help keep our spirits up on the two hour drive to the doctor.
From: melissa richardson - meldilrich@hotmail.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: hi, i am from jamai,ca and thank god for the internet,i am grateful for sites like yours.i've read your page several times.i am a bit jealous my son is now 9 mths,at 7 mths he did the tenotmy but it was not an in office procedure as you said,he was given general aneasthetics,but it was very quick.he is now walking around by holding on,but he has the tendency to turn on his ankle.anyway enough of me, thanks for your help with this resource page........melissa
From: Angus & Kate Lyall - Angus.Lyall@prebon.co.uk
How I found your page: From a search engine
Comments about the web site: Excellent Web-page..as I'm sure veryone else has commented, you truly have a very beautiful daughter!! We have a 17 month year old daughter called Lily - who really belies her beautiful looks and femininity, by charging evrywhere more like a Boy!! She was bi-lateral at birth, and has had extensive treatment and operations to date; maybe necessary to have further surgery in about 6/7 months on her left foot. She has been walking since just 14 months, which was extremely pleasing, but does topple over a lot, due to walking mainly on the edges of her feet! We are due to collect a pair of corrective shoes for her next week - in time for Christmas! These should hopefully provide a much better platform, and limit her falls. Kind regards, and well done again with the Site. Angus & Kate.
From: Rhyan Nelson - friends.tc@shrinenet.org
How I found your page: Link from Ponseti Website
Comments about the web site: I have a clubfoot.
From: Lif Magneudottir - lif@atom.is
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: I was born with clubfeet in 1974 and was operated twice. One can hardly tell my feet are abnormal except for the four scars. I just want to give you my support. I had a son in august 2000 and he did not have clubfeet. I think children with clubfeet should be raised to believe in themselves so that they will not suffer from low self-esteem about there feet! For me it was a problem during adolecence but now it´s just me and I´m proud of who I am. Good luck and a happy new year with your wonderful daughter with her beautiful feet. Lif.
From: Michele Jones - Belvnfate2@aol.com
How I found your page: Other
Comments about the web site: My son Hunter that is 4 1/2 years old was born with club feet. I also found out at 5 mos. due to getting a ultrasound to find out what sex he was. After he was born on June 22, 1997 he got his first set of case. He was so small to be wearing those big things. He kept getting case up until he was 5 mos. old and that was when he had his first surgery on both of his feet. Again, casting for several more months and then another surgery on Oct. of 1999 when he was about 2 1/2 years old. This surgery was only on his left foot. I forgot to mention that we were Air Force and we had to travel 3 hours for each cast change and surgeries due to no Ortho Clinic for Children at Eglin AFB Fl. was available. What finally happen was the doctor decided to put more cast on and I felt that he hurt his feet more than help them. They seemed to turn in more. I finally decided to get an 2nd oppinion and called the Shriners. They excepted him to get checked out at the hospital in Tampa, Florida. We went June 12, 2000. The doctor there took x-rays and looked Hunter over very well and decided for us to come back in 1 year. He wanted to wait to see if there would be any chances in that time. Well I called today and I got his nxt appointment for March. I've got myself uptight again and I'm trying to find out more info again. When I saw your little girls feet it made me think of Hunters feet all over again. And by the way they look great now! If you have any suggestions or comments please email me back. Thank you for sharing your family with others. Michele Jones
From: Dr Philip Stokes - philip.stokes@btinternet.com
How I found your page: From a search engine
Comments about the web site: To let you know I was born in 1932 with bilateral talipes, as was my father. Mine was thought to be due to limited womb space. I had operations - both feet - at ca.6months and a repeat of the operation on rt foot at 6years, due to adhesions. Then slow but steady progress starting with casts, leg irons etc. I found residual weakness a problem in the army, but by age 25 I was doing alpine climbing, and for years was considered expert in wilderness walking & survival. So everyone, do be encouraged ... work at it and help your childrens' confidence to do things. Afyerthought - a friend's son was cured without operation some years ago - but I can't make technical comment on that. Regards, Philip Stokes
From: Kathy Kroeplin - kathynd99@yahoo.com
How I found your page: From a search engine
Comments about the web site: Hello, I found your web page very interesting. My grandaughter was born with club foot January 13, 2002, we were so scared. She lives in Rochester Mn and has the best Dr. available, a orthopedic/pediatritian. She had her 3rd casts put on on Thursday. Little Brooke gets very fussy this day of course and has many sessions of extreme crying. My daughter gets so upset, is there anything besides the tylenol and avil the doctors recommended to relieve the pain for her? AT least we think she is having pain, or possibly remember her experience during the casting when she gets so upset? It sure would be nice to hear from you as my daughter and son in law have look on the internet alot for a support group or to hear other parents stories such as yours. Thank you very much for any information you can give us.
From: vasu & Preethi - kvasudevan@yahoo.com
How I found your page: From a search engine
Comments about the web site: Hello, What a wonderful site and a wonderful baby.We appriciate your hardwork in putting together this site.BTW we had our daughter shruthi on 01/23/02 and she has clubfeet on her right.We are also giving her ponseti method of treatment from Dr.Colburn in bayarea.I am interested in knowing Anna's progress at this time.
