|
June 4 School is out and Casey is enjoying the break. Without the school schedule he is able to rest when he needs to and relax most of the day.
June 8 Casey turns 10 today! Happy Birthday to Casey, Happy Birthday to Casey....Happy Birthday dear Casey...Happy Birthday to you.
July 20 Casey is having a good summer. He is tired a lot and sleeps 12-14 hours daily. His breathing is labored just walking from room to room. He still sees the cardiologist at ACH on about a monthly basis. No changes in medications have been made.
July 16 Casey's trip with Make A Wish has been approved. They are having a pizza party to celebrate this week. We'll be leaving for Orlando on the 21st.
Aug. 1 We had a great time in Orlando! The Make A Wish people and Give Kids the World people were so wonderful! We stayed at the Give Kids the World Village. Casey enjoyed all the special treatment. He did better in the heat than we expected. They provided a wheel chair so he didn't have to walk.
He saw the shuttle launch, Universal Studios (no Keenan and Kel though), Sea World, The Magic Kingdom and much, much more.
|