From: Anna-Catherine Sendgikoski - AnnaCS@aol.com
How I found your page: From a search engine
Comments about the web site: Hi, I just happened to come across your website and saw that your daughters and I share a name. Well, kind of. I use Anna-Catherine, with a hyphen between the two names. I wish your daughter all the luck in the world and hope she grows up to be a great Olympian or something like that! Sharing your and her story on the internet is the best. I had no idea how clubbed feet were treated. Goes to show ya, one really does learn something new every day. Thanks and good luck! Anna-Catherine
From: Gretchen Bietz - gbietz@adv.unr.edu
How I found your page: Link from Virtual Hospital.org
Comments about the web site: We just discovered two days ago that our son, due 8/13/02, has two club feet. Your web site is excellent and I appreciate your no-nonsense description of what might be our future. Congratulations to Anna!
From: Frank Peake - Frank.N.Peake@Wellsfargo.com
How I found your page: From a search engine
Comments about the web site: Thanks for sharing your family's story. I am an expecting father (our third). Today we found out we have a possible single left club foot, and my wife is really worried. It really seems like quite a process to go in every week for new casts etc. How old is your daughter now and how were the final results?
From: Naomi Davies - ndavies@brooklyn.cuny.edu
How I found your page: From a search engine
Comments about the web site: Glad I found you guys! I met you a the Ponsetti workshop with my daughter Olivia. I was the mom making the fuss about the shape of the inserts and the width setting of the DB bar - everyone then rushed to get theirs changed. I also showed you how to detatch the shoes form the bar in the waiting room on the 3rd Floor befire the workshop. That being said, Olivia is about Anna's age and I'm having SERIOUS trouble keeping the bar on at night. I see my doctor tomorrow - in Olivia's 18th month, I think I'll be saying I can't keep the bar on any longer. Are you experiencing the same problem? We are all wrecked form lack of sleep and general worry that we won't doing the right thing for Olivia. Livvy had a unilateral club foor that was diagnozed as "mild" measuring 2 to 2.5 on the 1-5 scale the doctor uses for guaging, 5 being the worst. What to do? If you have time, let me know if you are having similar trouble.
From: Cathie Wood - cwood@frognet.net
How I found your page: Other
Comments about the web site: Our daughters were born in 1969. Both with club feet and both weighing 2 pounds or less. We lost one daughter within a week. Dr. J Ridgeway of Grant Hospital in Columbus, Ohio took our daughter immediately and used casts, braces and 22 operations to fix her feet. I was most impressed with the article and though I am glad our daughter is ok, I wish this technique was available for her years ago. She has a foot size 7 and the other a 4 (she loves shoes), she has 2 children and is fine and I am always looking to see what is new since I teach staff how to deal with disabilities and behaviors. Thanks for letting me see a whole new process. it is impressive.. Cathie Wood
From: Linnie Evans - levans@tbailey.com
How I found your page: From a search engine
Comments about the web site: I am 23 years old and was born with severe bilateral clubfoot. Recently I started asking my parents where they had the pictures of my feet from before my casting and surgery. They didn't have any. I couldn't believe it. So I decided to look online and I found your page. So I want to say thank you for posting the pictures of your daughter (she's beautiful!). It has helped me in my understanding of why my feet are the way they are. I still don't know very much about clubfoot, what causes it, if I should have done other treatment as a child or if I should be doing anything now. However, I'm sure your site and other's sites are going to help me a great deal. If you have any other information that you think may be helpful, please let me know. Thank you again, Linnie Evans levans@tbailey.com
From: Stacey Saucier - stuart.saucier@sympatico.ca
How I found your page: Other
Comments about the web site: Thank you so much for Anna's website. My baby is due any day, and it has clubfoot. I will be looking into Dr. Ponsei's method. Anna's feet look wonderful. You have a beautiful daughter. Thanks again
From: Wolf755 - wolf755@hotmail.com
How I found your page: From a search engine
Comments about the web site: I'm a 44-year-old clubfoot, and after viewing the pictures in this site, I recall the Browne splint and a few other details. I'm doing some research now, trying to find answers and ways to deal with my deformity which was not successfully corrected. I'm so glad for your daughter that she's going to be able to get along with a normal life. I wasn't so lucky. I'm dealing with the onset of arthritis now, searching for some info on clubfeet in adults, and there's precious little on the Net. Be well!
From: patricia.lopes - pakelekia077@aol.com
How I found your page: Other
Comments about the web site: god bless !!!!!!!!!
From: Jena Frisch - Yodumby@msn.com
How I found your page: Link from Ponseti Website
Comments about the web site: I was very moved by Anna's Story. I too have a child that was born with Clubfoot Deformity. Korbin (4 months old) is now in the Denis Browne Bars Shoes and all seems to be going well. Reading Anna's story gives me hope that my son will be able to run and play with all his friends someday...
From: Angie Paredez - avparedez@hotmail.com
How I found your page: From a search engine
Comments about the web site: Your daughter is absolutely beautiful. I found your website while researching bilateral club feet. My nephew was born on Thursday night with bilateral club feet. He is scheduled to go to Scottish Rite Children's Hospital on Monday to begin corrective procedures. Any advice you can give me would be quite helpful.
From: Alexis Logan - lex@logan-family.net
How I found your page: From a search engine
Comments about the web site: I wanted to congratulate you on Anna's success. My son, Jonathan, was born with both feet clubbed and had a rating of 13 on one and 14 on the other. We didn’t get started on correction until he was a month old (he was premature and was hospitalized until then). Although we didn't use the Ponseti Method, we used something very similar developed by Dimeglio of France. It involved taping, rather than casting. We went every day for about 3 mths to be taped and one or two times per week after that. He ended up having a perk on the right foot, but no other surgeries. After 9 mths of physical therapy and taping he was doing great. Now at 16 months old, you would never know he went through the whole experience. I found your web site because I am doing a speech over clubfoot and wanted to thank you for such great documentation of your daughter’s experience. Best Wishes.
From: Joanne Powell - joannepowell123@msn.com
How I found your page: From a search engine
Comments about the web site: WOW, WHAT A BEAUTIFUL DAUGHTER ANNA IS. I wish my brother 21 years ago didn't have surgery. This method was only applied until he was 4 months old. If they had used the brace method etc he may not have such scarring like he has today. He is quite straight now and walks with a slight limp but mainly. Thankyou, thankyou for sharing your experiences and positive outcome. AGAIN, Anna is such a beautiful baby regardless of being a star!!! All the best to you all Joanne from Melbourne, Australia
From: Heather & Ross Gullo - hgullo@twcny.rr.com
How I found your page: From a search engine
Comments about the web site: Hello and thanks for the page! My husband and I just had twin daughters (Anne Katherine, wierd huh? and Sophia Katherine). We found out at about 17 weeks gestation that Sophie had 1 clubfoot and she just started her Ponseti treatment. She got her first cast at 3 weeks (3 days ago). Because they were twins they were born 6 weeks premature and had bigger issues than the foot so they didn't start the casts until then. Sophie's clubfoot was caused by overcrowding and a lack of amniotic fluid in the sac due to Twin to Twin Transfusion Syndrome. We really appreciate all the research and photos you've provided. We feel better already. Enjoy your sweet little baby girl! Heather Gullo
From: Ron Cross - rdcross@zoominternet.net
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Thank you for the pictures. Seeing the stages and the end result helps us feel more confident that our David will be fine. Sincerely, Ron Cross
From: Erica & Chris Brown - ChrisnErica@juno.com
How I found your page: Recommended by a friend
Comments about the web site: I thought your website was wonderful! We just found out on August 6, 2002 that our unborn son, Carston Davis, has a clubfoot. As you were, we were very shocked & completely in the dark as to what having a clubfoot meant. We've also done research using the internet & have finally found a doctor to treat our son come December. Thanks for sharing your story! Sincerely, Chris & Erica Carston Davis EDD 12/9/02
From: Lisa Tibbs - lisa_gail41230@yahoo.com
How I found your page: Other
Comments about the web site: Hi, my name is Lisa and i just want you to i'll be praying for daughter anna and i also hope with treatment the doctors can fix the problem. And i want you to know i had club feet when i was younger and with sergery the doctors fix the it. and wearing special shoes. i will pray for your daughter and have my church pray for her. I know that god will be with you and your family And i also hope you just trust in god and believe that god can help in any situation.
From: VICTORIA CASTILLO - vicky@ols.es
How I found your page: From a search engine
Comments about the web site: I have a baby born last June 19 with the same problem. Is been very helpfull see how pretty and nice is your baby and how this method is helping. thks
From: nely - nelissa@ms19.hinet.net
How I found your page: Link from Virtual Hospital.org
Comments about the web site: hi Im nely from taiwan. My son suffer from clubfoot too Seeing your website makes me feel better about my sons condition. God bless!
From: Chad Basel - basel.chad@principal.com
How I found your page: Other
Comments about the web site: Thank you so much for having a web-site like this. My wife and I found out the same news you did at around the same time in the our pregnancy you. We had no idea what to do, but with the help of friends, doctors, and specialists, we have been more than satisfied with the overwhelming support and information that people are willing to give. Our due date is December 27, which seems so close, but also so far away, and have been in an emotional rollercoaster ever since finding out. We are going to visit Dr. Ponseti this month and with all the news and buzz that one man has generated from wonderful people like yourself, we are positive that our child will be able to have a happy life with the correction needed. My wife and I would like to thank you for sharing your daughter condition with us and wish you nothing but happy times ahead. Thank you!! Chad and Leslie Basel
From: Sophia Huang - chingh@tpts1.seed.net.tw
How I found your page: From a search engine
Comments about the web site: Hi Anna, I will have a babygirlwho may have clubfoot. I am worry about this. Thanks for your experience. I hope my baby is so lucky like you. Thanks Sophia Huang
From: Theresa Adkins - TwinJA@aol.com
How I found your page: Other
Comments about the web site: One of my 8 year old daughters had one clubfoot. Her foot was turned to a similar degree as your daughter's. She went to Handicapped Children's Clinic in Huntington, WV, but they did not help her and seemed to hurt her more. I took her to Shriner's Hospital in Lexington, KY when she was a year old. At a year and a half, surgery was performed. All the doctor had to do was score the muscle and cast her foot for about 6 weeks. There was nothing abnormal in her bones to her feet or hips. Alura wore a brace on her one leg for about 3 months, then has been fine since. She sometimes will over work her foot, but not very often. I thank God for Shriner's everyday. My little girl could not even wear socks (they would slip off) until they helped her. I have recommended this hospital to friends and strangers, alike. Shriner's is a charity hospital and will treat ANY child under 18. They do not bill your insurance and do not ask for any payments. The Hospital even provides a bed for a parent in the room. They really go out of their way to make it a positive experience for the child and the family.
From: Theresa Adkins - TwinJA@aol.com
How I found your page: Other
Comments about the web site: One of my 8 year old daughters had one clubfoot. Her foot was turned to a similar degree as your daughter's. The hospital where she was born just told me that it would straighten on it own and to leave it alone. When she was about 6 months old, she went to Handicapped Children's Clinic in Huntington, WV, but they did not help her and seemed to hurt her more. The clinic did not check her hips or take any X-Rays. I took her to Shriner's Hospital in Lexington, KY when she was a year old. At a year and a half, surgery was performed. All the doctor had to do was score the muscle and cast her foot for about 6 weeks. There was nothing abnormal in her bones to her feet or hips. Alura wore a brace on her one leg for about 3 months, then has been fine since. She sometimes will over work her foot, but not very often. I thank God for Shriner's everyday. My little girl could not even wear socks (they would slip off) until they helped her. Alura would try to stand, like her twin sister, but she knew it was her foot that kept her from standing or walking. She walked on her knees. Alura would fall down and scream and cry. Then she would reach down and bite her clubfoot. It was heart-breaking. I have recommended this hospital to friends and strangers, alike. Shriner's is a charity hospital and will treat ANY child under 18. They do not bill your insurance and do not ask for any payments. The Hospital even provides a bed for a parent in the room. They really go out of their way to make it a positive experience for the child and the family. I ALSO WANT TO ADD THAT I AM VERY HAPPY FOR THE SUCCESS FOR YOUR LITTLE GIRL. IF THIS IS AN EXPENSIVE, NON-COVERED TREATMENT, PARENTS THAT NEED HELP MAY WANT TO CALL THEIR LOCAL SHRINER. A TOLL FREE NUMBER THAT I HAVE IS 1-800-668-4634. MAY GOD BLESS ALL THE LITTLE ONES!
From: Dhidhak - djpbandalan01@bigpond.com.kh
How I found your page: From a search engine
Comments about the web site: Never knew Ponseti technique until i heard it in one of our meetings and started to get interested. Seeing Anna made me more interested. I wish all children here in Cambodia would get the same treatment. We are looking forward to the training next year.
From: anuradha - anuradhaa.r@healthscribe.com
How I found your page: From a search engine
Comments about the web site: Simply Excellent!!Congratulations to Anna and her parents who have created this precious piece of information!! May God bless her with all the health and wealth in Life!!! am a transcriptionist, got to know about it in one report, was curious to see how a clubfoot looked..also, i am mother of a 6-1/2-month-old Siddharth, hence all the more concern..I know how it feels when the newborns are subjected to such treatments (my son had to undergo 2 blood tests for thyroid function, i just cant describe as to how the parents feel when their kids are suffering, only another parent can understand this). Am really taken aback for the amount of control on oneself during such a tensed period and the patience in creating this marvel which can do wonders for others with a similar problem by the amount of information it contains and the amount of assurance that one gets after looking at those beautiful feet of Anna...She is simply a wonderful creation. Thanks a million for sharing your story online.
From: amie beville - alaylah143@aol.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: Thank you for sharing your story with me. I am doing a project in school/college on this. You can be sure that 50+ people will be showed what happened with anna. Wish me luck with my project! =) And I wish anna luck with her condition. And congrats on getting it fixed. I hope she is well. Thanks again amie beville =)
From: Claudi - webmaster@conbio.de
How I found your page: From a search engine
Comments about the web site: nice page. many greetings and kisses from germany
From: Ashleigh Gunter - agunter@north-highland.com
How I found your page: From a search engine
Comments about the web site: Thank you so much for taking the time to do this page. I am 31 weeks pregnant with our first child. At 20 weeks our OB identified the fact that our son has bilateral club feet. We have been very concerned about the process that he would have to undergo after birth, but your web site made us both feel so much better! Your daughter is beautiful. Thanks for sharing your experience. It really made a difference to us.
From: Fran Taylor - phrannt@charter.net
How I found your page: Recommended by a friend
Comments about the web site:
From: Fran Taylor - phrannt@charter.net
How I found your page: Recommended by a friend
Comments about the web site: My daughter and son-in-law are expecting our first grandchild, a boy, in mid-February. We have all known for some time of the clubfoot diagnosis, but have been unsure as to how his treatment might progress. This website has been reassuring and a great help. My congratulations to Anna and her parents for going through so much so successfully and for being willing to go to the extra effort of helping people facining similar situations. Thank you very much.
From: Meagan Greenough - meagangreenough@attbi.com
How I found your page: Recommended by a friend
Comments about the web site:
From: Bruce Irving - bai@enpro.com
How I found your page: From a search engine
Comments about the web site: My wife just had an ultrasound at about sixteen weeks and it seems we may be faced with the same challenge as you were. Your site is very comforting and informative. Thanks!
From: Justin Tholath - justintholath@yahoo.com
How I found your page: From a search engine
Comments about the web site: My kid (Joshua) born 2 days back has his feet (bilateral talipes) very much like Anna's. Joshua is born in Nottingham UK. Just like to know if you know about the Ponseti treatment in the UK.
From: Fran Taylor - phrannt@charter.net
How I found your page: From a search engine
Comments about the web site:
From: Fran Taylor - phrannt@charter.net
How I found your page: From a search engine
Comments about the web site: I've revisited Ann'a site today as a means of comforting..."our" baby, my first grandchild is due mid-February and I am preparing to travel to ATL for his arrival. He will be born with "bilateral clubfoot". Your efforts and willingness to share Anna's success story have helped me, my daughter and her husband so very much. Our heartfelt thanks.
From: Edith Walters - Sweethingedie@aol.com
How I found your page: Recommended by a friend
Comments about the web site: My daughter found out today that her unborn daughter wil be born with clubfeet. This web site and your story will be a great comfort to her. She is really torn up over this. This is her first child. Thank you for sharing your story.
From: Maryann W - jw.shortcircuit@verizon.net
How I found your page: Link from Virtual Hospital.org
Comments about the web site: What a gift you have given us all. It is hard to share such personal and difficult things with strangers. My son Patrick has bilateral club feet and has been treated at Shriners Hosp. in Springfield where they are using the Ponseti Method. I can't tell you how grateful I am to have found this site. Now I can really understand exactly what is being done and why. Patrick is 9 mos. old now and has been in his Denis Browne Bar for 6 months or so. We are very strict about it and plan to follow every detail of the Ponseti method to avoid him having surgery or future problems. I was also born with club feet and unfortunatly was treated differently. My results are no where near as nice as my son's and your Anna's. Anna is a beautiful girl and I'd like to thank her for being so brave and wish you all continued success.
From: Debra Dye - dyefamily@yahoo.com
How I found your page: Other
Comments about the web site: I know some of what you went through because my little girl was born with clubfeet. I guess you have heard of the El Hasa Shriners, that is where we went for help to get her feet worked on. My daughter also had jaundice when she was born too. It is really hard being a first time parent and when you have the baby the doctors tell you that there is something wrong with your child.
From: Angel - fntsyangel@charter.net
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: This is a great site! It took all the "mystery" out of what we are about to go thru. Thank you!
From: Rena Tower - towerrena@hotmail.com
How I found your page: From a search engine
Comments about the web site: Wow! How inspiring! My son (3 mos. old) goes in for his heel cord lengthening surgery on Tues 1/21. Very anxious! Your story and photos helped!
From: t.j. - tjic13@yahoo.com
How I found your page: Other
Comments about the web site: hey dennis its tj(if you remember).the baby looks great.im really happy for you,and i hope that we can get together some time.id like to see ya,you know get to know how your doin.well ill talk to you soon then.
From: teresa - DozenthKITTEN@HOTMAIL.COM
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: Hi i was so shoked to see the improvements on your daughter Anna,s feet my son has club feet also but unfortunately he has had alot of opperations and still needs more he is doing alot better but it has been along hull for mom and son it was a rewarding article to see how your daughter progressed thankyou for shareing it with us
From: Janel Schieffer - jjschief@yahoo.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: What a beautiful story! She is a beautiful little girl. I have a son Jeremy with a right clubfoo. He has had 4 surgeries. We didn't know about the non-surgery method when he was born 10 years ago.
From: Missy Meadows - dameadows3@yahoo.com
How I found your page: From a search engine
Comments about the web site: This website is wonderful!!! My son (now 3 1/2 mos)was born with right club foot. He is undergoing the Ponseti Method also. We are now in the Dennis Brown Brace! We've had a few problems with it, he was pulling his foot upwards and caused a crease on the outerside of the bottom of his foot. It's very hard to explain, and I haven't seen pictures on any other site of children with the same problem. Anyway, all seems to be going well now. It's wonderful to see your little girl doing so well, gives us lots of hope. Thanks again and God Bless!! Shane and Missy Meadows son: Brent 10/10/02 DOB
From: Theresa - tsaylor2001@aol.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: What a wonderful job you did showing the whole Ponseti process. Thank you for sharing your journey. I'm sure it will help many parents in the future. God Bless Theresa mom to Dylan, born 2/24/01 bilateral clubfoot (repaired - DBB nighttime only) unilateral cleft lip & palate (repaired)
From: virginia burke - brkpdb@aol.com
How I found your page: Link from Virtual Hospital.org
Comments about the web site: my daughter was born with clubfeet too. she is doing fine too she is almost two she had to have the clubfoot surgey but only weres the afo braces.
From: J Long - jklongAptsi.net
How I found your page: Link from Ponseti Website
Comments about the web site: Our 14 year old son was born with bilateral club feet. He has undergone 3 surgeries. We are now at the point of interviewing a doctor to preform another surgery on his right foot. Tell everyone you know that Dr. Mark Capehart in Tulsa is not a doctor to choose. He is responsible for our son having to have this coming surgery.
From: Theodore Power - Theodore.Power@dowjones.com
How I found your page: From a search engine
Comments about the web site: We just found out that our child has at least one club foot, and we found your website very encouraging. Thank you.
From: Scott Barton - sebarton@aol.com
How I found your page: iVillage Clubfoot Support Board
Comments about the web site: Great site! I hope that you don't mind, but I've added a link to your site in our family website. Our baby is due in 2 weeks and they have prenatally diagnosed him with bilateral clubfeet. Your website is a beautiful illustration of the Ponseti technique. Thanks, Scott Barton
From: Juliette David - juliettedavid197@hotmail .com
How I found your page: From a search engine
Comments about the web site: I found your site very informative. I am 20 weeks pregnant and have just found out through my scan that the baby has bilateral talipes. I am obviously very concerned about surgery etc but found the casting that your baby had to be a much better option. The only problem is i live in the U.K and am not sure if this procedure is available here. Anyway thanks for the great help your website has been. Juliette David South Wales. uk
From: Berta Vidal Ponseti - berta
How I found your page: Other
Comments about the web site: I would like to congratulate Ignacio Ponseti. He is the brother of my grandfather. I'm from Barcelona. I think he's a very very good doctor. I met him two or three years ago in Barcelona. I hope he and her wife Helena are well. Regards from Barcelona, Berta Vidal Ponseti
From: Cari Wood - cookielou75@yahoo.com
How I found your page: Recommended by a friend
Comments about the web site: Great site! My son was born with one club foot. He has just finished his casts and tendon surgery and is wearing his brace. Great to see Anna had a great outcome!
From: Michelle - mmblattner@hotmail.com
How I found your page: From a search engine
Comments about the web site: I just found out or it was confermed that the little boy that I am pregnant with has clubfoot to only his left foot. I was searching for information on it when I can upon your site and it made me feel so much better... thank you
From: Annette Crosby - crosbyannette@hotmail.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: That's great. This is a great job. I hope Anna continue like now. God was great.
From: Sergio García - esdras710@hotmail.com
How I found your page: Link from Ponseti Website
Comments about the web site: No se si podeis leer español. Nuestra 5ª hija nació con un pie equino varo como Anna. No estamos teniendo los mismos resultados,¿Qué podemos hacer desde España? El Dr. Ponseti conoce a alguien aquí que nos pueda ayudar? Muchas gracias
From: Kathy Caston - kathycaston@mail.com
How I found your page: Link from Ponseti Website
Comments about the web site: Thank you for this wonderful website! My daughter is due to give birth to her first child (boy) and he was diagnosed with bilateral clubfeet during ultrasound. After much researching, they have chosen Dr. Ponseti's method. Your site has been most helpful!
From: Clarivel Garcia - enriqueandclari@sbcglobal.net
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: I found your website very helpful, I have a 4 month old with one clubfoot. We are seeing a doctor out here in California that uses the Ponseti method, and we're actually going to meet Dr. Ponseti on March 25th. My question is if Anna walked at a normal age? That is one of my concerns with my daughter. I also was not aware of the hip problems that can occur, I'll have to ask our podiatrist when we see him next. Also I want to know how gradually they cut down the time that Anna had to wear her "bar". Our daughter started with 23 hours for a month, then she went to 21 hours for three months and now she's at 18 hours per day and we don't know for how long that we'll be for. We're really looking forward to meeting Dr. Ponseti in person and I think it's an honor to be asked to be seen by him. I want to thank you for a wonderful website and for all the usefull info. Thank you, Enrique, Clarivel and Giselle Garcia
From: april c. - alc420@yahoo.com
How I found your page: Other
Comments about the web site: I'm am glad to hear your story. my son Joseph is 10 months old. he was born with severe club feet. They tried casting but no progress. He is actually having surgery in a couple of days. I hope my story turns out as good as yours.
From: Alyson Kuhn - arkuhn@mindspring.com
How I found your page: Other
Comments about the web site: Hi, Dennis. I had just typed you a long-ish message in here, but then scrolled back up to change something, and lost everything! I'm the writer working on the brochure for the Center for Children. Thanks hugely for chatting with me this morning. The website is fabulous, Miss Anna Catherine is, as advertised, terrifically photogenic, down to the tips of her perfect toes. I'll try calling your home this evening to talk with Veronica. Thank you again! And the designer of the brochure, David Schimmel, will call you in a couple of days about the photos.
From: Alyson Kuhn - arkuhn@mindspring.com
How I found your page: Other
Comments about the web site: Hi, Dennis. I had just typed you a long-ish message in here, but then scrolled back up to change something, and lost everything! I'm the writer working on the brochure for the Center for Children. Thanks hugely for chatting with me this morning. The website is fabulous, Miss Anna Catherine is, as advertised, terrifically photogenic, down to the tips of her perfect toes. I'll try calling your home this evening to talk with Veronica. Thank you again! And the designer of the brochure, David Schimmel, will call you in a couple of days about the photos.
From: Webmaestro - webmaestro@ivillage.com
How I found your page: Recommended by a friend
Comments about the web site: Very nice website Anna. Please visit my website!!! :)
From: Rena Tower - towerrena@hotmail.com
How I found your page: eGroups nosurgery4clubfoot message board
Comments about the web site: Nice to see the full process. My son could not tolerate the DBB shoes and is now in the Wheaton Brace. Hoping his outcome is as good as Anna's. She's a beautiful girl and has exceptionally cute feet!
From: Sérgio Couto - sergio@concepta.com.br
How I found your page: From a search engine
Comments about the web site: Dear Coleagues: My brother's son will be born in next may. The Doctor told him that the baby will have a Clubfoot (Bilateral). My brother and my sister in law are very unhappy and worried. I will give this site address to them because I guess fantastic the Ponseti method. They need see the results !!!! Thank you !!! Congratulations !!!! Sérgio Couto/BRAZIL
From: matthew marks - mwmarks@purdue.edu
How I found your page: Link from Ponseti Website
Comments about the web site: How wonderful! My son has club feet and he started the Ponseti Method when he was a few days old. He is now nearly 3 years old and doing great. It is such a fabulous thing to see other children have the same kind of success. GO Anna!
From: jodie sappington - www.deutz@aol.com
How I found your page: Other
Comments about the web site: My daughter was born with a clubfoot on the left leg in 1998. They sent us to St.louis childrens hospital in St.louis Mo. The doctor there was Dr. Eric Gordon, he was born with both feet clubed himself. He started casting her immediately, with us returning every 2 weeks to change it. At 3 months he performed surgery clipping the tendon on her heel, which he felt released her foot enough. This was followed by more casting and then a brace. At 3yrs old she had to have more surgery done to clip the tendon on the top of her foot. After this was done she was in a cast for 5weeks. I couldn't believe how great Anna's foot looked upon completion of her treatment. My daughters foot doesn't look like a normal foot although she is able to walk and run normally. Her calve muscle on that same leg is smaller than the other one, and her foot is about a half a size different. We don't know if she will ever have to have any more surgery, but we will cross that bridge when we get there. She has been such a little trooper through all of her treatments, except it was very hard to keep a 3yr old down and still for 5 weeks in a cast! Our second child had perfectly normal feet. Your story is so heartwarming to see how wonderful it turned out. My daughter's wasn't found in my ultrasound, and I had 6 of them due to early labor pains. When I first saw her foot I was devastated. But after being at the childrens hospital I saw how much worse her problem could have been, and I was grateful it was only this. I really enjoyed reading and viewing your story. Thanks for sharing it!
From: jodie sappington - vc11@aol.com
How I found your page: Other
Comments about the web site: My daughter was born with a clubfoot on the left leg in 1998. They sent us to St.louis childrens hospital in St.louis Mo. The doctor there was Dr. Eric Gordon, he was born with both feet clubed himself. He started casting her immediately, with us returning every 2 weeks to change it. At 3 months he performed surgery clipping the tendon on her heel, which he felt released her foot enough. This was followed by more casting and then a brace. At 3yrs old she had to have more surgery done to clip the tendon on the top of her foot. After this was done she was in a cast for 5weeks. I couldn't believe how great Anna's foot looked upon completion of her treatment. My daughters foot doesn't look like a normal foot although she is able to walk and run normally. Her calve muscle on that same leg is smaller than the other one, and her foot is about a half a size different. We don't know if she will ever have to have any more surgery, but we will cross that bridge when we get there. She has been such a little trooper through all of her treatments, except it was very hard to keep a 3yr old down and still for 5 weeks in a cast! Our second child had perfectly normal feet. Your story is so heartwarming to see how wonderful it turned out. My daughter's wasn't found in my ultrasound, and I had 6 of them due to early labor pains. When I first saw her foot I was devastated. But after being at the childrens hospital I saw how much worse her problem could have been, and I was grateful it was only this. I really enjoyed reading and viewing your story. Thanks for sharing it!
From: Jeanette Silverthorne - jes121@columbia.edu
How I found your page: From a search engine
Comments about the web site: Thank you so very much for this web-site. My husband and I are expecting our first child in June and the baby has been diagnosed in-utero with bilateral club foot. Our OB has recommended Dr. Feldman and your web-site has provided not only the inspiration of a wonderful success story but also some reassurance that the recommendation was a sound one. Congratulations, Anna is a beautiful little girl.
From: Jeanette Silverthorne - jes121@columbia.edu
How I found your page: From a search engine
Comments about the web site: Thank you so very much for this web-site. My husband and I are expecting our first child in June and the baby has been diagnosed in-utero with bilateral club foot. Our OB has recommended Dr. Feldman and your web-site has provided not only the inspiration of a wonderful success story but also some reassurance that the recommendation was a sound one. Congratulations, Anna is a beautiful little girl.
From: Stephenie Eke - stephenie.eke@btopenworld.com
How I found your page: Link from Ponseti Website
Comments about the web site:
From: Thomas Key - thomas_key@hotmail.com
How I found your page: From a search engine
Comments about the web site: I need to find out some info. about club foot for research for school. 1) Environmenatal factors that may be know to affact the severity of the disease. ps. can u get back to me soon by the 4/14/03 please
From: Louise Johnston - loupe@statetech.com.au
How I found your page: Link from Ponseti Website
Comments about the web site: What a wonderful site you have created. Our 20 week scan of our first baby has just revealed that he/she(?) has talipes in one foot. We are trying to find out as much as we can about it, while also dealing with a bit of sadness and uncertainty. Your site has been a very moving and encouraging journey for us and we thank you so much for taking the time to put it together. We live in Adelaide, Australia and only hope that we can find a surgeon with a knowledge of the Ponseti method, and who is as good as yours seemed to be. We wish you and Anna well on your life journey. Warm Regards, Louise and Peter
From: Louise Johnston - loupe@statetech.com.au
How I found your page: Link from Ponseti Website
Comments about the web site: What a wonderful site you have created. Our 20 week scan of our first baby has just revealed that he/she(?) has talipes (club foot) in one foot. We are trying to find out as much as we can about it, while also dealing with a bit of sadness and uncertainty. Your site has been a very moving and encouraging journey for us and we thank you so much for taking the time to put it together. We live in Adelaide, Australia and only hope that we can find a surgeon with a knowledge of the Ponseti method, and who is as good as yours seemed to be. We wish you and Anna well on your life journey. Warm Regards, Louise and Peter
From: Katina Parent - MrsBebopHH6@aol.com
How I found your page: Other
Comments about the web site: what a wonderful page.... my son Jacob was also born with bilateral clubfoot. We also used Dr. Ponsetti's method. Our Dr. Palomino at Upstate Med Center in Syracuse NY worked wonders. Unfrtunately we had problems with the first Doctor we were sent to by our medical insurance (we are military so we don't get much choice) Then finally the first doctor refered us to a surgeon... Dr. Palomino. We have had our good days and our bad. Anyways... great site... wish I had taken as many pictures as you did.
From: Katina Parent - MrsBebopHH6@aol.com
How I found your page: Other
Comments about the web site: what a wonderful page.... my son Jacob was also born with bilateral clubfoot. We also used Dr. Ponsetti's method. Our Dr. Palomino at Upstate Med Center in Syracuse NY worked wonders. Unfrtunately we had problems with the first Doctor we were sent to by our medical insurance (we are military so we don't get much choice) Then finally the first doctor refered us to a surgeon... Dr. Palomino. We have had our good days and our bad. Anyways... great site... wish I had taken as many pictures as you did.
From: Victoria - vsf31@hotmail.com
How I found your page: From a search engine
Comments about the web site: Your site was very helpful for me. I am expecting a baby boy August 22. He was just diagnosed Monday with club feet. I was feeling really nervous and uneasy about this condition. I now feel comfortable, your daughter's results were great and she's a beautiful little girl.
From: Victoria - vsf31@hotmail.com
How I found your page: From a search engine
Comments about the web site: Your site was very helpful for me. I am expecting a baby boy August 22. He was just diagnosed Monday with club feet. I was feeling really nervous and uneasy about this condition. I now feel comfortable, your daughter's results were great and she's a beautiful little girl.
From: Victoria - vsf31@hotmail.com
How I found your page: From a search engine
Comments about the web site: Your site was very helpful for me. I am expecting a baby boy August 22. He was just diagnosed Monday with club feet. I was feeling really nervous and uneasy about this condition. I now feel comfortable, your daughter's results were great and she's a beautiful little girl.
From: Victoria - vsf31@hotmail.com
How I found your page: From a search engine
Comments about the web site: Your site was very helpful for me. I am expecting a baby boy August 22. He was just diagnosed Monday with club feet. I was feeling really nervous and uneasy about this condition. I now feel comfortable, your daughter's results were great and she's a beautiful little girl.
From: Inger Forland - iforland@aol.com
How I found your page: From a search engine
Comments about the web site: Thanks so much for putting this site together! Your daughter is beautiful--and it helped to track her procedure visually; we're in the middle of treatments for my son. (Love that pumpkin shot, too!) Thanks again.
From: William Lester - bles@qix.net
How I found your page: Other
Comments about the web site: My granddaughter is about to begin the Ponseti treatments; thank you for telling your story to anxious family members. Anna became a star!
From: Audra -